mobility scooter

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Hey guys, that’s me on my mobility scooter. For a year it’s helped me get to work, doctor’s appointments, to see my family & friends, to live. Without it, I’m not getting very far. I’m in too much pain to walk or stand for long periods of time. And yesterday it stopped working. 

I’m permanently disabled, so this is really scary for me. It turned out to be the battery that had gone bad. I reached out to the scooter company and the good news is that they will repair it free of charge! The bad news is that due to the nature of the battery, it cannot be overnight delivered, only shipped via ground. Both ways. Which will take a long time. I can’t afford to miss that much work, plus I have vital medical treatments to get to. I need a functional battery asap.

Fortunately they do make a different type of battery that can be sent via priority mail, and that’s what I need to get. Total including taxes & shipping is $300.
If you’d like to help, I have some cosplay items for sale on my fb page. If you want to donate via paypal, there’s a button on the top corner of my blog.
Thank you all so much, this hit me out of nowhere & I appreciate any help or reblogs to get through this.

ETA: Thanks to everyone who helped me by reblogging, donating or buying cosplay items, I’m able to order a new battery for my mobility scooter! Those of you who bought items will be getting them as soon as I’m able to get moving again. Thank you for your patience. I appreciate all of your help & kind words. I’m in a lot of pain, as I always am, but at least I know that I’ll be able to get going again soon. Thanks again!
Jay <3

A rude thing that people do to wheelchair and mobility scooter users
So, here’s a thing that happens a lot:
  • Someone rides a wheelchair or mobility scooter into a room that has many chairs in it
  • They want to sit on one of those chairs.
  • Several people, trying to be helpful, dart in to remove the very chair they wanted to sit on

This is very annoying.

  • Especially when it happens several times a week
  • Especially when the people who dart in to remove the chairs are very proud of themselves for Helping The Disabled
  • Even more so if they don’t understand “actually, I want to sit in that chair”, and keep removing it anyway
  • Even more so if the person has to physically grab the chair they want to sit on to prevent it from being removed
  • (And sometimes people react badly to being corrected and become aggressive or condescending)

Do not do this annoying thing.

  • Instead, find out what the person you want to be helpful to actually wants
  • People who use mobility equipment are not actually glued to it
  • And different people have different preferences about where they want to sit
  • You can’t know without asking them
  • (You can’t read their mind, Some people seem to think that mobility equipment transmits a telepathic call for help regardless of the person’s actual apparent interest in help. Those people are wrong. You have to actually ask)
  • You can’t know where someone wants to sit unless you ask, so ask
  • One way you can ask is “Would you like me to move anything?”

If you forget to ask, and make the wrong assumption:

  • Recognize that you have been rude
  • And apologize, and say “Oh, excuse me” or “Sorry. I’ll put it back.”
  • This is the same kind of rude as, say, accidentally cutting in line
  • Or being careless and bumping into someone
  • This is not a big-deal apology, it’s basically just acknowledging that you made a rude mistake
  • People make and acknowledge rude mistakes all the time with nondisabled folks
  • The same people who say “excuse me” when they bump into a nondisabled person, are often completely silent when they do something rude related to someone’s disability
  • Being on the receiving end of a lot of unacknowledged rudeness is degrading and draining. Particularly when you see that the same people who are rude to you without apologizing say “sorry” and “excuse me” to people without disabilities they interact with
  • Do not be part of this problem
  • When you are inadvertently rude to someone who has a disability, it’s important to acknowledge and apologize for it in the same way you would for any other inadvertent interpersonal rudeness
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They definitely got old, but i don’t know how much they grew up.

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Even the most seasoned cyclists have steep hills they sometimes dread. In the city of Trondheim, Norway, one of those dreaded hills has been turned into a breeze thanks to the awesome Trampe CycloCable, the world’s first bike lift.

Since the prototype was built in 1993, the CycloCable has helped over 200,000 cyclists up the hill. It has also proven to be useful for people pushing strollers or riding scooters.

“Using it is pretty simple: you position your bicycle 10 centimeters away from and parallel to the lift rail, with your left pedal in a lower position. While standing astride your bike, put your left foot on the left bike pedal, and your right foot in the start slot of the lift. Push the green ‘start’ button and it’ll gently haul you up the hill.”

Click here to watch a video of the CycloCable in action.

[via WebUrbanist]

Today I had to literally pry a woman’s hands off my scooter while getting on the train & tell her that I don’t need help, and she insists that because her father uses a walker she understands.
Um that’s nice, but I’m not your father & you don’t know what you’re doing. Don’t try to pull my scooter, the part you’re gripping is what causes my handlebars to collapse. I don’t need to be pulled onto trains, I can accelerate just fine.
I just need you to step back so I don’t run over your feet. ASK if someone needs help before doing anything. Don’t touch a disabled person’s body or mobility aids without permission. Thanks!

Took Scoot MacGroot (my mobility scooter) out to a shopping trip at Homegoods today. At first I felt self conscious because other than achy legs I didn’t feel that bad, so maybe I didn’t actually need the scoot, maybe it was overkill, because I wasn’t totally wiped by the end… and then I realized that being able to do things and feel pretty normal afterwards - not exhausted and in pain - means the scoot is working for me. And that was great.

FULL METAL SCOOTER!! \m/
I. AM. SO. HAPPY. RIGHT. NOW.

I FINALLY HAVE A WAY TO GET AROUND INSTEAD OF STAYING IN BED ALL DAY BECAUSE MY LEGS AND BACK HURT TOO MUCH TO GO PLACES AND WALK AROUND. Holy crap, I’m excited. I cried a little bit. This is huge, guys. And it only cost me $165 because it’s refurbished/donated. Freaking amazing. I feel like celebrating!

SCOOT SCOOT!!! 😄😭🎉🎉 #cutestscootergirluknow

Ableism in the workplace

A staff member at work was putting away some items in a hallway. There was a four foot high stack of tables on a large steel dolly. The dolly combined with the rack the staff member was using blocked the entire hallway. It would have been difficult for someone to walk around them.

I am permanently disabled and use a mobility scooter to work. I can stand up and walk short distances, but even when I am completely still, I am always in a great deal of pain. Moving around and doing manual labor makes the pain even worse. Everyone I work with is aware of this.

The staff member realized that all the equipment was blocking the path and moved them out of the way. After I thanked him and started to go by, he glared at me and said
‘You do have two legs, you know.’

I looked at him in disbelief and said ‘I’m sorry? Next time I’ll just go ahead and get off my mobility aid and move heavy objects then.’ And I left because I have work to do and no time for foolywang.

Educating ableist people online is tiresome. Doing it in person when you can see the resentment and lack of respect in the other person’s eyes is agonizing. I won’t put myself in the position of having to justify my existence to others. Pursuing a dialogue with someone who acts like this is not in my best interest and I don’t advocate for confrontation in situations like this. If it affected my position I’d take it up with a supervisor, but this is just rudeness and ableism from someone who doesn’t have direct authority over me.

I’m going to keep doing my job and not let able bodied people force me into performing tasks that could be harmful to me, because they think I’m ‘lazy’ or ‘exaggerating’ my illness. It’s just another perk of having an invisible disability. Even with visible mobility aids, people don’t believe you are ‘really’ sick.

Disabled people don’t have to prove anything to you. We just want to live our lives like everyone else. We have to struggle harder to reach the same goal. The very least you can do is not literally obstruct the path I’m rolling on and then tell me that I have legs and can clear it myself.

youtube

Relive a great moment in Top Gear History - the boys build off-road Mobility Scooters - with an exclusive interview with presenter Richard Hammond.

“The soldiers felt they could probably have designed a better off-road scooter than the three of us. But really, probably anybody could design a better off-road scooter than the three of us.”

Watch the full Mobility Scooters segment on the BBC YouTube channel: http://bit.ly/1edulTC