Hello everyone! I know a lot of you know me as Harumi, a.k.a. Playbunny, a.k.a. even The Cherub Princess, here on tumblr. And over the past month through much of my chagrin, I know you’ve been seeing me dealing with a lot of hospitalizations and rapid health loss lately through my posts. For those who don’t know me as well, I was born and suffer with Sickle Cell Disease. In brief detail, its a hereditary blood disorder that causes mutation of the red blood cells and make them abnormally (sickle) shaped, preventing smooth blood flow in the veins, blocking healthy RBCs from carrying oxygen (hemoglobin), and thus causing excruciating amount of pain in the body.
I’ve lived with this for all my life but in the last month, due to no one’s minor clue at all, I’ve increasingly have been becoming more anemic and have been having more “Pain Crises”, as we call them, even bleeding. I’ve also developed another disorder called Hemolytic Anemia, where my healthy RBCs are destroying each other and not developing back quick enough. My “healthy” hemoglobin (oxygen in blood levels) would be around an 8.6 now it drops scarily to the 4.8s causing me to become very pale and very weak. And even if a blood transfusion raises it, its only for a couple days until it drops back down again and my doctor doesn’t want to give me anymore transfusions because its starting to be more harm than good on my body.
I just got temporarily discharged from my 4th hospitalization in Intensive Care this afternoon (7/11/13) because they want me to go to a more specialized hospital, Jackson Memorial Hospital. They know more about Sickle Cell and I used to go to them when I lived in Miami. My current doctor believes I will find more answers there because he’s running out of clues.
I’m still more than really embarrassed to be making this post but the point of it is, my family and I are really starting to need help
If we make this next hospital visit we’re not only going to have to pay for those bills but hotel as well, seeing as the place is 200+ miles from where I live. My parents are going to have to stay close by, and just pay for food and gasoline, and everything that’s just extra to the medical bills, on top of the month old bills we already accumulated. It’s just me, my mom, and my dad here we’re all have, no other family or anything to help support us and we only live off dad’s pension so things get very hard.
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= WHERE & HOW TO DONATE =
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I’m not asking for a lot, even a $1 is a huge, huge help, or even just a reblog (as text) if you can spare one. But If you’d like to donate, all donations can be sent to email@example.com, marked as gift. (It’ll say Jorge, that’s my father) and a step by step guide on how to donate through paypal is found here if you need it.
At this time all I can do is to thank you all from the bottom of my heart for any little bit of help, my family and I really thank you so much and even for just the moral support I’ve already received from you all, I really thank you
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Just giving a small update that I’m about to head to that specialized hospital within the next 2 hours. I’m really hopeful that we will be successful in finding and treating my problems. And my family and I wanted to thank everyone again for all the support people have given us, we really couldn’t be more grateful!