lymed

able-bodied people don’t seem to realise the nuances of disability, they look at it as such a black and white issue when it’s really not. like, i don’t need a wheelchair in the sense that i can’t physically use my legs and i don’t need a walking stick in the sense that i would fall over without one. but i do need a wheelchair in the sense that it could make the difference between my being bed-bound for a day and being bed-bound for a week and i do need a walking stick in the sense that using one today might enable me to do more tomorrow. disability and chronic illness aren’t black and white; using things out of necessity can mean a lot of different things for a lot of different people.

Shoutout to the people who:

-have symptoms that aren’t visible to others

-are able to function even while in extreme pain

-hide their illness well

-who don’t “seem sick”

-who have flareups at night or other times when no one else sees

-fight a daily battle that others can’t see

-feel like they’re making too big of a deal out of their illness because “it could be worse!”

I see you out there, I feel you, you’re awesome.

it’s so strange to be chronically ill and have really Not Good things happen to your body all the time and you’re just like “here we go again”

“mom, my pupils are different sizes again” “mom, my kidney hurts again” “mom, one of my toes turned white again” “mom, I’m having heart palpitations again” “mom, I’m having my fourth fever of the day” “mom, I feel dizzy and unmoored from reality again” 

like the first time it was a bit alarming, now it’s just a wheel spin of what fucky shit will it be today

Does the reality of having a chronic illness ever just slap you in the face? Its like wow I’ll never be able to do that thing that I’ve always wanted to do.

you know what fuckin’ sucks about being chronically ill as an adult (don’t even get me started on being chronically ill as a kid ‘cause that’s a whole other level of hell). but what fuckin’ sucks about being chronically ill AND an adult is that being chronically ill doesn’t automatically exempt you from all the normal, adult-y stuff every adult is expected or required to do. we’ve still gotta pay bills, we’ve still gotta wait in line at the bank or random government department, we’ve still gotta go to uni or try to work or make some sort of societal 'contribution’, we’ve still gotta clean our houses and look after our children and pets, we’ve still gotta cook food for ourselves, get ourselves to and from appointments, tackle public transport and argue with call centre workers on the phone. it’d be so nice to be allowed to *just* be sick but adulthood makes it so damn hard

I want to see Gwendoline Christie In a Rom-Com

Shes stunning

Originally posted by swnews

Funny and Charismatic 

Originally posted by bearsofair

A fantastic actress.

Originally posted by everythingis-connected

And it would be brilliant for her, a tall physically strong woman, to be cast as something other than masculine bad ass. 

Originally posted by kitsn0w

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I think maybe my least favorite part of chronic illness is how much time you spend in limbo. Obviously the good days are good days, and the thing is that the worst days are when you can implement your emergency measures - take your pain pills, get in bed and call the whole day a wash. It’s a done deal. 

But most days are in between, spent sitting and waiting to see if you’re going to be able to do anything or if you’re going to have to give up. You can’t just give up every day, and you actually get really fucking tired of lying in bed doing nothing, but you can’t just will yourself to have a good enough day to be productive. You can try to advance on a task, see if you’re capable, only to find yourself on the brink of collapse, maybe even hurting your health because you so much as tried to do something. 

So then you go back to spending your 10,000th hour in bed or on the couch waiting for something to change. It’s really, really boring. 

This needs to be said

I know myself and other sick/disabled people included get a lot of mistreatment from healthy people. These “normal” people seem to assume we are sick or disabled because we don’t take care of ourselves or try hard enough to get better. We hear it when they suggest basic shit like, try yoga, eat more kale, try vitamin x, go to bed earlier, just get out of the house more, just take a tylenol, exercise more, try to be more positive ect.

Here is the truth: we take great care if ourselves. If there was an award for attempting to be as healthy as possible we would win it. 50-60% of our day is spent taking care of ourselves (some people spend even more time if they are really sick). Sometimes we spend so much time trying to be healthy, we have no energy for anything else.

All it takes for a healthy person to get sick or disabled permanently is a change in DNA sequence, a cell mutation, sudden neurological disfunction, an introduction to a neurotoxin, sudden immune system dysfunction, introduction to a bacteria, a cold that remains permanently stagnant in the body, a freak accident. Our lives can never be completely controlled. Normal people need to understand they are at risk for these horrible events also. Regardless of how hard they try to prevent these things, shit like this happens everyday and it cannot be controlled or “fought”. We need to understand this.

flickr

(via Arch (198/365) | by Alison Wheatley | Flickr)