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old man fuguckin

@tofu-pofu

he/him | bi

Dude I wish I were faking my disorders, do you know how annoying it is to live like this? Lmao.

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Someone once told me that I was annoying because I couldn't focus or remember anything and all I could think to say was "at least you can walk away- I live here"

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Sharecropping.

FYI if your employer does this, if they have done it for a long time especially, you and your coworkers could be owed huge amounts of unpaid wages and it would be an easy suit if there is a paper trail like this and your employer is placing strict requirements on your behavior while not at work. Employment lawyers generally work on contingency. Just food for thought.

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I’m tired of advertising. All of it. I don’t want any ads even for things I like. Even if I would 100% buy it. It’s INSANE that we just accept that people can throw a business flier in our face at any time of day in any setting. Aren’t you mad? Don’t you just want to go apeshit?

message to cis allies: buying your trans friend lunch will do much more good for the trans community than debating transphobes who will not change their minds publicaly on social media and making all your trans followers see how much people hate them over and over again

if you base your trans allyship more on fighting with idiots than supporting and loving the trans community you may want to rethink things a little. bc i tend to get sick of when my cis friends want to talk more about how many people hate me than anything else about my transness.

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some ppl with hEDS live almost completely normal lives while others are in power chairs because their vertebrae are slipping out of place. some people with hEDS dont realize until they're older and gone through most of life assuming theyre able-bodied, and others are completely disabled by it, or have life threatening complications because of comorbidities.

i KNOW how frustrating it is that the loud majority of ppl with hEDS make it look like living with a mild cold, but i still need yall to remember that the other group of people also exist.

ive seen a couple different posts circulatating where people are bitching about ppl with hEDS hijacking thier posts to talk about their "mild disability", and while i COMPLETELY AGREE that you should make your own damn post i dont want people seeing that and assuming hEDS = mild joint pain.

for some people thats all it is, but for the rest of us poor fuckers who cant walk, sit up, work, or take care of ourselves because of how severe it is, we see you say that shit, and so does everyone else. you can bitch about the "spoonie community" as much as you want, i dont care. i complain about it too, id just be more careful about mentioning specific disabilities.

people with severe hEDS deserve to be taken seriously, especially because the larger EDS community barely fucking mentions us or just outright pretends we dont exist.

(i say "we", but mine is moderate at the moment. other people my age with hEDS have it so much worse than me. i see you, and i love you guys)

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none of you got what i was saying here. i am talking about letting people with SEVERE hypermobile ehlers danlos syndrome have a voice, stop fucking complaining aboit how you "might need a mobility aid in the future" in the notes, this is not about you!

im talking about the people who cant leave their house without a wheelchair, people who have feeding tubes, ports, people who cant walk, people who have had multiple joint replacements, people who have LIFE THREATENING complications, people who have SEVERE HEDS NOW. not "maybe sometime in the future".

i dont fucking care that you "might have hEDS". i dont care that you "might need a wheelchair", or it "might get worse for you". i dont give a fuck. its that bad for us now. and we deserve to be heard.

THIS IS WHAT IM TALKING ABOUT WHEN I SAY YOURE TALKING OVER US. YOU NEED TO RECOGNIZE THAT NOT EVERY EDS POST IS ABOUT YOU.

there are so many other fucking blogs and posts for you to to bitch on, this is not the fucking one.

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ok but seriously why is “much older internet friend uses you as their personal suicide hotline” such a universal experience for kids on the internet. fyi for any kids/teens following me if an adult tries to make you be their therapist just flat out block them you dont have to explain yourself or try to reason with them and ur not responsible for their mental well-being. just block them

I think it's so funny when someone says "this is probably tmi" bitch, I do not care. You can tell me the most unhinged shit unapologetically. I live for it, let's go.

lost two years of your life cause of covid - then got hit with inflation right after. we're down tremendously

And still gon thrive cus it’s what we do.

brother this ain’t a kumbaya words of affirmation chain. the price of groceries is very real out here