May 10th, Lupus day.

You’re not really aware of anything until it actually happens. And I really did not have enough awareness about this disease until simmindipity was heard. So I wanted to join with my sims to this community that supports both her and all who have the disease.

  This is your month, little people who you fight against Lupus every day. Ye are strong, and nothing, not even this disease can come between your reasons for living. Put the purple plumbobs up!

Hello fellow simmers! I usually keep my tumblr sims related and lighthearted. However, with the month of May approaching… I definitely want to start a buzz about a disease I have along with many other people suffering in silence. MAY is LUPUS awareness month.

I found out I had this disease after my second pregnancy back in 2009. Although, I had been having several issues before that, it wasn’t until then they pieced together my problems. I see a variation of doctors bimonthly and I take up to 20+ pills a day to feel like a normal human being. For those of you who don’t know what lupus is; It’s a chronic autoimmune disease that causes your body to attack itself because the immune system cannot differentiate between unhealthy and healthy tissues and creates auto-antibodies to attack and destroy the healthy tissues. Causing inflammation, chronic pain, damage to various parts of the body and healthy organs. I suffer on a day to day basis with this disease and I tell you, without the help and support of my family, friends and SIMS I don’t know where I would be right now!

My goal isn’t to raise money for myself or any organization (that part is up to you, VISIT HERE if you so choose to) it’s solely to bring awareness to as many people as I can so that we can get answers to this monstrous disease. If not for today, definitely for those of tomorrow. 

With that being said, on a more lighthearted note I’d really appreciate if you all reblogged this and support me and others by changing your PLUMBOBS PURPLE you can do this by having your sims wear purple throughout the month of May and or changing your tumblr profile picture to purple.
Thanks so much you all! 💕

Clearly I’ve forgotten the art of the selfie, but bare with me because it’s #NoShameDay for the disabled community, so bare with me.
I’ve only had lupus for only a few years, but it feels like a lifetime. I feel like I’m always looking for a way to bring it up in conversation or make people more aware of what it’s like. There’s an awareness campaign going on right now that asked people with lupus to answer the question: “what is one thing you want the world to know about lupus?” I still don’t know if I can think of only one, but always try to remember that people with lupus, people with ALL disabilities, work twice as hard to accomplish half as much a lot of the time. Try to remember that I have one of those cheesy doctor chart’s for pain in my head constantly. Because a good day is a 6, if I’m lucky it’s a 4, but I don’t remember the last time I wasn’t in some kind of pain. I would want the world to know that on the days I don’t get up from the couch, I’m too embarrassed to tell people that half the time I can’t, because it hurts too much, because I feel EXHAUSTED 24/7, because I can literally feel the war waging inside my body. I’m still learning how to ask for help, and I’m usually failing (in general and specifically), so give me patience, even when I’m too stubborn to ask for it.
While you’re not defined by your disability, it is a part of who you are and should never be something to be embarrassed of. NO SHAME TODAY GOD DAMN IT

First off, happy No Shame Day!

I’m gonna do this one without a face. I’m Syd, I’m almost 20, and I’m disabled. I have Lupus. In late December/early January, something got into my brain (they think it was a flu virus). My immune system attacked my brain and spinal cord (wow thanks bruh I didn’t need that) and I was paralyzed over the course of a few days, and was diagnosed with Transverse Myelitis. Someone took a look at my brain MRI, which was covered in lesions, and diagnosed me with MS. I’m almost three months out of the hospital and now we know that 1. I have lupus, and 2. it was acute disseminated encephalomyelitis. I have brain damage and spinal cord damage that might continue to heal, or might not. 

I walk with a cane about half the time, I’m super spastic, and I’m in pain, but I’m still living my life. I’m about to start going to shows again, I’m gonna try to start skating again once we get my meds all in order. I have some mental health issues, but I’m still staying as positive as I can.