Look at any recent picture and I’m wearing knee braces & sneakers, a hidden posture shirt, and maybe other braces & compression.

It gives me all kinds of fashion trouble and can be quite frustrating when I can’t wear the clothes/shoes I want (basically no pants fit over my knee braces, neck lines tricky with posture brace). But twice in the last 10 days I’ve walked more than 17,500 steps (about 9 miles) without even realizing it until I looked at my fitbit at the end of the day.

That is *amazing* all things considered. Without my braces & orthotics I doubt I’d be able to walk very far at all, but because I am so diligent I have more freedom than I ever could otherwise. And because I can be up and moving around I’m not getting deconditioned which is so important for all my conditions. This is why it’s worth ignoring social and personal pressure to do what *you* need to do to stay healthy. Because it’s that I’m doing it this way that I can do it at all :)

youcaring.com
Help Kayla get a Wheelchair
My name is Kayla Holloway, and I have full body RSD/CRPS. I had to quit my job two years ago because my legs had gotten too bad to walk on. They have been continuing to get worse, and I can only stand for 5-10 minutes before they start hurting and swelling. I can't walk very much at all. I need a...

PLEASE SHARE!

I still have a long way to go to get this chair.

Thank you to everyone who has donated and shared thus far. 

Hey guys

Long time no see…

I want to put together a super detailed and (hopefully) helpful post about going to college (or school in general) with chronic illness. Send me your tips, or reblog and share them with me, pretty please?

No one ever teaches you how to mourn your health. You just realize one day that it’s gone, and you are not the same as you were before. Most days, it’s all right, but then something happens: you can’t go to dinner with your family because you’re nauseous, you can’t go hiking because fatigue and pain. You can’t you can’t you can’t, and then it hits you: you are irreversibly changed.

shoutout to people who spend tons of time on their phones because that’s all they can physically and mentally handle on most days.

don’t let anyone shame you for that. you’re doing the best you can.

spoonie

noun;

people that live with chronic illness; measuring their abilities much as one would measure the proper amount of spoons needed for an event or occasion… sometimes having an abundance, other times coming up short.

in other words, warriors of life.

feeling sorry for yourself and need a pick me up?

undisgruntle yourself

get comforted

a quiet place to clear your mind 

heavy rain noises

a guided relaxation

talk to someone

thoughts room to get rid of your thoughts

work through some things (helps when people have upset you)

get complimented

plant a few flowers 

tangle things up

cute and calming games 

orisinal games (theyre pretty damn cute)

cat poke

cat planet

wrrrrmz

suishi cat !!!

fishing girl

higher 

can your pet? (tw blood, razors and death)

grey

grow games

feed the head

want to go somewhere but can’t move?

look at the stars

go travelling without moving (best website tbh)

explore the world

secret door

playlists

not today

everyone knows you’re going to live (so might as well start living)

mix for the chronically ill

be strong, honey

allow yourself to be sad 

sick and pissed off

darkest before the dawn

helpful/safe blogs

chronic-illness-support

chronicillnessproblems

pots-gif

spoonieproblems

whatshouldwecallchronicillness

spooniestrong

help explaining it to others 

the spoon theory

understanding someone with chronic pain

what the heck is a spoonie?

spoonie tips #1 - understanding (video)

what is a spoonie? (again but explains different things yeh)

understanding invisible illness - walking in our shoes

how to encourage and understand people living with chronic pain

accessible parking

service animals

10 commandments for interacting with the chronically ill