C.O.R.E. was designed from inception to serve the 1 in 5 Americans with a disabling or chronic condition. While physical inactivity can cause the body to break down and degenerate, an active lifestyle can energize, maintain, and return function to the body. Unlike your average gym, C.O.R.E. strives to be a place where persons of all fitness and ability levels can achieve their greatest physical potential, and build a lifestyle of health and wellness that will help them to live fulfilling and empowered lives.

The Center of Restorative Exercise is an inclusive fitness facility. We pride ourselves in our ability to provide the life enhancing benefits of Restorative Exercise to people of all fitness or ability levels. 

Including but not limited to people with:

Achondroplasia, Amputees, Arthrogryposis, Cancer, Cerebral Palsy, Diabetes Diastrophic Dysplasia, Heart Conditions, Muscular Dystrophy, Multiple Sclerosis, Orthopedic Conditions, Parkinson’s Disease, Post Polio Syndrome, Scleroderma, Senior Citizens, Spondyloepiphyseal dysplasias, Spinal Cord Injury, Spina Bifida, Stroke, Traumatic Brain Injury, Transverse Myelitis, West Nile poliomyelitis. 

anonymous asked:

Can I ask what your disability is?

I was born with a very severe form of Ehlers Danlos Syndrome. This has caused many health complications, especially over the past 4 years. It has led to me now having hemiplegia which means i am paralysed down one side (left) and my right leg is also paralysed due to unknown causes, they are still trying to figure that out. My right arm is getting weaker too, the function in it is far less than it should be and i’m beginning to struggle lifting up things as light as plates or a glass.
I am completely bed bound due to major instability in my skull and spine, a chiari (where the bottom of your brain pushes through the bottom of your skull, a stretched spinal cord, a brain stem that is being twisted and a windpipe that is being crushed by all the pressure caused by my spine and brain. If I sit up with a neck brace (no more than once a week) i can last for maybe ten/fifteen minutes if i am strapped into my reclining wheelchair and i have had a maximum morphine dose beforehand. Without the neck brace I am unconscious almost instantly, dead within a few minutes.
I’ve been bed bound since Christmas 2013. I’m sixteen years old and it is kinda awful but i’m coping. Hope this helped :)

Non-invasive spinal cord stimulation gets paralyzed legs moving voluntarily again

See on Scoop.it - The future of medicine and health

Five men with complete motor paralysis have regained the ability to move their legs voluntarily and produce step-like movements after being treated with a non-invasive form of spinal cord stimulation. The new treatment builds on prior work to generate voluntary movements in paralyzed people through electrical stimulation – in particular, two studies (one completed in 2011, the other in 2014) that involved surgically implanting an electrode array on the spinal cord. This time, however, the researchers found success without performing any invasive surgery.

The new treatment uses a technique called transcutaneous electrical nerve stimulation, which involves strategically placing electrodes on the skin of the lower back. While receiving stimulation, the men’s legs were supported by braces that hung from the ceiling. At first their legs only moved involuntarily, if at all. But they soon found they could voluntarily extend the distance their legs moved during stimulation. They doubled their range of voluntary motion after four treatment sessions.

In an effort to further improve voluntary motion, the researchers gave the men a drug called buspirone during the final four weeks of the 18-week study. This drug mimics the neurotransmitter serotonin, and it is known to induce walking motions in mice with spinal cord injuries.

See on gizmag.com
Day of Good News!
  • My MRI came back clean for major disc problems or tumors–HELL YEAH! 
  • The doctors are pretty sure that the numbness is coming from the fact that I have a pretty serious spinal ‘lordosis’ AKA I was born with my spine being swaybacked. Essentially, my spine doesn’t hold me upright as much as a normal human, my muscles do, and that can cause weird things like numbness, pressure on discs, and my constant muscle spasms. 
  • So the conclusion of 7 weeks of pain/doctor’s visits: I have to do some intense back and core exercises to strengthen everything up and hopefully the numbness goes away! 
  • But all my muscles are in spasm so much that while normal people have a curve in their neck, mine is entirely straight up and down from the muscles pulling on it. CRAY. 
  • I also had some pretty amazing news at work that I am not actually allowed to reveal for a while but I’m buzzzzzzing. (I know I just did the thing that I hate when people do, so I’m sorry but I’ll tell you guys soon). 
  • Tomorrow I’ll be on my way to San Diego for a few days of beach and relaxation and I am keen as a bean! 

Cheers to the weekend all! Thank you for all your well-wishes during my crazy back problems–you’re the raddest people x

anonymous asked:

Where are your parents? They cant help you? Are you alright??

Yeah haha, we have a home, food, furniture etc but most of our money currently is going towards my upcoming brain/spinal surgery. The wishlists include things like new clothes, new shoes, joint supports etc. Stuff that just gives my family a helping hand.

A family member and her spouse carried the gene for Spinal Muscular Atrophy and their now 8 month old has been showing symptoms/signs for a while now. She hasn’t come out with this or what type he is but it appears to be type one and she had an idea there was a chance as they had genetic screens when they miscarried one of their twins. This child is the surviving twin.

The relation here is close on my husband’s side. Obviously I can’t begin to imagine what she and her husband are going through. A friend from growing up lost her four year old a year ago to Metochromatic Leukodystrophy. He was diagnosed shortly after she miscarried her son who was to be born a week before Odin (he was two when diagnosed).

I did not know anything of this situation in our family before I became pregnant with number two. She will be a year younger then her cousin. I had the typical screening that basically checks downs and the like and neural tube issues. I also opted for cystic fibrosis because of my ethnic background.

Yesterday along with quite a few emotions, first I thought of them and what this means and how so very sad this must be for them and us as a family and later panicked a little. What if my husband carries the gene and so do I? It’s been many weeks since all my stuff came back and they don’t test for SMA unless they know someone in your family has it or the gene.

I’m 25 weeks pregnant. What will it do to know at this point? If I wasn’t a carrier and baby was clear I’d have peace of mind. If I was and husband was than we’d have to wait and see if baby was in that 25%. It would make the rest of this pregnancy long and stressful.

My husband is one of six boys and his parents have 16 grandchildren and 3 great grandchildren. One of these children has SMA. I don’t know statics or probability but 1 in 6,000 to 1 in 10,000 children are born with or develop SMA. I will just try and be mathematical and scientific and remain hopeful that I have nothing to worry about.

We’ve decided to focus our love on our son and baby and send our healing energy to our family when they need it most.

So we are okay in our little family and we are so grateful for Odin and our new growing nugget.

once i watched a richard III documentary on netflix and some lady was crying b/c he really did have a spinal deformity and one of the people in horrible histories was also there for some reason

Simultaneous Brain–Cervical Cord fMRI Reveals Intrinsic Spinal Cord Plasticity during Motor Sequence Learning

The spinal cord participates in the execution of skilled movements by translating high-level cerebral motor representations into musculotopic commands. Yet, the extent to which motor skill acquisition relies on intrinsic spinal cord processes remains unknown. To date, attempts to address this question were limited by difficulties in separating spinal local effects from supraspinal influences through traditional electrophysiological and neuroimaging methods. Here, for the first time, we provide evidence for local learning-induced plasticity in intact human spinal cord through simultaneous functional magnetic resonance imaging of the brain and spinal cord during motor sequence learning. Specifically, we show learning-related modulation of activity in the C6–C8 spinal region, which is independent from that of related supraspinal sensorimotor structures. Moreover, a brain–spinal cord functional connectivity analysis demonstrates that the initial linear relationship between the spinal cord and sensorimotor cortex gradually fades away over the course of motor sequence learning, while the connectivity between spinal activity and cerebellum gains strength. These data suggest that the spinal cord not only constitutes an active functional component of the human motor learning network but also contributes distinctively from the brain to the learning process. The present findings open new avenues for rehabilitation of patients with spinal cord injuries, as they demonstrate that this part of the central nervous system is much more plastic than assumed before. Yet, the neurophysiological mechanisms underlying this intrinsic functional plasticity in the spinal cord warrant further investigations.

Full Article

Paralyzed Men Move Legs with New Non-Invasive Spinal Cord Stimulation

Five men with complete motor paralysis were able to voluntarily generate step-like movements thanks to a new strategy that non-invasively delivers electrical stimulation to their spinal cords, according to a new study.

The research is in the Journal of Neurotrauma. (full open access)

Research: “Noninvasive Reactivation of Motor Descending Control after Paralysis” by Yury Gerasimenko, Daniel Lu, Morteza Modaber, Sharon Zdunowski, Parag Gad, Dimitry Sayenko, Erika Morikawa, Piia Haakana, Adam R Ferguson, Roland R Roy, Victor Reggie Edgerton Ph.D. in Journal of Neurotrauma doi:10.1089/neu.2015.4008

Image: This image shows the range of voluntary movement prior to receiving stimulation compared to movement after receiving stimulation, physical conditioning, and buspirone. The subject’s legs are supported so that they can move without resistance from gravity. The electrodes on the legs are used for recording muscle activity. Image credit: Edgerton lab/UCLA.

How do we define 'life'

Regardless of my personal opinions:

“ The fifth week of pregnancy, or the third week after conception, marks the beginning of the embryonic period. This is when the baby’s brain, spinal cord, heart and other organs begin to form…

…Your baby’s heart and a primitive circulatory system will form in the middle layer of cells — the mesoderm. This layer of cells will also serve as the foundation for your baby’s bones, muscles, kidneys and much of the reproductive system.”


How is stopping a heart not terminating a life? How is then selling parts of that being (fetal tissue or otherwise) not desecrating that person’s remains?

This being, how had a beating heart, had no chance to Choose to give it’s body to science.

Just sayin’

ReWalk’s sixth generation exoskeleton is its fastest and most precise fit yet

We are hearing more and more about the use of exoskeletons to help give people with spinal cord injury mobility. ReWalk is a leader in this field and last year they made headlines to be one of the first exoskeletons approved by the FDA for home use. This week, ReWalk unveiled its sixth generation exoskeleon, the ReWalk Personal 6.0, which is its most customizable yet.

Keep reading