organ transplant discrimination

Help us fight against organ transplant discrimination on the national level

We’ve been fighting against organ transplant discrimination for years. For too long, children and adults with developmental disabilities have been discriminated against by the organ transplant system – despite the fact that their disabilities had no bearing on whether or not their transplant would be a success. This fight against organ transplant discrimination is deeply rooted in our belief that disabled lives are worth the same as non-disabled ones. 

Rep. Mike Honda (D-CA) is also fighting for the equality of disabled lives. Rep. Honda is sending a letter to the Health and Human Services Office of Civil Rights, urging them to issue guidance to the field declaring organ transplant discrimination against people with disabilities illegal under the ADA and Section 504. Thankfully, neither we nor Rep. Honda are alone in this fight. The following Representatives have signed on to Rep. Honda’s letter, signaling that organ transplant discrimination should not stand:

Jaime Herrera Beutler
Eleanor Holmes Norton
Gregg Harper
Raúl M. Grijalva
Cheri Bustos
Jared Huffman
Alan Lowenthal
Donald S. Beyer Jr.
Henry C. “Hank” Johnson, Jr.
Frederica S. Wilson
Tony Cárdenas
Jim Costa
Loretta Sanchez
Chris Van Hollen
Raul Ruiz

The deadline for new Representatives to sign on against organ transplant discrimination has been extended to Tuesday, October 4th, 2016 at 5pm EST.

Your help has been essential to ending organ transplant discrimination in Maryland and New Jersey, and to the ongoing fights in Pennsylvania and Massachusetts. Now we need your help to give the movement to end organ transplant discrimination a win on the national level. Contact your Representative and tell them to sign on to Rep. Honda’s letter to HHS OCR to stop discrimination against people with disabilities in organ transplantation. Call the U.S. Capitol Switchboard at (202) 224-3121 and contact your Representative today!

A Win for Organ Equality in MD!

The Maryland Senate Finance committee just unanimously voted to send SB 792, the Nondiscrimination in Access to Anatomical Gifts and Organ Transplantation to the full Maryland Senate. All of the Committee members have signed on as cosponsors.

The bill, which is based on ASAN’s model legislation on organ transplant discrimination, would make it illegal for doctors, hospitals, and transplant centers to deny a necessary organ transplant based solely on a patient’s disability. Health providers would be required to consider a person’s support system when deciding whether or not a person would be able to keep up with post-transplant treatment. The bill would also allow fast court resolution if discrimination occurs.

The bill has the support of The Arc Maryland, ASAN, Maryland Disability Law Center, Maryland Association of Community Services, People on the Go, National Down Syndrome Society, Maryland Down Syndrome Advocacy Coalition, the Maryland DD Council, and Independence Now.