Love Through the Extraordinary: Marriage, Parenting, and Family in the Face of Rare Disease by Rebecca Thereault
Movements flickered on the screen in the dark of the ultrasound room like stars in the sky when we first heard her diagnosis. He tried to hold my hand as they said she had tumors in her heart and brain, would likely suffer from epilepsy and autism, and rattled off the litany of other potentially devastating effects of her rare disease.
Author Rebecca Thereault and Private: Artist Barbara Carter