fivepminus.org
AWARENESS WEEK EVENTS - Five P Minus Society
International Cri du Chat awareness week is May 1-10, 2020 International Cri du Chat Awareness Day is May 5th. Each year the 5p- Society promotes a week of International awareness of 5P- Syndrome, or Cri du Chat. This purpose of this week is to raise awareness and encourage support of those with the Syndrome. It also marks the 57th year of the finding of Cri du Chat Syndrome by Dr. Jerome Lejeune. Members and supporters of the 5P- Society are encouraged to participate in the following campaigns: Submit a Proclamation to Declare May 5 as Cri du Chat Awareness Day with your State Governor Download this document and follow the steps and ask your State Governor to declare May 5 as Cri du Chat Awareness Day. 5p- Request for proclamation article-2020 Press Release Download this Press Release and send to your local newspapers. You will have an area where you can personalize the Press Release with your own information. 2020 Press Release The Impact of Cri du Chat Syndrome on the Community – Video Project As you may have read in President, Nick Wallace’s newsletter article, we have a big awareness week project coming up. This year we are looking to have short videos submitted of people outside of your family unit (examples: teachers, aides, nurses, doctors, community leaders, community members, etc.). These videos should not exceed 30 seconds and will be of the individual discussing how your child/adult, with Cri du Chat Syndrome/5p- Syndrome, has impacted their life. The 5p- Society will upload these videos, to our social media outlets, the week leading up to awareness week, during awareness week, and beyond. We may not be able to upload all of the videos, but we will try our best to get every video that is submitted uploaded. So, what do you need to know to participate in this project? Download the video release from here. Select an individual and record a 30 second or less video of that person discussing the impact your child/adult has had on them. (If you are recording your video with your phone, please record the video with your phone being horizontal versus vertical) With this being International Awareness Week, if you submit a video in your native language, please submit an English translation with your video. The parent(s)/legal guardian(s) as well as the individual being filmed will need to fill out and sign the video release form. No video will be shown unless a release form accompanies the video. Submit the video and the release, by March 15, 2020, using the following link: https://www.dropbox.com/request/7OUxtQvPSH6PYNfxIEKC We will start accepting videos and releases on February 1st and the final day to submit videos is March 15th. We are looking forward to seeing the impact your child/adult has had on the people around them. Share information cards: Please download, print and share these fact cards with your family, friends, co-workers and general public. Pass them out along with C5 during his travels. CdCS Fact Cards – Foldable CdCS Fact Cards First Responder Information Card View and share our “I Can” video that was produced in conjunction …