Hi, friends! I have some happy news to share. Today, I had an appointment with my neurologist to find out more about the new treatment for my disease.
Not only is she 100% on board with me taking it, but she’s confident it will stop the progression of my disease. She told me that her site to administer the drug will be ready in 4-6 weeks, and that we’d get me in immediately.
There are still many details to be ironed out—namely, whether or not my insurance is going to cover the ludicrously priced drug, but for tonight, I’m basking in the euphoria. Stopping the progression of my disease changes my life in ways I can’t even fathom.
I love you all, and I’m excited to keep you updated on all the juicy details in the weeks to come.