via.kdvr.com
Boulder girl is first person to receive FDA-approved drug created for one patient
BOULDER, Colo. -- Every day with 9-year-old Mila Makovec is truly a blessing for her family. "We have a small window of time and we’re doing the best that we can to try and find a dose that we feel like halts her disease," her mom, Julia Vitarello, said. Mila was diagnosed 3 years ago at Children’s Hospital Colorado with a rare and fatal neurological disease that affects the nervous system.