Pigblr is grappling with the loss of one of our most iconic members today, the irascible but lovable, true ladies’-peeg, bony-butt Spoonie. He thrived and sneered in the face of illnesses and surgeries that might’ve brought a weaker pig to its knees. @triggerfishie has been an inspiration through it all with the dedication she has and the sacrifices she’s made for her pigs’ quality of life. The love she and the guinea pig community here on tumblr has for Spoonie means that he’ll live on in our memories for years to come. I always said that my aesthetic was “Numchucks sitting calmly in the foreground while Spoonie does something weird in the background,” and I’ll rest tonight knowing that Spoonie will always be in the background of our lives, doing his own weird things.

We love you, Spoonie. Hump in peace.

I think the funniest ignorant ableist anon I’ve ever gotten was one like 3 years ago that said something like, “maybe you’d feel better if you stopped smoking so much pot." 

 Reasons it’s hilarious:

  • I’ve never actually smoked???? Not even a regular cigarette or even hookah. I have a small vape pen for medical marijuana but it’s so mild I barely feel it most of the time anyway. I feel more from DayQuil. I mostly use edibles anyway because they help treat basically all of my illnesses and their symptoms at once.
  • I’M CALIFORNIAN and yet the first time I ever tried cannabis was at age 23 in the context of “I’ve just been diagnosed with narcolepsy and the neurologist will only give me stimulants even though I have arrhythmia and mental illness and I want to die and in doing research on my condition I found all these people who said that weed suppresses their sleep paralysis and also helps with depression so maybe this will help me, I’M SCARED I DON’T KNOW WHAT TO EXPECT BUT IT HAS TO BE BETTER THAN GODDAMN STIMULANTS” (and then the first night I tried a bonbon I cried laughing watching Futurama at 3am and then fell asleep almost like a normal person, why is this illegal)
  • This person legitimately believed that little ol’ cannabis was what was making me sick and disabled. That it was making me have horrible full-body pain, fatigue, insomnia, vomiting, bleeding ulcers, depression, anxiety, negative thoughts, suicidal ideations, etc
  • “you’d feel better if you stopped” 
  • ??????????????????????
  • does this person not know how cannabis works omfg that’s like saying “maybe you’d dry off if you stopped using towels”

Come to think of it, I wasn’t open online about being a pot patient back then because of the stigma around it, so I think I know which friend it was who sent that anon because even though they knew I was sick and struggling, they were sooo judgmental and thought that anyone who touched cannabis was just a bad person chasing highs and that I was using my illnesses as an excuse to get toasted. Would they rather me be sucking down crazy straws of morphine packs all day to be functional or would they rather me spend all day in pain doing my best and then smartly take an edible when I’m safely home so I can have a few hours of relief? Fuck that, let people who have chronic pain have SOME relief, and cannabis is just so… like I can’t believe that alcohol is legal and cannabis isn’t. It’s like, ujhh??? This is especially sad considering what we know now about atlas subluxation and how my suffering all had a real physical source. I was suffering so bad and they were just so ignorant about it.

I mean, Jesus, it SUPPRESSES my hypnagogic sleep paralysis episodes from narcolepsy which plagued me daily since I was 13. Do you know what it’s like to be paralyzed and hallucinate for a few hours a day and then wake up cross-eyed, unable to see right, slurring, and having to stumble around everywhere with a horrible headache because your brain is messed up? I was blown away when I figured out that cannabis actually helps to correct and suppress it. I went from 1 attack DAILY to 1 every few months maybe. That’s huge. 

I talk about all of this in more detail in my videos which I still haven’t edited orz, but hopefully soon they’ll be up. 

Also as I always say when I share what I do to manage my illness, not everything I do is going to be for everyone. We all have different bodies. What works for me might not work for you. I know cannabis just doesn’t agree with some people, the same way stimulants and antidepressants don’t agree with me (Hi, I’m I Want To Die Even More Than Usual)

Don’t let ignorant people get away with saying stupid things like that, man.   

anonymous asked:

Quick question: maybe I'm just living under a rock (very possible! Haha) but what's a spoonie?? I've been a witch for years and had never heard the term until recently.

Spoonie is a way to refer to someone with a chronic illness, mental or physical (depression for example). It is to illustrate how it is to be low on energy, to find it awfully hard to be motivated to do even the simplest things. When it comes to witchcraft, it means it can be super hard to do a simple ritual, and so some tumblr blogs (among others) have done special spells and rituals more adapted to spoonie witches.

If you want to read quite a complete post about it, here it is :)

Looking for the perfect breakfast? Try this delish overnight oats recipe, complete with chia seeds for fiber, bananas for potassium, and walnuts for omega-3 fatty acids. Making it is super-easy—just add the dry ingredients and then top with bananas/milk (or layer the banana slices if you’d like), screw the jar lid on tight, and shake. Leave in the fridge at least 2 hours, but preferably overnight.

Please help me find someone else with my rare conditon

My name is Valerie, I’m a teenager, and I’m chronically ill. 

I’ve been sick for a decade now, and unfortunately, I tend to get all the rare and ~special~ disorders. Because of this, I currently have doctors in nine cities spanning across five states. I battle six chronic conditions, and balancing them is a daily struggle, but I’ve managed. 

But my newest condition has turned my life upside down. It’s called Recurrent Subacute Thyroiditis (RSAT) and most doctors will never see a case of this in their lifetime. I luckily have found a doctor who has least seen a few cases of this before, but I am the youngest person she has ever seen with this condition. 

RSAT is an inflammation of the thyroid that causes overactivity, leading to high heart rates, trouble breathing, low blood pressure, dizziness, chest pains, insomnia, fatigue, hair loss, and muscle weakness. The overactivity lasts for about 2-3 months, and then the thyroid flips to inactivity, leading to lethargy, extreme fatigue, depression, low body temperature, and slow heart rates. The inactivity lasts for 2-3 months, making this a 4-6 month condition. I’m currently in the middle of my second episode, and my first episode was just two years ago.

I am terrified. This condition has caused me to be rushed to the ER twice. This condition has rendered me so dizzy and dropped my blood pressure so low that walking is a hazard and I am in a wheelchair. This condition has prevented me from attending school since the end of October. This condition can occur again, and there is no telling when or how often. 

I’ve scoured the web, posted in countless Facebook groups, analyzed research, and even scheduled a conference call with doctors in another country to try to get some answers. Not only is there no information on it, but I can’t find anyone else with it (and due to HIPPA laws, my doctor is not allowed to connect me with the other cases she has seen). I have support from my friends and family, but they cannot even begin to understand what this is like. 

I am alone in this right now, but I know the internet is a powerful place. I’ve seen other kids with rare conditions find support and/or answers, and I thought I might as well give it a shot. Please, please - even if you don’t have this condition, even if you don’t know me, please reblog this and spread this around. I just need to know that I’m not alone in this. Even finding one person who has this would make the world of a difference.

Thank you in advance. Those who know me best know I absolutely hate asking for help, but I can’t do this alone anymore. 

10

When People Don’t Believe That You’re Disabled - Rikki Poynter

“Disability does not care. You can be 25 years old and then one day you wake up and your hearing is gone, or your sight is gone, or you are just in a crap ton of pain.”

[Gif set of ten gifs of Rikki Poynter’s video “When People Don’t Believe That You’re Disabled” (5:13-6:06)]