dementiacarenotes.in
Caregiver voices | Dementia Care Notes
Section with links to multiple dementia caregiver stories from India, in the form of interviews, newspaper articles, personal blogs, etc. Provides insight into stigma, caregiver problems and approaches, caregiver emotions and stress, etc. Dementia caregiver stories are rare to find in India because of poor dementia awareness and stigma of talking of caregiving challenges; such sharing allows caregivers to get a sense of community and get perspectives, tips, and ideas. Inability to share experiences with others means we are not prepared for the range of situations we may face, nor do we get to share observations and tips on handling these. We are not able to hone the caregiving skills because each of us is trying to reinvent the wheel, and many of the skills required are not obvious.