When my health suddenly declined and I became ‘disabled’, I went through one of the hardest phases of my life. You expect your doctors to help you here. They wanted to ‘fix’ me and make me better, but none of them would help me adjust to this new way of life. I had to learn the rules of this new world on my own.
One day I bumped into a woman while waiting for a bus. We were both in wheelchairs so she asked me why I need mine. We both had EDS so she suggested I join some support groups on facebook. At first I didn’t think it would help much. One day facebook recommended one to me that this woman had suggested. I joined it and my life changed.
Over 90% of my knowledge of my condition is thanks to that group. Because my condition does so much to the whole body, doctors prioritise on the worst things and often don’t bother to learn about a lot of the symptoms and issues. In this group of thousands, if one person knows and shares their knowledge, we now all know and can research it ourselves.
Anyone who has been in that group for long enough has more knowledge of our condition than most doctors. So we discuss how to live with our set-backs. There are the default ways that our doctors suggest but as I said, doctors only focus on a few of our struggles. Here’s my inspiration. If one person figures out a new way to make a problem more manageable and posts it, thousands of people can now do it too.
Now imagine if out of every 50 people, just 1 person discovers/invents a new way to make our lives easier and shares it in a group of over 6,000 people. That’s 120 new ways to improve our life. 6,000 people now have 120 methods for better living with a disability.
This gave me an idea. What if I could form a group that focused on just our own inventive ways to better live with our health problems. Imagine how much we can achieve. Where people with any disability or condition could add their own solutions in exchange for many more. Imagine how many ideas there could be all in one place.
This is what I want for spoonie life hack. This is why I ask you all to submit your ideas, no matter how small. If we work together we can all be so strong.
Why is it that everyone loves 12th house placements and says they are really hard but any Pisces placements are seen as like delusional and victim players like it's so fucking annoying, Pisces is the o g 12th house yet everyone loves the 12th house but hates Pisces
right, well one of my friends, Sam Reynolds (he’s worth checking out) was posting on facebook one day saying Pisces, Neptune, and the 12th house are not synonymous and he made a big deal about it… but most astrologers do interpret them as the same symbolism… Pisces and the 12th house can both act like victims or martyr complex… I act like a Pisces in some ways because I have a 12th house Capricorn stellium…
Naruto had scrupulously avoided using the word ‘birthday’.
For all Sasuke knew, Naruto had forgotten all about it. It had been a mission
and a half just to get Sasuke to agree to meet up at all; he would never have
agreed if he knew that Naruto had a reason to make an even bigger deal out of
He stood fidgeting by the station gates. If Sasuke had taken
the correct train as instructed, he’d be here in less than 4 minutes (three and
a half, actually). He shifted from foot to foot, balancing a salted-caramel
latte in one hand and an iced chocolate frappuccino with extra cream in the
other. He hoped Sasuke liked his drink; Naruto really wanted to share the
wonder of Espresso House with him. Wanted to share lots of things, in fact. A
ride around the harbour, exploring Old Town, walking across the countless
bridges. He ran through his meticulously-planned out schedule once more. It was
gonna be great. If only Sasuke was on time. If only Sasuke actually showed up.
Of course he’d come. Wouldn’t he?
Naruto hadn’t seen him since High School. He’d had to
survive on photos from Itachi or Shisui’s facebook; the bastard didn’t have one
of his own. Their universities were on opposite ends of Japan, but now here
they were, both studying in Europe at the same time- it was fate! It’s just an hour flight to Stockholm, Sas,
Naruto had begged. And so cheap!Just come over. I’ll show you around!
One minute left.
His fidgeting grew worse. Sasuke’s latte was getting cold.
Jagged pieces of memory flitted through Naruto’s mind; feathery shivers ghosted
up and down his arms. He held his frappuccino to his heated cheeks. Don’t blush in front of Sasuke, loser,
Naruto told himself firmly. Look, we’re
just friends, okay? That’s all we ever were. Don’t blow this chance.
Alright, it was time. Naruto plastered a smile onto his face
and waited. And…waited. And waited some more.
…the train station wasn’t that big. Sasuke couldn’t have possibly gotten lost.
Right, he just missed
that train, and he’s on the next one, Naruto thought. That was all. It
wouldn’t be long and then Sasuke would be here, right in front of him, finally.
Just wait a little longer. I’ve waited
this long, haven’t I? I can survive another ten minutes.
…*cough* Okayyyy, over to you Emi~~ *blows kisses*. Ohhhh I wonder what you’ll write? And how we’ll find a way to make this NSFW-
The top message you can see is from two days before the last message I sent to my best friend of two years. I moved away nearly a year before this conversation happened. My best friend and I kept up with each other and talked for a few hours ever couple of weeks until she suddenly stopped responding to me. I finally got her to message me back on Facebook one day.
Before I left my two best friends were not speaking to each other. According to the other friend, over a year after they stopped speaking, I was the one who caused them to not be friends anymore. The other friend told my best friend about how I did nothing but bad mouth my best friend and talk about how annoying she was.
The truth is that’s actually what the other friend did every time we hung out, and never partook in the bad mouthing. I even have text messages to prove it. But at I was 900+ miles away, apparently, that meant my side was less true than the words of someone my best friend had just started talking to after over a year of not speaking.
I wasn’t going to go into the whole story unless she agreed to hear it, so after her three-part epic message about me leaving her in an unfair situation, I simply replied, “Believe me, I understand an unfair situation. There are two sides to every story.” And after telling me to explain my side, she never replied. So, two days after telling my story, I sent that last message. I haven’t heard from her since. Though, she did like a picture of mine on Instagram recently. Completely caught me off guard. I still can’t believe that that’s the way I lost two of my best friends.