What’s up my people! Excited to be getting out to the city of San Francisco with @avkinder_ this coming week on Thursday afternoon (7/23). We are trying to base this walk on lifestyle and fashion but don’t let that keep you from joining. Trying to get as many people to come join us so feel free to tag any friends in the comments below.
Thanks guys and hope to see you all there if you can make it.
Yesterday I felt like dancing for 10 hours straight. You know not too long ago I was a Tahitian and Hula dancer, I competed and taught Latin Ballroom, I created choreography for dozens of Traditional Filipino Cotillions, I was a #CrossFit & Yoga Monster (jumping from Bosu to Bosu and onto 3.5 feet tall tractor tires) … but today, I am in pain.
I worked so hard to be in the best shape of my life. Then one day I wake up with half of my body covered in what I thought at the time was #Hives. I was so confused. I had no idea what I had done the day before to cause me to break out in this rash. Since it wasn’t causing me any discomfort, I went into self-remedy-mode: Warm salt rinse, Collagen pads, Aloe; and any type of topicals that I could get my hands on. This rash “persisted” for about a week and half when I decided to detox. I ate clean, no alcohol or caffeine of any kind, zero sweets, all that good stuff. I thought for sure that it may have been “something I ate” so there. This should make it go away right?! No, I actually developed a larger patch on my shins.
Once this “rash” was visible for all to see was when I went to my doctor. She then referred me to a dermatologist who told me that it could be either #Eczema or #Psoriasis. He gave me some topical ointments to rub on and called it a day. When it wasn’t getting better I sought out a dermatologist who specialized in Eczema and/or Psoriasis and that’s when I was officially diagnosed with Psoriasis. Only 6 months later was I diagnosed with #PsA or #PsoriaticArthritis and my life has been forever changed.
Today, I walk for me. I walk in hopes that maybe one day soon I can have my life back. I don’t regret this part of my life .. this struggle .. for it has reminded me of the strength and resilience within .. but I long to glide across the floor again as if I were flying, to dance without a time limit, to move without pain.
Today, I raise money for the #medical research that I believe in, for the work that is being funded now so that I can still have an active future, for the answers that all have longed for.
Today, I will participate in every event, in every walk, in every conference so that I can make a difference in some way.
Please support my #DREAM of a life free of psoriasis and psoriatic arthritis by making a donation today.
All money raised by #TeamNPFsf Walk provides people with psoriatic disease the services they need to live well, while funding research for a cure. Thank you so much for your support of this project that is sooooo important to me. Join me! We can do together what I simply cannot do alone.