I just wanted to say a quick ‘thank you’ for the support and patience over the last few months, while I first dealt with my sick mother moving in with us (temporarily, thankfully) and then the passing of my grandmother. I know I have asks/messages stacked up, but since the weather is turning colder and life has settled a bit /knock on virtual wood/ I hope to get back to blogging. I’ve cleaned up my likes folder on here, lol, that was a mess. And I’ve got some fics ready to go on my livejournal and I’m hoping for a good October. I mean, it’s the month of Halloween, so already one bonus in its favor!
We are on the autism spectrum, and also on the multiplicity spectrum, and struggled for a long time with communication and self-expression.
One day we got the idea to make a “Status Necklace”- a necklace with charms made of shrinky dinks, stacked on top of each other like a flip book, showing various things about how we were feeling. Who was there, how overloaded we were, what pronouns we wanted people to use for us at the moment, things like that. When verbal communication was freezing up on us, or when anxiety was preventing us from saying how we felt, flipping a charm on a necklace was often a form of communication that actually WORKED.
A lot of people we met expressed interest in the status necklaces, and we worked on more designs. We’ve heard of other autistic people using changing symbols to communicate - The interaction badges used at Autreat being one example - and wanted to come up with designs that would be easy to use, easy to wear, useful for communication, or just plain fun.
Thus, Spacerobot Studio was born.
We’re also using it to make jewelry designs for things that seem sorely lacking in pride jewelry- Neurodiversity, Autism, Multiplicity, and Asexuality.
Although these are made with folks on the autism spectrum in mind, I think they’d be great for folks dealing with chronic illness, too. And, if you’ve got both going on in your life… then it’s just mega-awesome!
By the way, if anyone’s curious about plurality (the blanket term for ‘multiplicity’ mentioned in the creators’ shop info), this blog looks like it would be a good starting resource.
Early this year we posted about the Nessie Ladle by OTOTO, an awesome soup ladle shaped like the Loch Ness Monster. Today we learned that, although she’s one of the world’s most famous cryptozoological mysteries, Nessie isn’t alone. She’s got a mother, Mamma Nessie! The latest creation by OTOTO, Mamma Nessie is a colander spoon and, when cooking time is over, her daughter Nessie can ride on her back. Utensil storage doesn’t get much cuter:
Mamma Nessie is currently available for pre-order from the SOHO Design Shop in either Turquoise or Green. She ships in just a couple weeks, but don’t worry, she won’t be swimming her way to your home. This kitchen cryptid travels swiftly via air mail.
One of my dear friends has been struggling with a string of low spoons days lately, which inspired me to create this spoons meter so they could quickly and wordlessly convey how they were feeling that day. It works on a scale of 0 to 5, where five spoons means: “Hey, I’m feeling good! Let’s go out and see people and kick ass and crush the patriarchy!" and zero spoons means: "Spoon levels critically low - DO NOT ENGAGE”
I figured this might be useful for other spoonies struggling with chronic illness or disability, so I’m making it freely available! The meter itself is small enough to fit nicely in a blog description or anywhere else you may wish to conspicuously display your current spoons level.
You can download the full set here or check the user-friendly sidebar code here. It’s totally free to use (although, of course, credit and a note to let me know would be lovely!) Even if you don’t need this, please consider reblogging in case one of your followers might find it useful.
May all your spoons be polished and your silverware drawer be full! =3
LISTEN: One Direction’s Liam Payne Gets Honest… About His Phobia Of Spoons!
4th June 2015, 09:26
The ‘Best Song Ever’ star gives us the inside scoop on one of the BIGGEST rumours, about his secret phobia!
It’s not your average phobia - having an aversion to spoons - but Liam Payne has explained his reasoning for disliking the little cutlery devils and we have to admits… it does kind of make sense!
The One Direction star stopped by for a chat with us ahead of the band’s performance at our Summertime Ball 2015 With Vodafone this Saturday (6th June), and was quizzed on rumours that have been flying around for some time that he is scared of spoons. It turns out the truth is more complicated!
“See I’m not so much scared of spoons, I’ll hold one,” Liam explained to Capital’s Dave Berry and Lisa Snowdon this week. “But I don’t like eating with them, if they’re not my spoons, if that makes sense.
“It is a bit weird. When I was a kid I was a bit naughty at school and when you were naughty they made you do the washing up,” Liam added. “I had to wash all these nasty spoons and then it’s just stuck with me after. I don’t know what people are doing with their spoons, I don’t want to know!”
as many of you know, the spoon theory has been frequently discussed on this blog: what is it? who can use it? why are we discussing it here? basically, a lot of conversation about a nuanced, but very important, topic. so, welcome, to the big ol’ spoons masterpost. here, i’m going to attempt to explain as easily and thoroughly as i can what the spoon theory it is, who can use it, and why it’s important to this blog. here we go!
what is the spoon theory?
the spoon theory originated with christine miserandino, who used it to explain to her friend what it is like to live with lupus – you can read the full background story in this article on butyoudontlooksick.com.
the spoon theory is a metaphor for what people dealing with chronic illness / chronic pain go through each and every day. you can think of spoons as being comparable to a measuring unit for energy and ability to do things.
healthy people have a never-ending supply of spoons, i.e., you wake up, and you use your day to do what you want. you to go to work, you cook dinner, you hang out with friends, go out, watch tv, clean your house, etc. you might get tired, but you can do all those things – you have the ability, and you can pick and choose what you do.
chronically ill people have a limited supply of spoons, or energy / ability. their spoons very from day to day. “low spoons” days are low ability or low energy days, days where chronically ill people just can’t do as much as healthy people. so, if various activities (such as the ones listed above) cost spoons / energy, these people have to carefully plan out their day and prioritize what they would like to do with their limited energy.
here is an excerpt from christine miserandino’s article linked above to illustrate just how much thought goes into living just one day with chronic illness:
“Showering cost her spoon, just for washing her hair and shaving her legs. Reaching high and low that early in the morning could actually cost more than one spoon, but I figured I would give her a break; I didn’t want to scare her right away. Getting dressed was worth another spoon. I stopped her and broke down every task to show her how every little detail needs to be thought about. You cannot simply just throw clothes on when you are sick. I explained that I have to see what clothes I can physically put on, if my hands hurt that day buttons are out of the question. If I have bruises that day, I need to wear long sleeves, and if I have a fever I need a sweater to stay warm and so on. If my hair is falling out I need to spend more time to look presentable, and then you need to factor in another 5 minutes for feeling badly that it took you 2 hours to do all this.
basically, the spoon theory is used to describe the limitations of living with a chronic illness.
who can use spoon theory to describe themselves?
this has always been a complicated discussion. what is abundantly clear is that spoons is not a metaphor for tiredness or laziness. spoons are not an emotion, or a hyperbole one can use to exaggerate how one is feeling. it is completely insensitive and unacceptable to people struggling with chronic illness to parallel their daily battle to a mood or lack of motivation. using this kind of language incorrectly is ableist, as it diminishes the real lived difficulties of people with chronic illness.
spoons can apply to people with visible and invisible illnesses. some disorders that are draining but not always readily visible to others are : depression, ptsd, fibromyalgia, chronic fatigue syndrome, POTS, multiple sclerosis, lupus, autism, endometriosis, and a number of other physical or mental illnesses. (taken from thespoontheory.tumblr.com’s FAQ)
you should not use spoon theory to describe yourself if your illness is a one time occurrence and not chronic; for example, the flu.
it has been debated whether spoons can be used to describe allergic reactions – on the one hand, severe allergies require the presence of the allergen for someone’s abilities to be altered. essentially, unlimited spoons are available as long as the person takes this preventative measure. on the other hand, some argue that severe allergies can cause a multitude of other health issues, including severe anxiety. severe anxiety can absolutely limit spoons, and thus it is something that should be taken into consideration.
this blog is an intersectional space, meant to be filled with recipes that people of all levels of access and ability can create. so, while much of our blog caters to recipes that are inexpensive and take little time to prepare, energy levels are also important to take into consideration.
there are certain things that people with low spoons might be less able to do : recipes that include a lot of chopping, a lot of time standing over the stove, a lot of cleanup. this is why no-more-ramen has specific tags for needs like this.
the no chopping tag is exactly what it sounds like – recipes that involve no chopping or knifework. everything is frozen or from a can for easy preparation.
the crockpot tag is for recipes that can be placed into a slow cooker and left. that’s less time spent standing and working in the kitchen.
the general tips tag has not only tips for budget shopping and recipe tricks, but also suggestions to make cleanup easier on someone who doesn’t have many or any spoons left after cooking.
these are key things to keep in mind when submitting a recipe! you can help someone create the comfort of a home-cooked meal while sacrificing less of their ability to do things with the other parts of their day. that’s important, and awesome, and can really improve someone’s quality of life.
and there you have it! the big ol’ spoons masterpost. please let me know if you have any corrections or additions you think should be included. thank you!