Just fit 11 days worth of medications into the smallest and cutest pill organizer from PurseN. I’m in love!! #rheum #sjia #systemicjuvenilearthritis #juvenilearthritis #fibro #juvenileidiopathicarthritis #spoonie #jia #stillsdisease #arthritis #arthritissucks #effarthritis #chroniclife #chronicpain #chronicillness #chronicsex #notstandingstillsdisease
The nurses always say rate your pain on a scale of 1-10, being the worst pain you have ever felt. So being that I have a chronic pain disease, I always say 7, unless for some reason it hurts so bad I am crying and screaming, that’s my 10. But then the doctors refuse to give me anything for the pain because I only rated my pain a 7. The problem
with this is my 7 would be someone else’s 1000.
Everyone talks about the stigma of being mentally ill, or being part of the LGBT community. The news openly discusses racism and minority’s. But no one talks about the stigma against disabled people. They don’t talk about the subpar medical care, or making us wait longer then everyone else at the ED because the disease is chronic. They don’t talk about accusing us of being drug attics because we need pain pills even when we’re young. They don’t even talk about all the employers who won’t hire us because we are disabled. In fact they never talk about us at all. It’s as if we are as invisible
as the illnesses we have.
I am not ashamed of my illness. It’s a part of me and I own it. It’s not something I caught or something I got because of bad life choices. It’s something I was born with. I love myself and being a spoonie is just part of who I am.