tw disease

OK BUT THIS IS ACTUALLY SO COOL. AND NOT EVEN FOR AESTHETIC REASONS. 

YOU HAVE TRICHOTILLOMANIA? BOOm.

YOU LOST YOUR EYEBROWS DUE TO CHEMOTHERAPY? BOOM.

YOU GOT SUPERCILIARY MADAROSIS (eyebrow loss)? BOOM.

YOUR THYROID GLANDS ARE A BIT MESSED UP AND YOU LOST YOUR HAIR? BOOM.  

DERMATITIS? ALOPECIA? HANSEN’S DISEASE? GROWTHS ON YOUR EYEBROWS?

BOOM, BOOM, BOOM AND BOOM.

HERE and HERE are where you can read more about it and find out some more info.

Unfortunately, the extensions only last for about two to three weeks. But, for people with Trich, if they are able to refrain from plucking, your natural hair should grow back in. And then you wouldn’t have to worry about the three week long period. (If you ever need any tips for picking around the eyes and eyebrows, don’t hesitate to pm me.)

I DON’T KNOW ABOUT YOU GUYS BUT THIS IS ACTUALLY SUPER COOL. EVEN IF YOU WERE TO ONLY USE THIS FOR AESTHETIC OR BEAUTY REASONS, THIS IS FREAKING COOL. 

This woman is pictured holding her own heart after successful transplant. 

Worldwide, about 3,500 heart transplants were performed annually, but about 800,000 people have a Class IV heart defect indicating a new organ. These numbers show the lack of donors impressively.

The most common procedure is to take a working heart from a recently deceased organ donor (cadaveric allograft) and implant it into the patient. The patient’s own heart is either removed (orthotopic procedure) or, less commonly, left in place to support the donor heart (heterotopic procedure).

Post-operation survival periods averaged 15 years. Heart transplantation is not considered to be a cure for heart disease, but a life-saving treatment intended to improve the quality of life for recipients.

text and photo source 

New study reveals main culprit for Alzheimer’s disease
Now let’s beat this disease.

BEC CREW


A new analysis in more than 3,600 donated brains in the US has singled out malfunctioning tau proteins as the main driver for the cognitive decline and memory loss associated with Alzheimer’s disease, offering a new focus for future Alzheimer’s treatment and research.

While it’s widely recognised that Alzheimer’s develops as a result of two malfunctioning proteins, amyloid and tau, just how big a role each of these factors play has been long-debated. Recently, a large portion of research into Alzheimer’s has been focussing on amyloid, such as this recent experiment that cleared amyloid build-up from mouse brains and gave them their memory function back.

But researchers at the Mayo Clinic think we’ve been focussing on the wrong target, because their study suggests that while amyloid proteins do indeed build up as the disease progresses, their presence isn’t what’s driving it.

“The majority of the Alzheimer’s research field has really focused on amyloid over the last 25 years,” lead researcher and neuroscientist, Melissa Murray, said in a press release. “Initially, patients who were discovered to have mutations or changes in the amyloid gene were found to have severe Alzheimer’s pathology - particularly in increased levels of amyloid. Brain scans performed over the last decade revealed that amyloid accumulated as people progressed, so most Alzheimer’s models were based on amyloid toxicity. In this way, the Alzheimer’s field became myopic.”

Murray’s team examined 3,618 post-mortem brains from the Mayo Clinic’s brain bank, and found that 1,375 of their owners had died with varying stages of dementia. They created a timeline for the disease’s progression using these brains, and came up with a way to quantify the progression of defective amyloid and tau build-up along the way.

Next, they analysed brain scans taken of amyloid protein clusters in patients prior to death and compared these to the measures they took from the post-mortem brain examinations. Together, these analyses revealed that the severity of tau - not amyloid - malfunction predicted age-related onset of cognitive decline, mental deterioration, and Alzheimer’s duration.

Reporting in the journal Brain, the researchers say they found a strong link between the build-up of amyloid and a decline in cognition, but as soon as they took the severity of the tau malfunction into account, this link disappeared. And some of the brains were found to have amyloid build-up without showing signs of cognitive decline.

Murray discusses the results:

“Tau can be compared to railroad ties that stabilise a train track that brain cells use to transport food, messages and other vital cargo throughout neurons. In Alzheimer’s, changes in the tau protein cause the tracks to become unstable in neurons of the hippocampus, the centre of memory. The abnormal tau builds up in neurons, which eventually leads to the death of these neurons.

Evidence suggests that abnormal tau then spreads from cell to cell, disseminating pathological tau in the brain’s cortex. The cortex is the outer part of the brain that is involved in higher levels of thinking, planning, behaviour and attention - mirroring later behavioural changes in Alzheimer’s patients. Amyloid, on the other hand, starts accumulating in the outer parts of the cortex and then spreads down to the hippocampus and eventually to other areas.”

While the team certainly doesn’t recommend ignoring amyloid clusters as key indicators of Alzheimer’s progression, they urge future research to focus on what’s going on with the tau proteins, in hopes that we can figure out how to detect and halt the progression of the disease.

see the video from Science Alert 

               WARNING, WARNING, THIS AREA HAS BEEN                                                             QUARANTINED


DATE: March 26th, 2016; 5:23pm

“—Krrrssshhhttzz.”
    “…. ….  …. … krrshhtzz”
        “This.. …. .. this.. this just…krrsshhttz”

“This just in, reporting to you live CJAD 800. According to our local forensic scientists down at the Mont Royal police department, we regret to inform you that there has has been an outbreak of the Lyssaviruses. For those of you who do not know, the Lyssavirus is a genus of RNA viruses in the order Mononegavirales, in the family Rhabdoviridae, otherwise known as rabies. Though many of you have already noticed, the citizens of Montreal have been greatly affected by this outbreak, causing fevers, trouble swallowing, agitation, excess salivation, hallicuations and in rare cases, extreme outbursts. Due to this, many of you have been sectioned off into safe facilities, the most common one being the hospital. All locations have been QUARANTINED. If you are hearing this, we ask that you remain indoors. All businesses, schools and organizations are closed for the time being, placing Montreal on a city wide lockdown. We have police patrolling the streets in hazard suits to make sure there is no one left on the streets. 

Causes of this occurrence has been determined by bacteria that has made itself into the water. Scientists have discovered that the source has come from the saliva of a pack of foxes that were injected with Lyssavirus. The animals have been contained and are being treated to the best of their ability. However, we ask that you steer clear of any water source that comes directly from the city of Montreal’s water supply. Any water that comes from Public Works, Sherbrooke water tower or Westminster Water Supply has been affected and must not be consumed. If you have consumed the water we ask that you see a medical expert as soon as possible. 

Keep in mind that rabies a fatal virus. If you are experiencing any abnormal symptoms you must be treated. However, due to the power outage in Mont Royal and Saint Laurent, we are aware it is incredibly difficult to find help. We will be contacting others through radio, and the use of cellphones. Thus, please contain any battery you have left. This is a city wide emergency report. Everyone is required to stay in doors, and stay cautious. Medical experts, police officers and firefighters are doing their upmost best to contain this virus. But for the time being we ask that everyone stay safe, stay alert and stay grounded. 

Tune in to CJAD 800 for any further reports.”

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if you were directed here from my old flier or deleted housing post or fundraiser youre still sort of in the right place. the flier basically still applies. i just have had to lower my standards since making it because things have gotten tons worse. short version is that my gf and i are stuck in san diego for now and also dont have money for rent anymore. longish version is under the cut or at my new fundraiser/housing post nowhere or the facebook one here . (i changed the fundraiser from helping me pay for surgery to focus on surviving short-term.)

i am a 23 y/o intersex mixed race lesbian with Crohns disease, Ehlers Danlos syndrome, and late-stage chronic Lyme disease, who is autistic & was a dependent adult on my abusive family until they recently disowned me… want to keep this short so that more people won’t scroll past a wall of text, so the rest is under the cut, but again, the full info is on my updated post

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the doctor says I have unusually advanced/large lesions for a woman as young as I am

this isn’t even supposed to be a concern until you’re in your 40’s

your body tends to clear polyps on it’s own but the doctor says my body will not be able to get rid of them

and I mean yeah I’m glad they caught it before it progressed to the cancer stage but the surgery will make it difficult for me to have children??

I am scared
I am sad

With all of this talk about Ebola going around i would like to let you all know that hypochondria /panic disorder are very serious issues that somehow seem to be overlooked by “anxiety/depression” (very loose and basic terms that people have been throwing around a lot very disrespectfully recently which is why it is in quotes) or whatever and can cause very painful bouts of anxiety/despair for a lot of people including myself and i understand how much it sucks so i want you all to know to be cautious of what you post/try and stay educated/ do whatever to help someone from having a sleepless night of worry, panic and tears 

Confession #1,849

I’m so sick of hearing “you don’t know what tired is until you have children.” I have an autoimmune disease and multiple chronic illnesses and I work 40+ hours a week. And I know damn well what it’s like to be tired. Further, one of the reasons I don’t want children is because I don’t want to pass along these illnesses. Parents, I’ve got tons of respect for you — but you do not have a monopoly on being tired.

everydayfeminism.com
When Healthy Isn't an Option: How I Learned to Love My Chronically Ill Body
How often do you come across the idea that being “thin and healthy” is part of loving your body? Realizing that being healthy isn’t always an option can change everything.

Three years ago, I was diagnosed with mitochondrial disease, a rare genetic disorder that impacts energy production in every cell of the body (except red blood cells). Simply put, my body struggles to produce enough energy to meet its needs, and the impact of these energy shortages can be felt in every system of my body.

There is no treatment for mitochondrial disease. All that we can do is treat the symptoms and wait for science to catch up.

Like many people with a chronic disease, my path to diagnosis was downright ugly. Although my symptoms began in childhood, I wasn’t diagnosed until I was in my early thirties. By the time I finally received my diagnosis, I had pretty much written off modern medicine entirely.

Their misdiagnoses nearly killed me, I gained massive amounts of weight from the very high-dose steroids they put me on to treat a disease I didn’t even have, and I was sick and tired of dealing with doctors who fell back on stress or depression when they ran out of other ideas.

[…]

If health is measured by weight loss, then I am healthier. But the thought of calling a few lost pounds “healthy” is ridiculous to me. Sure, I wanted to be thin. I wanted defined muscles and glowing skin and a fucking pony, too. But my real goal was to heal my body and to stop being sick.

And I didn’t achieve that goal. In fact, I’m in worse health now than I was when I began. It turns out that my DNA doesn’t care what I eat, and that my disease will continue to progress regardless of what I do. I guess that’s why they call it an untreatable progressive disease.

Despite what I’ve been force-fed by society, losing weight didn’t make me healthy. Not every disease can be cured – not every disease even has a treatment.

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the kids +  this improbable duo I’m weak for + Doctor dreamboat Stone + lowkey hardenshipping for your gay soul

((more here and here))

Aaand explanation of the kids under the cut

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anonymous asked:

How about Dutchie were Crutchie gets sick/davey gets hella worried it's the polio coming back. Idk. Just something with sick Crutchie

“Hey Dave.” Said Crutchie, once inside the apartment. “Bleached sugar was too much so I got that brown kind, hope that’ll work.”


“It’ll do, do you need help with the bags?”


Crutchie peeked around the wall separating the front hall/kitchen from the bedroom/living room.


“If you think there’s more than one bag here you should check the financial section.”

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NEW YEAR'S DAY IS A JEWISH FAST DAY

Asarah b'Tevet, 10 Tevet, is a Jewish fast day from sunrise to nightfall (not from sunset to sunset). You can find out the exact times of sunrise and nightfall for your location here. This year, 2015, it falls on 1 January, New Year’s Day.

It is a minor fast day. If you are in pain or feel weak, eat on it. If you are ill, consult your local Orthodox rabbi. If you aren’t fasting but still want to observe, avoid sweets & delicacies and stick to stuff necessary for nourishment (i.e., nothing that’s eaten just for the taste, like ice cream or something)

It commemorates the beginning of the siege to Jerusalem that would eventually destroy it, and has also been chosen as a general day of kaddish for Shoah victims and other people who died on unknown dates.

The level of…idk misinformation/changing stories surrounding my uterine lesions is fucking terrifying? Some doctors are like “this is a huge deal” and some doctors are like “no biggie!" 

who do I listen to?

and I was told that I had to decide between getting the procedure and not getting the procedure

if I get the procedure, it might turn out that I didn’t have to get it or I might have a relapse and need to get it again thus increasing the chances of not having kids further

if I don’t get the procedure and just keep an eye on things I might clear it or I might get fucking cancer

and I have to be the one to choose what happens

I don’t feel qualified  
I don’t know what’s going on

Wow so its December 1st already which is basically the start of christmas! but it is also the start of Crohn’s disease and Colitis awareness week!

As some of you may know I was diagnosed with Crohn’s disease 2 years ago and I have a decent amount of followers on this blog so why not get the word out here? I know Crohn’s and Colitis aren’t quite as severe and life threatening as many other diseases out there but I think they are important to be aware of since the diseases themselves tend not to be talked about due to the graphic nature of the symptoms. However even if you don’t have Crohn’s or Colitis, someone you know might have it and I guarantee they will appreciate your knowledge and support :)

Here are some websites that you can check out!

What are Crohn’s and colitis? 

more general info

some of the tests we have to go through

know someone with Crohn’s/Colitis?

Donate to the Crohn’s and Colitis foundation of America!

and if you have any questions don’t be afraid to ask me!