You know you're a spoonie when...
Taking a shower and not passing out qualifies as a victory. 👍
Guess who's finally back on Tumblr! I apologize for my unexpected disappearance, and I thank you for your patience. Please reblog to spread the news! And expect some new posts from this blog ASAP. ❤💚💜💙💛💗
Correction: you are MORE than good enough. ❤ Just in case no one has told you lately.
You've been beaten up by life a bit, but you're still here. You've come so far, don't give up now! Give life some time to get better.
Apologies for my quietness lately. Here's an update: A couple days ago I was diagnosed with Ehlers Danlos Syndrome Hypermobility Type. EDS is a rare, genetic, connective tissue disorder. The connective tissue in my body (especially in my joints) is faulty and is breaking down. There's no cure nor treatment for EDS, and it is progressive. AND, in recognition of this (to brighten my spirits as much as yours...) I have plans for this page and some care package giveaways :) stay tuned!
Something to tell yourself today.
Follow me on Instagram?
Hey lovelies! I recently joined Instagram, and I'd love to get more connected with fellow spoonies! My Instagram is a little more "personal" than this Tumblr page, by that I mean it'll be a little bit of chronic illness awareness related posts and encouragement, plus things like selfies (obviously) an occasional picture of my cat or pony. Still all positive/upbeat things, like this page attempts to be, just with a more personal touch :) and I'm still learning how to use Instagram, so please be patient with me 💜 If this is something you'd be interested in checking out, feel free to follow me! And I'll follow back! My Instagram name is Fiyera_Rae.
Stop what you're doing and take a couple deep breaths! It doesn't make any illnesses or problems go away, but oxygen is awesome!
I know life is REALLY tough sometimes, and you are so incredibly brave for still being here. I know you must be tired of holding on and tired of fighting, but please keep doing so. You can get through this.
Just some encouragement for today :) tiny octopus and I believe in you!
I know sometimes this is how it feels to be chronically ill and/or disabled, but please understand that you're not stuck in a hole. You're simply traveling along a different path. And there are SO MANY of us that are traveling with you along that path, even if you don't see us. We're here for you. You're not stuck.
Things able bodied people say #6
"The parking isn't great there, but its okay because its within walking distance!" ...um, walking distance for who? Pretty sure you and I have different opinions of what that is! Tell me its three blocks away, or a block and a half, or whatever, just don't tell me its "walking distance" please!
Oh looks its me! Sorry about the hiatus in posts. My health has been lame lately and when I got my new phone a couple weeks ago, I didn't download Tumblr again. Buuuut I'm back! Here's a picture I made today on the Spoonie Living App, a free downloadable app for phones and tablets. It has allllllll kinds of specific chronic illness / disability stickers!
Dear people with chronic illnesses and/or disabilities:
You are not obligated to do everything a healthy person does. "Basic" tasks are harder for you than they are for healthy and able-bodied people. Don't let society (or individual people!) tell you that you've failed or that you're any less of a person because you struggle with tasks. You are not obligated to do everything a healthy person does. And not doing things does NOT mean you're a failure. You DO have many things to offer the world.
Crying does NOT mean you're weak! Crying is a normal part of life. You're strong for still being here, fighting and surviving.