Look Like Shit
  • (Bit of a background: I work in a hospital as a CNA and my mother works in administration. I ocassionally have to go in for IV Fluids for POTS and hEDS.)
  • Me *walking into the hospital, see my boss. stop to talk*: Yeah, I just need to do some fluids. I'm off today and have a massive migraine.
  • Boss Lady: Well, hope you feel better soon. Still on to work tomorrow?
  • Me: Far as I know!
  • *Two hours later after 5 IV Pokes and two liters of fluid*
  • Me *Sitting in mom's office waiting on a ride home when Boss Lady walks in*: Hey ____.
  • Boss Lady: Ohh.. Are you done? You still don't look good. Scratch that, you look like shit. Go home!
  • Me *Wow. Okay. That was nice*: Just waiting on Mom.
  • Boss Lady *Turns to mom, jokingly*: Take her home! I like my workers feeling better
Things I've learned since becoming ill...

• It’s nobody’s fault. It is genetic. It just happened.

• Do not be too proud or stubborn to ask for help. You need it.

• Brush your teeth and wash your face (even just with a baby wipe) everyday if you’re able to do so. It makes you feel more human.

• Shower or bathe whenever you are able to. Good personal hygiene is good for your mental health.

• Some people will leave. You don’t need those people. Others will stay and they are wonderful human beings.

• You are not a burden. You are not useless. Do not be guilty. Please. Guilt will eat your insides.

• You have not lost who you are. You just now have to make adjustments to accommodate this new thing.

• Accept the fact that you have an illness. Being in denial will only make your mental and physical health worse.

• Clean pyjamas are a divine gift. As are clean bedding and blankets.

• Self care is entirely subjective. If you want to do yoga then do it, if you wanna sit and eat takeout in front of the TV in a squirtle onesie then that’s fine too. Whatever makes you feel good, or at least better.

• If you are tired then rest. Do not burn yourself out. It doesn’t matter what time of day it is, if you need a nap then you have one.

• Talk. Write. Sing. Paint. Draw. Dance. Do something to express your feelings. Don’t keep them inside. You’ll explode.

• Don’t worry if you can’t adjust right away. It takes time. A lot of time.

• Do not feel ashamed or embarrassed. Unfortunately illness often has embarrassing symptoms or such. It isn’t your fault. People who allow you to feel embarrassed about such things are terrible people.

• Keep your sense of humour. Some days it’s the only thing that gets you through.

• There will be good days. Grab them with both hands and enjoy them. Savour them. Spend them doing things you love, things that you can’t do on bad days.

• Prepare yourself to the best of your ability. Like…always have a hospital weekend bag packed for emergencies, keep a bed day drawer or bag near to where you sleep, have food or snacks close by, always have a water bottle…

• Take your meds. Please. If you have a serious illness for the love of god don’t listen to the “big pharma” conspiracy theorists. You need your meds. They keep you alive. They enable you to function.

• Research your illness. Keep yourself informed. But don’t dwell on what might happen. Please don’t scare yourself.

• It’s okay not to feel positive all the time. It’s okay to feel down. It’s perfectly natural. But try to be as positive as you can. For your own sake.

• Your own health comes first. It’s not selfishness it’s survival.

• Be kind to yourself.

• The bad days can be horrific but the good ones are beautiful, and so worth holding on for.

• Don’t give up on love. Just don’t.

• You are a badass warrior.

used to be I hated my body cause I thought it looked ugly, now I hate my body cause it’s the functional equivalent of a 1998 Honda Civic with 200,000 miles, questionable brakes, temperamental AC/heating, and terrible gas mileage that’s liable to break down at any moment in the middle of the fucking road. and the seats aren’t even comfy  

Okay if someone is heat intolerant and they’re really upset and miserable because they’re outside or without air conditioning when it’s really hot they’re not “having a fit” or being a baby. The heat is making them violently ill and putting them in danger. It’s a dangerous health concern and you’re a huge dick if you’re minimizing that and laughing at them.

“You’re too young to be so sick!”

“You’re too young to be using a mobility aid!”

“Why do you rest so much? You’re so young!”

Originally posted by georgetakei

[gif: Hades from Disney’s Hercules saying “I know! I know. I know. I got it. I get the concept” while his hair flares from blue to red]

If only it was that easy, Susan…

Bonus:

No one ever teaches you how to mourn your health. You just realize one day that it’s gone, and you are not the same as you were before. Most days, it’s all right, but then something happens: you can’t go to dinner with your family because you’re nauseous, you can’t go hiking because fatigue and pain. You can’t you can’t you can’t, and then it hits you: you are irreversibly changed.

  • Body: *hands shaking like crazy, lightheaded, feeling weird*
  • Me: what, are you hungry?! Fine here's some food!
  • Stomach: oh, what
  • Stomach: you want me to DIGEST this?
  • Stomach: I mean I guess
  • Stomach: but I hope you're ready to lie down cause all energy sources are now diverting to digestion
  • Heart: WHAT ARE WE RUNNING? ARE WE RUNNING FROM A BEAR? SOMETHING INTENSE IS HAPPENING
  • Entire rest of body: *windows power down noise*