A Parent's Perspective ... 1st time to Rare Disease Week in Washington DC
... So you can imagine my terror when Michelle Pierce, one of my best friends and another MLD Mom, sent me an email inviting me to join her on a trip to DC for Rare Disease Week. Buzzwords like: "Legislative Conference" & "Day on the Hill" were making me wish I would have paid more attention in Social Studies class! However, knowing that we would have a blast together as we always do and knowing we could help our MLD Family was an honor I was not going to pass up. ...
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