shwachman-diamond.org
July Fundraising - Flamingo Flocking - Shwachman-Diamond Syndrome Foundation
When you have a rare disease you have to make a pretty big noise to get awareness and fundraising. More common diseases have months, days, dedicated teams to fundraising, etc. Being rare, it means a lot of those duties get assigned to parents just like us. My son is 5 years old and has been …