What is juvenile arthrits?

Juvenile arthrits is so much more than just pain.

It’s crying because you feel like a prisoner in your own body.

It’s locking yourself up inside your room because you feel like no one cares.

It’s constantly thinking about giving up on yourself.

It’s telling yourself you’re fine even while the tears are trailing down your cheeks.

It’s constantly answering the same question with the same lie.

It’s crying after being told how it isn’t the end of the world, and how much of a weakling you are.

It’s crying yourself to sleep because you just want to know why you had to have this, why you can’t be better, and why you can’t feel like a teenager.

But hey, at least it’s not cancer.

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Pain on a scale of...

The nurses always say rate your pain on a scale of 1-10, being the worst pain you have ever felt. So being that I have a chronic pain disease, I always say 7, unless for some reason it hurts so bad I am crying and screaming, that’s my 10. But then the doctors refuse to give me anything for the pain because I only rated my pain a 7. The problem
with this is my 7 would be someone else’s 1000.

Spoonie Stigma

Everyone talks about the stigma of being mentally ill, or being part of the LGBT community. The news openly discusses racism and minority’s. But no one talks about the stigma against disabled people. They don’t talk about the subpar medical care, or making us wait longer then everyone else at the ED because the disease is chronic. They don’t talk about accusing us of being drug attics because we need pain pills even when we’re young. They don’t even talk about all the employers who won’t hire us because we are disabled. In fact they never talk about us at all. It’s as if we are as invisible
as the illnesses we have.