phassociation.org
FDA Comment Period on Life with a Rare Disease Still Open
Individuals with pulmonary hypertension (PH) and staff from the Pulmonary Hypertension Association (PHA) weighed in during a recent public meeting about living with a rare disease. The meeting was hosted by the U.S. Food and Drug Administration (FDA) and was designed to give people living with rare diseases and their family caregivers an opportunity to