stroke recovery

anonymous asked:

Since the beginning of S6, I have researched PTSD, recovery from stroke ("My Beautiful Broken Brain" Docu that RF watched), and all the physical complications that result from having a stroke. It seemed that one could recover from everything, given the right therapy and commitment. I read and listened to a few TV critics who said Q just had to die because of all his problems and never being able to return to his old self. Did AFG believe this too? How sad is that! Q had many contributions left!!

It’s unforgivable, honestly. For them to go on and on, ad nauseum, about this story they were so excited to tell about PTSD, about the cost of war, about a broken soldier… for it to end this way, it’s not just sad. It is unconscionably cruel.

He could have gotten better. But that’s not, as we keep having to remind ourselves, the story they wanted to tell.

Which is all the more fucked up when you consider the story they did tell.

podstye  asked:

*strokes face*

Random | @podstye
Always Accepting My Children

           Cersei had been lulled to sleep by the mechanic whirring of beep after beep. Hour after hour of sitting, waiting, until there was nothing but the quiet breathing as chin lay propped against closed knuckles. She hadn’t been here since Joffrey was hooked into these, wires,  and numbers. Living until the machines confirmed in a long whir that her eldest was no more.

           Only now she was here for Podrick, Tommen lay his his head at her lap and Myrcella curled up inside of a carry over mattress.  All asleep, all resting in the confines of his room.

           Until she felt a brush of her hair; she shifts lifting her head from where the touch had roused her. Sensing that someone was gesturing to wake her. A sharp inhale taken as a blink is slow to show a rise a consciousness. She sits up sharply; slowly when she remembers her youngest, as a panic flares up inside of her. A fear she knew when Joffrey died pulls at her nerves before a realization dawns on her; nothing was wrong.

        “Podrick?” She turns and meets his eyes, another slow, blink before she realized.

         He was awake.

obsessedwithmakebelieve replied to your post “Hey Maggie! Just wanted to check in with you! How are you and the…”

Wow I’m terrible… I forgot reply! >.< I hope your son and mom make speedy recoveries! Strokes are hard to deal with :/ Is your mom getting physical therapy? And house hunting sounds exciting! Any hits yet? I’m okay haha- just a college student working her way through finals; I’ll be better in a couple of weeks lol!

Thanks!  My son’s pretty good.  Have to keep him quiet and less active for another week, and he’s seven, so that’s kind of a pain, but he’s doing well.  My mom’s memory is pretty poor, and her emotions are all over the place.  Apparently depression is very common after a stroke, so that’s been rough.  She starts OT next week and has an MRI coming up, so hopefully we’ll know more then.  The neurologist seemed fairly confident she’ll make a pretty good recovery, but it’s been a major upset.

No houses yet!  Hopefully soon.  I’m crazy anxious about it :-).  We have to be out of our house next week, so it’d be nice to have something lined up.  Until then, my brother has kindly allowed us to stay with him, but it’s still going to be a logistical pain in my butt!

Good luck with finals!  I really hope they go well.

Life Reminders, via Nursing

1. Patience; An understanding of the perspective of others, the fears they may be experiencing, a removal of being “task oriented” and finding value in listening with patience, to what the patient really needs.

2. Perspective; A realization of priorities - where today’s trials will eventually be ok, and an awareness that in some instances, there are situations that might be incomparable to the difficulties others may be experiencing, learning to triage what’s important, and perhaps what will resolve with time and patience - and a little resilience.

3. Resilience; People, or situations, will challenge you, attempt to bring you down, but there’s a turning point where perseverance and resilience prevails.

4. Empathy; The quiet moments shared with patients, and coworkers that aren’t learned in Nursing School - they stick with you, sometimes haunting you at night, and equally reminding you of the foundations of nursing.

5. Humility; The ownership of errors, the discovery that mistakes do not define you, and the hope of learning from them.

6. Compassion; The ability to care for others, regardless of their walk on life.

7. Forgiveness: Witnessing patients on the brink of death, grieving loved ones who would give anything for the opportunity of one last moment, or a chance to take back a trivial argument.

8. Respect; Honoring fellow colleagues, and honoring the value of their unique roles, despite what others may judge or perceive.

9. Beauty; The simplicities in life. The joys a patient experiences - birth of a child, regaining strength after a stroke, a miraculous recovery after a trauma, remission of a lifelong battle of cancer, discharge home after months of intensive care - or the dignity of dying.

10. Blessings; The small, but powerful opportunity to make a difference in just one person’s day. The blessing and privilege of being a nurse.

That last headcanon was inspiring so I wrote you a fic

Matt Murdock had a list that he kept in his head. It occurred to him that there wasn’t much that could truly scare him anymore, and when something did scare him…well, he made a mental note of it and tucked it away. He liked to be aware of these things. It helped keep him grounded, somehow. It reminded him of what was important.

The day Foggy collapsed in court  was damn near the top of that list.

Matt couldn’t help but blame himself just a little bit when it happened. He felt the fever on Foggy’s skin that morning (even thought it was a low-grade). He noticed when Foggy hadn’t touched his breakfast at all, or even his coffee. Matt tried to convince him to take the day off because he hadn’t been feeling well all week and would resting be such a bad idea?

 Foggy insisted that he would be fine. He was just a little under the weather, that was all, and kicking some corporate ass in the courtroom was just the pick-me-up that he needed.

 Foggy had the floor. Matt heard the slight hitch in his partner’s breathing in the middle of his opening statement, and had to force himself to stay sitting until Foggy was on the ground (can’t act suspicious can’t clue anyone in oh God Foggy please be okay), and surged toward him. People were already dialing 911. Dropping to his knees beside Foggy’s head, he was greeted by the sound of harsh, heavy breathing.

“Foggy. Stay with me, okay? That’s all you have to do, just stay with me.”

A siren wailed nearby.

It was his appendix, of all things. Foggy had been in immense danger since the day Matt put on the mask, and he’d almost been taken away by a stupid, inflamed organ that was roughly the size of his index finger. Life was funny like that.

Matt contemplated this as he sat by Foggy’s in recovery, stroking his boyfriend’s hair away from his face. Karen had fallen asleep in the chair on the other side of the room about an hour ago. Matt focused on the sound of oxygen flowing through the thin plastic tubes of Foggy’s nasal cannula. A friendly nurse assured him that supplemental oxygen was a standard post-op procedure, nothing to be worried about, the operation had gone as smoothly as possible under the circumstances of a ruptured appendix, Foggy would be fine (albeit sore) and was actually quite lucky.

Matt held on to her words as though they were a lifeline, replaying them in his head over and over again. It was the little things.

He didn’t realize that he’d zoned out until mumbling from right next to him snapped him out of it.

“You’re an angel, right? Or something like that. Does this mean I’m dead?”

Matt smiled. “What brought you to that conclusion?”

“You’re an angel,” Foggy said dreamily. “You have to be. You’re so beautiful. Angels are beautiful.”

Matt laughed heartily and pressed a kiss to Foggy’s temple. “I’m your boyfriend, and you’re a dork.”

Foggy took a minute to fully absorb this information. “Oh man,” he said. “I hit the jackpot, didn’t I? Are you like a…a trophy boyfriend?” This earned another belly laugh from Matt.

Neither of them noticed that Karen had woken up, and was recording the whole exchange on her phone.

For those of you that dont already know, this is my sister.

She had a stroke in March 2011 and now cant speak.

But that doesnt put her down, she smiles for a reason. love and family kept her happy <3

and we have ALOT of love for her :)

im so thankful i have her. yea i cant hear her voice ever again, but i have her love with me :)

i miss her voice. shes my only sister. she is my best friend.

and the guy next to her, is her husband “/

p.s. a year ago she was pushing almost 400 pounds…. she is 200 now :)

and still dropping pounds <3 :)

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Someone on different strokes recommended people start filming the techniques the use for daily tasks, so heres my technique for getting in and out of the bath, hope it helps someone develop their own technique. PLEASE DO NOT PUT YOUR SAFETY OR HEALTH AT RISK BY TRYING TO COPY THIS, I believe you will know your abilities and it took me months of practising before I could do this with water, so practice first fully clothed, with any supports/shoes you need on and someone close by to help if you need it and when you feel confident, lose the shoes/support, then eventually when you master that try it without anyone in the room, and you will know when you are ready to take a bath. good luck! 

REMEMBER I AM NOT A PHYSIO, JUST A STROKE SURVIVOR SHARING MY EXPERIENCE & TECHNIQUES 

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For everyone that was ever told they wouldn’t improve after their first year of stroke recovery…

MY GRANDPA WROTE THIS HIMSELF!!!

I am so so proud of him. A few years ago my grandpa had a massive stroke and has had, if I remember correctly, a few smaller ones and a number of seizures ever since. He struggles to walk, go to the bathroom or bathe on his own, his speech has been very slurred and he gets really confused at times. There was even a point that he forgot that he and my grandma were divorced. :’( He had to relive that all over again from his hospital bed.

(She’s been with him helping to take care of him and stuff since her second divorce but he still had to go through all of the emotions with finding out that she was no longer his wife, hadn’t been for many many years and had, in fact, already been married to and divorced from another man.)

He’s always been such a strong man and hard-worker. He had his own construction company and traveled all over the country building mansions and restaurants. After his stroke he wasn’t able to do that anymore. It was hard seeing him going from being so independent and busy to being so weak and seeming so vulnerable. He lost his physical independence but not his stubbornness and it gets him into a bit of trouble. He’s convinced that one day he’ll be able to go get his driver’s license again and even go back to work at construction sites. I’m glad he has goals and I hope that some of them may even come true for him one day. Who am I to say he can’t do these things? My only hope is that, as hard-headed as he is, he notices and treasures the SMALL steps he’s making too. This little card attached to my Christmas gift from him this year, this is PROGRESS! My sister got hers first and I heard her ask dad if our grandpa wrote it himself and he said yes. I was confused at first but when I got my bag and saw the tag I got all teared up. We both did. We get so excited every time we look at these little tags. It’s really one of the best Christmas gifts we’ve ever had! More than we ever could have asked for from him! He wrote our names, guys! He wrote MY name! He wrote this himself!!! Gah… I can’t even describe to y'all how good it feels to see that! I just hope he sees his progress for what it is and keeps pushing forward. <3

My Survival Story

I have had a colostomy almost 2 years now. My colon burst due to extreme constipation, which I had been trying to manage for some time. I was in a lot of pain! I saw my doctor just 2 days before. I was given yet another pain pill, which I had been on several over the past 4 years due to spinal and hip surgeries. I went into septic shock, and other life threatening infections.

I was not expected to survive, somehow I did! The surgeon removed a large amount of stool from my abdomen that filled a huge metal bowl. He took a picture of it, and showed me 2 months later, when I was out of my coma, and had a stroke in a coma because of the sepsis, and almost no blood pressure. It has been a long and rough recovery process. After I left the nursing home, I still wasn’t able to live on my own until 3 months ago. I had a failed attempt to reconnect in February 2012.

After waiting for enough recovery time, for a year now,
I was referred to a specialist at a hospital for colorectal issues. I met with my new surgeon and am going to have to go through several tests and procedures to see if I am even capable of having the reconnection. I am glad to have somewhere to talk about this because I do not have anyone that really understands what I am going through. I am going through my stroke recovery too at the same time, and dealing with osteoarthritis, and spondylolisthesis.

I am some what struggling with my situation partly because I don’t have anything I can explain why I have “a bag”… I do have a colostomy. However, I have a difficult time with other people even family that really doesn’t understand. I had been severely constipated due to meds for spinal and hip surgeries. I was trying to get help. Two days b4 my colon ruptured, I was telling my Doc, and about how severe the pain was. All he did was put me on yet another pain med. Yes, I have learned so much!

NOW, I would shout from the mountain tops—” I CAN’T POOP!!!! Needless to say I got sepsis, and so many other infections, went into a coma, blood pressure dropped, and had a stroke. I died, and family was told that I probably wouldn’t come off of life support. after almost 2 mo. I was taken off vent. and I started breathing on my own. I ended up going to nursing home, and stroke recovery, etc. I know I am meant to be here for some reason.. In February I had a failed reconnect.

Now, I have to undergo tests, and some procedures to see if I am even able to have a re-connection. Yes, I am typing on my laptop!! :D For a while there, I didn’t know I had a computer, cellphone, a car, or how old I was!! I have been given a second chance, and my surgeon calls me his miracle.I also want to speak up about this. We have nothing to be ashamed of!

Updates!

Hello lovely people!

This is what has been happening:

Christian had to have his brace adjusted, since his ankle is naturally dorsiflexing more when he walks.

I have so many videos and photos to share, but Tumblr is still giving me grief.  So this is the only way I can keep track. :)

Christian is able to pick the starting letter of words with 80% accuracy. There will be a picture of an item, and he has three choices of starting letters, none of the letters are spoken and there are no other audio prompts.

Christian continues to make progress with his arm movement. Also, his hand his most always open now, it is not gnarled into a fist due to spasticity. It does tighten up when he walks though.

He has also been very moody, and I do not know if this is BECAUSE he is getting so much better cognitively. It is very difficult to live with and I am always trying to cheer him up, or snap him out of it, have him concentrate on the good things that are happening. I am afraid that I am getting burned out.

We almost got ripped to shreds by the escalator at Carrefour.  :/  it is a flat escalator and we have been riding it with him in his wheelchair, because it is a long walk to the supermarket. This time, the wheels of  the chair got stuck and the escalator kept running upwards and all of the market patrons were yelling at us because they had to keep stepping backwards with their shopping carts, etc.  I finally was able to get it unlodged, but the escaltor had ripped the tubing off the rims of the wheelchair, so a stranger helped me get Christian off the escalator in his chair. Then 3 (AMAZING, LOVELY AND KIND) strangers helped get Christian out of the chair, flipped it over on its side and reattached the tubing on the wheelchair for us. It was so kind, I almost wanted to cry.  We have experienced this type of kindness from absolute strangers quite a bit inthe past few weeks.

Yesterday we went to an overpriced American owned Bar and Grill and had bad food. The fun part is we went with all sorts of people from the ward, including an 18 year old Russian car accident survivor and her Mom, Mr. E (Chinese PhD student at Univ. Of IOwa, also a car accident survivor),Mr. E's awesome Mom, American Ms. P and her 21 year old son (stroke), and American Mrs. B and her husband (stroke) and their helper, Ms. M. I think I am going overboard with the secret names, but I am sure you can understand. The food was horribly overpriced, but we all had fun and there were fireworks, so you win some, you lose some. :) I hope everyone’s Fourth of July was fantastic!!

TODAY, JULY 5th, CHRISTIAN GOT CONSISTENT D’s. He can say “Panda” ten times in a row, with no cueing!!

Today, I wrote the administrator of International Health, Ruth Lycke, because she has not come to visit Christian or see how he is doing for the past 6 weeks.  She said she was “a bit apprehensive” since I cc “6” people in my emails to her and I recorded a conversation we had about fees. If you have nothing to hide and are conducting business ethically, why is there any need to be apprehensive? 

GUYS THIS IS THE BEST NEWS EVER

my dad is being released from the hospital in like 2 days!!! he had a really damaging stroke and has been in the hospital for over a month but now he’s been sitting up on his own and answering questions and ak;dlkfajdoifjaeifjaej I am so proud of him. 


I wanted to shout it on top of a mountain but all I have is tumblr so here I am lol

Mom is walking around on her own and doing laudry!!!

About a week before Christmas mom had just started walking around without her walker but she was still a tad unsteady. At Christmas eve at her parents’ house she went in with her walker but was able to walk around without it but still kept her hand out to steady herself. She’s been able to see my room at this house for the first time and TODAY she came to my room and asked if I had towels! She’s going to do laundry for the first time since her stroke!!!! Seriously the last time she did laundry (which she loves doing) was the night of her stroke. She was literally walking to the washer to move the clothes to the dryer when her stroke hit! And now she is up and doing towels all by herself!!! I asked her if she needed help and she flashed the biggest grin and was like, “Nope!” :D I am so so proud of her and all of the hard work she’s put in and so grateful to Michael, her super awesome PT, for being so patient and amazing and helping her through this and bringing her so much peace!

NO WORDS to DESCRIBE IT

China has shut down Google for the moment and is treating Tumblr like an obnoxious in-law, so I am having a hell of a time posting. I even made a little video, but i haven’t been able to upload it.

So, until some of these problems have been resolved, I am going to be writing in a few updates.  Christian has been very tired lately. During the day he started taking 2-3 hour naps. I hope it is just temporary, although he has been very sad.  He has been making incredible gains, but his ACTUAL speech is not improving very much. He is reading words at 90% accuracy, is 100% accurate with colors and has 3 step commands between 90-95%, which his recent speech therapists know is a great progress.  The T’s, D’s and L’s made a recent appearance and have not been seen since around the 2nd week we got there. He is communicating much more with drawing pictures and even the occasional word, without prompting. We are understanding each other a lot better. The nurses and doctors here ask him TONS of YES and NO questions and he is answering correctly.

Although, I smeared peanut butter all over the roof of his mouth and he FINALLY started placing his tongue there, making a clucking sound, which I hope will eventually turn into Ts and Ds.

So he is a little discouraged. I am too, but I think it is because I am running out of strategies to keep him positive and focused on the amazing things that are  happening in his favor. I understand though, all he wants to do is TALK. He really tries. He can’t understand why his tongue won’t do what he wants it to.