unfortunate brain news

A Girl Has No Name (for the Annoying Thing That Is Currently Plaguing Her)

Topline questions first, story later:
Who do you recommend for allergy testing?
Which home test kit or testing services do you recommend?
How do you get cooties off of your clothes and out of the air?
Why does my immune system blow?

A lot of people ask me how my brain is doing. Mostly good? I’ve been able to manage most of the little annoying things that keep me from normal human life. I still enjoy cosplaying as one of them normal people with no neurological or immune issues! Funfortunately, this is an update of what happens when things go wrong.

We’ve been looking to move out of our condo into a bigger space for a few months now. We found an adorable house in East Atlanta that was so much more awesome than anything we thought we could find. I felt a little sick during my initial visit to the house but thought maybe it was a residual sinus infection. NBD.

We went over our comfortable budget to try and get the house. We wrote a letter with our offer explaining how much we loved it and what it meant to us. We were able to go under contract and shared our excitement with family and friends. On Friday, we had our inspection—a tricky step for us since an inspection in April made us realize we didn’t want to go through with a previous house in East Lake we’d courted. As soon as I entered the adorably perfect East Atlanta house, I felt sick. I felt WORSE than I did last time I went in the house. I headed upstairs to join our inspector who hadn’t really found anything too off about the place. That’s when the back of my throat burned, the side of my neck throbbed, the right side of my face palsied, and my f&$@ing aphasia came back. I did what I sometimes do during aphasia fits–I pointed to my mouth to let Chris know I couldn’t talk so he could explain to our inspector what was going on. I burst into tears. Embarrassment and frustration took over. I tried sitting in different rooms of the house to see if I felt better. No dice. I had to say goodbye to OurFavoriteHouseOftheCentury. I had to leave.

I’ve cried my eyes out over losing the house to my pissy immune system.

Speaking of my pissy immune system, the reason I’m so strict about what I eat these days is so I don’t get aphasia fits or “robot talk.” I’ve deduced that it’s part of an immune reaction: different foods cause different issues, like migraines, grandpa brain, tummy troubles, hormonal house parties, weirdo neck throbs, stiff joints, puffy fingers, and the worst…robot talk. My really cute food sensitivity list has been a pain in the ass but has really helped with all of these…and now my environment is joining in on the fun?!? No no it’s ok I love being an anomaly.

Back to the house…as a last ditch effort, we brought our giant air purifier over to see if it would help. No dice x 2. When we retrieved it and ran it back at the condo, it barfed up whatever made me sick at the potential new house.

Now my bedroom makes me sick. Some of my clothes and stuff that was in the bedroom and closet makes me sick.  I don’t want to set everything on fire just yet soooo:

Who do you recommend for allergy testing?
Which home test kit or testing services do you recommend?
How do you get cooties off of your clothes and out of the air?
Why does my immune system blow? 

I often wonder if my time in the hospital or on anti-seizures or under anesthesia made some of this worse. 

As far as direct brain issue updates, I recently pieced together that the tumor/scar tissue damage near my hypothalamus has affected my heat tolerance and need for water. I plan on getting these hormones tested soon since that’s my cool hobby like wakeboarding or whatever. I still have muscle damage from my craniotomy that makes my jaw tight. I still can’t get hit in the head without feeling off for a week. On the plus side, head massages feel amazing.

Thankfully I’m traveling this week, but if you live in Kirkwood/Candler/Edgewood I may need to crash soon.

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UNFORTUNATE BRAIN NEWS! #024 “2014 in review”

I made a video for you! Happy New Year!