MPS awareness day is coming, here is an update to cheer us all up.
Biomarin is full speed ahead with their clinical trial. If you haven't updated your surveys on our patient registries, now is a good time to do so. Help BioMarin help us. https://connect.patientcrossroads.org/?org=ConnectMPS If you haven't registered your MPS, ML or Glycoprotein family members, this would be a great way to celebrate MPS awareness day. Sometimes it's the little things that can make all the difference for our patient community.
Post to Tumblr