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@urlesque / urlesque.tumblr.com

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superamit

Many of you have asked, so here’s what’s going on with me.

WHAT HAPPENED BEFORE

  • 8/1979: Born. Grew up in CT, built a killer eraser collection, fell in love with computers.
  • Left college to start a company. Fell hard. Fled to India for 3 months.
  • Started 2nd company. Learned to be an adult. Fell in love with NYC.
  • Moved to SF, discovered burritos & some of my fave people on Earth.
  • 9/2011: Got diagnosed with Leukemia!
  • Cried. Went through 3 cycles of chemo. Hurt. Thought hard about what I want out of life. Grew up a second time.

TODAY

… After over 100 drives organized by friends, family, and strangers, celebrity call-outs, a bazillion reblogs (7000+!), tweets, and Facebook posts, press, fundraising and international drives organized by tireless friends, and a couple painful false starts, I’ve got a 10/10 matched donor!

You all literally helped save my life. (And the lives of many others.)

WHAT HAPPENS NEXT

Tomorrow, I’ll be admitted to Dana Farber in Boston for 4-5 weeks.

First I’ll get a second Hickman line to allow direct access to my heart (for meds and for nutrients if I’m not able to eat). Over the next week, the docs blast my body with a stiff chemo cocktail to try and eradicate all traces of cancer cells. In the process, the immune system I was born with, and my body’s ability to make blood, are destroyed.

Next Friday, I get my donor’s stem cells by IV. I start on immunosuppressants to prevent my body from rejecting them (I’ll be on them for 12-18 months). For these weeks I’ve no immune system, so I’m severely vulnerable to viruses and bacteria. My hospital room and hallway become my world.

Meanwhile, the stem cells make their way to my bone marrow and, with some luck, start producing platelets, red blood cells, and white blood cells. At this point, my blood type changes to the blood type of my donor. And my blood will now have my donor’s DNA, not my own.

This is science fiction stuff. I can hardly believe it’s even possible, and there’s lots of chances for things to go wrong. It’s frightening.

AFTER THE TRANSPLANT

Recovery to a new state of “normal” takes about a year, but there’s a few storm clouds hovering:

  • My immune system is new, like a baby’s. I’m prone to getting sick.
  • Just as with any organ transplant, there’s a chance of rejection. Except in this case, it’s my blood that’s the foreign body, and it touches every organ. They call it graft-vs-host-disease and it can cause health issues and organ complications for the rest of my life.
  • Successful transplant or not, Leukemia can relapse. Stubborn mofo.

Overall, 75% of AML transplant patients survive year one, 50% make it through year five. My odds are a little better since I’m young.

THE GREAT NEWS

I’ve got a long road ahead. But I’ve got a donor & amazing family & friends. A few months ago I didn’t have many options. Today I have a plan.

I am alive. I start tomorrow. Wish me luck!

Thank you.

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urlesque

This is great news.

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kenyatta
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urlesque
A group of hackers plans to launch a separate internet using amateur satellites and $130 ground stations.
What do you do when Hollywood and the government team up to enforce censorship on the internet with the likes of SOPA and Protect-IP? Launch another government-free internet, of course.
During the Chaos Communication Congress in Berlin back in August — an annual hacker conference sponsored by the German Chaos Computer Club — a team of German hackers revealed plans to launch their own communication satellites into space in order to create a separate, “uncensorable” network called the Hackerspace Global Grid (HGG).
“The first goal is an uncensorable Internet in space. Let’s take the Internet out of the control of terrestrial entities,” said activist Nick Farr.
According to the report, the team will start by launching three prototype ground stations in the first half of 2012, and then launch at least one satellite into low orbit to communicate specifically with those stations.
The group stated that the ground stations will cost around $130 USD each to establish, but the satellite itself will require a substantial amount of financial backing, as it will need to hitch a ride with a rocket rather than float up into the cold void via a balloon-based solution. Additional reports claim that the satellite will likely be based on work done to develop low-cost satellites by the Amateur Radio Satellite (AMSAT) association in England and Surrey Satellite Technology Ltd.
Given the new Internet would eventually rely on an array of low orbit amateur satellites, there’s speculation that the overall network stability would be spotty at best, as these satellites typically orbit every ninety minutes. That means there will be times when they won’t be visible to tracking devices.