And tells you it’s your spoons for the day. You aren’t allowed to look inside the bag, you can only pull out the number you need until they are gone.
You can try to judge by weight, but sometimes there are metal spoons and sometimes there are plastic. They come in all different sizes, from baby spoons to ladles. So even the size of the bag isn’t helpful.
And they wonder why we aren’t perfect at planning our days.
I just want to say to all of you chronically ill students out there that I’m so proud of you. So few people really understand how hard it is to succeed academically while struggling with pain and illness but I see you, I’m with you, and I believe in you.
Don’t tell me I talk about my illness too much. Every movement. Every breath. Is a reminder that I’m not ok. That I may never succeed.That I can’t do things that normal people do. That everyday is a struggle. Never ever tell me I talk about it too much.
Wake up in the morning feeling like an old arthritic man filled to the brimm with inflammation inside, realizing to everyone else I look like a healthy young woman who choses to sleep in, to feel sick and be lazy.
Just because you can’t see it, doesn’t mean it’s not there #invisibleillness #chronicillness #autoimmune #livewell #bekind #arthritis #fibromyalgia #scoliosis #lupus #crohns #uc #migraines #ms #mediswarm #spoonie #sick
“I was diagnosed with Lupus, and I’ve been through chemotherapy. That’s what my break was really about. I could’ve had a stroke. I wanted so badly to say, ‘You guys have no idea. I’m in chemotherapy. You’re assholes.’ I locked myself away until I was confident and comfortable again.”