cureduchenne.org
"We didn’t know anything about Duchenne and felt isolated that there was no one we could turn to, other than the doctors or the internet for advice, inspiration, or HOPE. CureDuchenne has hosted several workshops that have been invaluable in providing knowledge on the care, treatment and future of our son..." - CureDuchenne
August 8, 2011 was the day we first heard the word Duchenne. Every moment of that day is etched in my memory. We were hit out of the blue with the news -with no idea that our perfect little boy had a storm brewing inside of him. We were told there was no hope and …