video-disease

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Why You Are Still Alive - The Immune System Explained by Kurzgesagt.

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Ebola Explained by Kurzgesagt.

WHAT NARCOLEPSY REALLY LOOKS LIKE. SPOILER ALERT- IT SUCKS

YouTube caption: I have narcolepsy with cataplexy, and it can be very frustrating to try to explain what it’s like to people who have never seen narcolepsy in real life, and how much of a struggle it can be. Most people think that it’s funny until they see what actually happens, or they are completely unprepared and get really scared and panic.I filmed this by accident, and it was really weird to go back and watch later from an outside perspective. I am posting this video as a way to help educate people, so please no trolling. Just like people with epilepsy, I can’t control having a sleep attack or cataplexy any more than they can control having a seizure. Thank you for your understanding.

And in case you were wondering what I kept looking at, I had the choreography written out next to the camera so that I wouldn’t lose my place in the dance.

youtube

My friend Carly talks about living with Cystic Fibrosis (CF)…please spread the word and knowledge of what CF is to make the possibility of a cure being discovered a greater possibility. 

Cystic fibrosis is a disease passed down through families that causes thick, sticky mucus to build up in the lungs, digestive tract, and other areas of the body. It is one of the most common chronic lung diseases in children and young adults. It is a life-threatening disorder with an average life expectancy of 37 years.

For those of you that don’t know I have CF too…so it’d mean a lot to me if you take the time to watch this and educate yourselves on what I and many others live with everyday.

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OneRepublic - I Lived

This music video follows a kid with Cystic FIbrosis (CF), a genetic and chronic life threatening lung disease that also affects the digestive system. It is a fairly rare disease with a low life expectancy but as someone with CF I can attest to the fact that we appreciate life and all its beauty everyday and have a unique perspective on the world. This music video strikes a perfect balance between showing the public what CF really is and how it affects a person while also showing just what that person is capable of in spite of CF.

I am currently training to run the New York City marathon with the Boomer Esiason Foundation to raise money for Cystic Fibrosis and prove that you can do whatever you put your mind to, no matter your situation. So if you would like you can donate to my fundraising page here:

 http://www.firstgiving.com/fundraiser/mark-gallo-1/2014-TCSNYCMarathon?mid=aq42AA2&utm_campaign=website&utm_source=email&utm_term=email&utm_medium=email

or do some more research and/or donate at the Cystic Fibrosis Foundation website: 

http://www.cff.org/

I, and the rest of the CF community, would appreciate it if this video gets popular because the disease needs all the awareness and support it can get!

much love and good vibes to everyone! :)

~ David 

Why you shouldn't be posting ASL song covers as an ASL student

This is something that has been popping up more and more lately, and I really feel like I should address it on this page.

You may be wondering who I am to say these things. Well, I grew up hearing you’re right. I started learning ASL in 2010, and I have made many mistakes in the community. I was diagnosed with Meniere’s in 2013 and have progressive sensorineural hearing loss. I wear hearing aids every day, except when around those who can sign. I am highly involved in the community. I am an interpreting and Deaf studies major.  So, I feel like I can offer some insight on this.

I have recently been sent “ASL” covers by many people. These covers are not being done by Deaf/Deaf Teachers/ Certified Interpreters/ CODA/ people with any ASL fluency….they’re being done by lower level ASL students and not as practice/homework. (because uploading a cover with the label homework/practice is different as well)

I want to clarify. I am not against people learning ASL. I am 100% for the spread ASL and the growing of our community. I know you’re excited about what you’re learning. You may have fallen in love with ASL and Deaf culture. You may want to share that passion with others, and that is great! I am so happy that you’re in this community!

But please understand, making “ASL” covers, ASL tutorials, etc; is not something you should be doing. You’re not a certified teacher/interpreter, you’re not fluent, and you’re simply not ready. What you’re doing is spreading a false idea of what ASL is. You’re teaching others how to sign incorrectly. You’re not interpreting, you’re reciting word for word…and you may be profiting off of it. Is that fair to the Deaf community? For you to not only be making money of an incorrect representation of their language, but perpetuating falsehoods about what that language is, what interpreting is, and what ASL looks like?

Another thing I see is ASL/PSE/SEE…. These are three seperate languages. SEE is a visual representation of English. It follows English grammar, uses initialized signs, is highly represented on the mouth. PSE is Pidgeon Sign, or ASL signs in English word order. ASL IS ITS OWN LANGUAGE. It has its own signs, rules, grammar, facial expressions, use of space, etc; These are not the same.


I understand that everyone has a right to post whatever they want, and I am not trying to offend anyone. I am just trying to get people to understand what is happening when they post these videos. I, myself, am not a fluent signer. I am an intermediate signer, but I am not fluent. That is after 5 years of study, immersion, everyday use, and the loss of my hearing. One semester is not enough. If you have questions, please don’t be afraid to ask! I am here to help educate and be your friend. I am not trying to be a jerk.


lml/

Carli

Nebraska Ebola Method for Clinicians online course now available from The University of Nebraska Medical Center and Nebraska Medicine at https://www.unmc.edu/cce/neb_ebola.htm.

The purpose of this activity is to enable the learner to better understand the pathogenesis and epidemiology of Ebola, safe treatment practices, public health management, and subsequent systems change that result from an Ebola outbreak.  This dynamic and evolving course will provide videos, media, and guidelines as used in Nebraska to care for Ebola patients.  The course will be updated frequently to reflect the most current practice processes and disseminate lessons learned.

vimeo

PLEASE CAN EVERYONE WATCH THIS TRAILER

my mother is suffering with this and she has no support, no help, nothing. and there are plenty of other people dealing with the same situation. thyroid disease leaves more than 59 MILLION PEOPLE sick and suffering because they don’t have the support they should have. doctors don’t listen to them, they just tell them they’re fine because their “levels are in normal range”. when really there’s a lot more to it than just their levels being in what is known as the normal range.

PLEASE PLEASE PLEASE WATCH IT AND SHARE IT BECAUSE IT IS REALLY IMPORTANT TO ME, TO MY MOTHER, AND TO THE 59 MILLION PEOPLE THAT ARE SUFFERING AS WELL.

thank you!

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How much proof do we need about the harmfulness of something before we act?

At a recent public lecture at the University of Pennsylvania, Malcolm Gladwell discussed the strange history of how long it took for society to grasp the seriousness of black-lung disease, and looked at the black-lung diseases of today. Watch the video, and click-through for more: http://nyr.kr/15vcIcN