Avatar

Struck Fucture

@struck-fucture

My face is having uncontrollable spasms. Great. It hurts really, really, really bad.

I think part of why I have trouble explaining pain to the doctor is when they ask about the pain scale I always think “Well, if someone threw me down a flight of stairs right now or punched me a few times, it would definitely hurt a lot more” so I end up saying a low number. I was reading an article that said that “10” is the most commonly reported number and that is baffling to me. When I woke up from surgery with an 8" incision in my body and I could hardly even speak, I was in the most horrific pain of my life but I said “6” because I thought “Well, if you hit me in the stomach, it would be worse.”

I searched and searched for the post this graphic was from, and the OP deactivated, but I kept the graphic, because my BFF does the same thing, uses her imagination to come up with the worst pain she can imagine and pegs her “10″ there, and so is like, well, I’m conscious, so this must be a 5, and then the doctors don’t take her seriously. (And she then does things like driving herself to the hospital while in the process of giving birth. Probably should have called an ambulance for that one!)

So I found this and sent it to her. Because this is what they want to know: how badly is this pain affecting you? Not on a scale of “nothing” to “how I’d imagine it’d feel if bears were eating my still-living guts while I was on fire”. 

I hate reposting stuff, but I’ll never find that post again and OP is deactivated, so, here’s a repost. I can delete this later, i just wanted to get it to you and I can’t embed images in a chat or an ask. 

This is possibly why it took several weeks to diagnose my fractured spine.

Pain Scale transcription:

10 - I am in bed and I can’t move due to my pain. I need someone to take me to the emergency room because of my pain.

9 - My pain is all that I can think about. I can barely move or talk because of my pain.

8 - My pain is so severe that it is difficult to think of anything else. Talking and listening are difficult.

7 - I am in pain all the time. It keeps me from doing most activities.

6 - I think about my pain all of the time. I give up many activities because of my pain.

5 - I think about my pain most of the time. I cannot do some of the activities I need to do each day because of the pain.

4 - I am constantly aware of my pain but can continue most activities.

3 - My pain bothers me but I can ignore it most of the time.

2 - I have a low level of pain. I am aware of my pain only when I pay attention to it.

1 - My pain is hardly noticeable.

0 - I have no pain.

It’s also really important to get this kind of scale to people who have chronic pain, because chronic pain drastically lowers your perception of how “bad” any kind of pain actually is, and yet something like this pain scale is extremely user friendly. 

For example, if someone asked me how much pain I’m in at any given time, I’d say hardly any, and yet I’m apparently at a chronic 2.5, and it only goes up from there depending on the day. 

There’s also a similarly useful “Fatigue Scale”

I haven’t been below a 5 on this scale for 4 years 

Here’s the fatigue scale

Fatigue scale image desc:

10: can barely move; can’t talk

9: can barely move; can talk

8: can move, but can’t do much more than watch TV

7: can watch TV and play a game on my phone simultaneously

6: can do work on my computer lying in bed

5: can get around the house, but definitely couldn’t go out

4: can run a light errand

3: can get in my 10,000 steps, making my fitbit happy

2: can do three or more activities in a single day

1: going clubbing!

See also the Mental Health Pain Scale by Graceful Patient:

Mental Health Pain Scale transcription:

MILD

1 - Everything is a-okay! There is absolutely nothing wrong. You’re probably cuddling a fluffy kitten right now. Enjoy!

2 - You’re a bit frustrated or disappointed, but you’re easily distracted and cheered up with a little effort.

3 - Things are bothering you, but you’re coping. You might be overtired or hungry. The emotional equivalent of a headache.

MODERATE

4 - Today is a bad day (or a few bad days). You still have the skills to get through it, but be gentle with yourself. Use self-care strategies.

5 - Your mental health is starting to impact on your everyday life. Easy things are becoming difficult. You should talk to your doctor.

6 - You can’t do things the way you usually do them due to your mental health. Impulsive and compulsive thoughts may be hard to cope with.

SEVERE

7 - You’re avoiding things that make you more distressed, but that will make it worse. You should definitely seek help. This is serious.

8 - You can’t hide your struggles any more. You may have issues sleeping, eating, having fun, socialising, and work/study. Your mental health is affecting almost all parts of your life.

9 - You’re at a critical point. You aren’t functioning any more. You need urgent help. You may be a risk to yourself or others if left untreated.

10 - The worst mental and emotional distress possible. You can no longer care for yourself. You can’t imagine things getting any worse. Contact a crisis line immediately.

These are so important! SO SO IMPORTANT SHARE THIS AND SAVE IT TO SHOW YOUR DOCTORS!

This is the first time I’ve seen the fatigue scale, and HOLY MOLY that’s a revelation!!! These should be on all hospital and doctor office walls.

I’ve never seen the mental health one! or the fatigue one! I printed out the pain one and gave it to my GP. 

whenever i'm trying to talk myself out of buying something i don't need i always hear my old russian professor's voice echoing in my head: "WHAT??? WILL YOU DIE THE RICHEST MAN IN THE GRAVEYARD?" and then i make an unwise financial decision

“Nobody’s going to want to sit on high-speed rail for fifteen hours to get from New York City to LA.”

Me. I will sit on high-speed rail for fifteen hours. I’ll sit on it for days. I’ll write and read and nap and eat and then do it all over again. I’ll stare out the windows and see America from ground level and not have to drive. I’ll see the Rockies and the deserts and cornfields and the Mississippi River and your house and yours and yours too. I’ll make up stories in my head about the small towns I see as we go along. I’ll see the states I’ve yet to see because driving or flying there is a fucking slog and expensive to boot. I’ll enjoy the ride as much as the destination. And then I’ll do it all over again to come the fuck home.

Avatar
candy-pockets-ahhhh-deactivated

REPOST THIS SILLY LITTLE TURT IF YOU AGREE WITH HIM IN SUPPORTING PALESTINE 🍉🍉

a lot of fantasy universes like to paint dwarves as being the most alcohol tolerant, but i feel like if any fantasy race would be the best at a drinking contest it'd be a centaur.

horses have a specific protein called liver alcohol dehydrogenase, which allows them to convert alcohol into simple sugars easier than humans. additionally, centaurs have the bonus human liver in them and the advantage of being as big as most of a horse and most of a human.

instead of dwarven ale you have to get ready for that centaur IPA. it'll maybe kill you.

wedding aitas be like 'i went to this wedding and the bride actually tried to murder me and was chasing me with an axe because i had a white blouse on. she said i disrespected her by wearing white on her wedding day and shes actually allowed to murder me for it. aita if i thought it was a little extreme and didnt want to get killed?'

and the comments are like 'YTA, its her wedding day, her special day, shes allowed to do whatever she wants. and you DID disrespect her by wearing white to a wedding. major asshole move'

In case you lost it - a link to the eSIM donation guide. Even if you feel sick and powerless, you can at least do this. And even if you really, really can't donate, you can always at least share this and remind others.

the lowest tier, which costs 9 dollars, offers a week of connection while the very next, 16 dollars, will provide a full month of contact with the world to someone who desperately needs it. this is not some idle step. an entire month is a huge length of time for people who are displaced, terrified, and isolated.

The adhd urge to use parenthesis in every sentence (because every thought comes with additional bonus content)

I know the US government acts like a corporation but it’s not.

Not voting isn’t the same as a boycott. Because you can’t bankrupt a government by not voting. All you get by not voting is less control over what the money is doing.

The money comes from taxes, not voting. Abstaining from voting does nothing to reduce the governments ability to get money and spend it on shit.

So yes, sometimes you vote to reduce harm because not voting WILL NOT REDUCE HARM.

It’s not a boycot. Abstaining doesn’t take power from the government. It just reduces the number of people they feel answerable to.

Every time i purchase a moderately expensive item the Karl Marx on my shoulder is like "For shame... you purchase yet another pair of jeans when you have 5 already at home, you despicable commodity fetishist? In my time, a man with five outfits would consider himself blessed beyond measure, and yet you want for more, while there are children starving in the world??" to which the second Karl Marx on my other shoulder says "Objection! Those 5 pairs of jeans all wildly uncomfortable or have holes in the ass, due to the decline of clothing quality driven by the fast fashion industry, unfortunately making this purchase a necessity... Plus, by purchasing a slightly more expensive pair of jeans from an independent brand, seeking quality over 'brand recognition', they are deliberately trying to avoid engaging in conspicuous consumption!" to which the third Karl Marx clinging to my back like that beetle from Doctor Who says "Remember, my friend; the less you eat, drink, buy books, go to the theatre or to balls, or to the pub, and the less you think, love, theorize, sing, paint, fence, etc., the more you will be able to save and the greater will become your treasure which neither moth nor rust will corrupt — your capital. Buy the jeans," to which I say "I don't know if any of you have actually read Karl Marx"

coffee shop by my house hired a new barista who is extraordinarily hot and flirts with me incessantly but she also makes the worst - and i truly mean the worst - coffee i’ve ever paid for. atrociously bad. just another of god’s little jokes

just remembered the barista who worked there last year and treated me with an attitude generally reserved for children and the incompetent to the point where she would frequently adjust my drink order in front of me and every single time it was BANGIN’

I love this so so much