it is a weird disability that i have

I am surprised to how many ppl actually took the survey i received more than 100 replies!!Thank you very much everyone.
Regarding the most asked things:

  1. I keep the size of the shoes as it is originaly and they all work with sliders but since many people think they are too small on the feet next time i will try to make them a little bigger ( i personaly dont like too when shoes look too small).
  2. Also please make sure you use the shoes with their appropriate thumbnails , because of the new patch now both genders show up( even tho i have it disabled) so please the right one is the shoe with the thumbnails i made.
  3. I will include lighter colors(the reason mostly i dont it’s because they look too bright in game and the colors fade)
  4. Some of you asked about more fashionable and weird/unique cc i will keep it in mind and try to create/convert more cc like that
  5. Many asked about toddler/children cc so again i will share more often in the future
  6. About the textures of the accessories this is something that cant be changed because when there is no available space or appropriate space where to put the uv and texture we use the “extra body” space and since many other creators use the same space clothing textures can get mixed up.Sorry! :(
  7. Some of you think the theme is hard to navigate.I understand that i will try to edit it and make it easier for you to find the links and any other information you will need!
  8. I am glad you all like me reblogging different cc and posts i am tagged in , i really enjoy when i can see your edits and posts but please dont get upset if i dont reblog something the reason is that i do not receive all the tags , for some reason tumblr isnt notifying me about everything so the only way for me to see it its on my dash or if i get the notification
  9. I am also very surprised 99% of you wanted more collabs with other creators!I am glad you liked my recent collabs , ill have it in mind for the future too :)

Last but not least you are going to receive many gifts and special cc in the future , thank you very much for being honest and taking the time to answer to every question!

Hugs&Kisses - Lumy

Originally posted by elitchu

For people who suffer with physical disabilities, wishing to be able-bodied is often a huge desire. However, there is a rare and controversial mental disorder called Body Integrity Identity Disorder (BIID) where the sufferer strongly desires to become disabled, in one way or another. One such case involves a woman called Jewel Schuping, who claims she had a lifelong dream of becoming blind.

“When I was five my mom would find me walking around the halls with my eyes closed. I have just always felt comfortable without any real vision”. It didn’t stop there: When her mother gave her the usual warning that staring at the sun would make her go blind, Jewel said she would spend hours doing so. As a teenager, Jewel would walk around with blacked out sunglasses and a white cane in order to fully immerse herself into her bizarre fantasy. By the age of 20, she had become fluent in braille after studying it for 2 years. 

In 2006, she met with a psychologist who agreed to help her fulfil her lifelong dream. Over the course of six months, he began inserting eyedrops laced with drain-cleaner into his patients’ eyes. Eventually, her eyesight diminished to nothing, with her left eye suffering a “corneal meltdown” by collapsing on itself and having to be removed - while her right eye developed glaucoma and cataracts, and a webbing of scars.Her furious family have disowned her after she initially told them it was an accident - but she insists she has no regrets.

So stimming is becoming a more open and talked about thing, even amongst neurotypical people. I see stim boards, visual stimming is a common thing these days, etc. etc.

Here’s what I have to say.

Neurotypical people can stim. That’s cool. That’s great.

Visual stimming such as slime and glitter are all cool and great.

But what’s not cool and great is making stimming some trendy thing and assuming it’s only just the visual stuff, and/or turning around and isolating autistic people for our “weird” stims like flapping and rocking.

Visual stims are valid and nice, neurotypical stimming is valid and nice.

But what’s not valid and nice is turning stimming into some aesthetic.

What’s not valid or nice is NT people making “stim boards” but making fun of autistic people for stimming by flapping, rocking, chewing, bouncing, verbal stims, etc.

Stimming isn’t always pretty paint mixing and glitter. It’s can be a form of expression and calm to neurodivergent folk. It can, in a lot of ways, be how we survive in situations. Not all stims are pretty, some can be self harmful, some aren’t but just don’t fit the “Tumblr aesthetic™”

I don’t mind your stim boards. I like them. I don’t mind NT stimming. I dig it.

But what I don’t like is stimming becoming some thing NT’s take over and try to take the neurodivergence out of. It’s been our thing, it’s not a trendy aesthetic, it’s a literal form of expression and calming. NT’s have stress and things and need to fidget and stim too, that’s fine. But don’t just come here and make a stim account because it’s trendy. Because I know a ton of people like that probably have looked sideways at an autistic person stimming in public.

Visual stims and NT stimming and all that are valid and wonderful, but please don’t forget the not-so-pretty stims, the ones that have gotten autistics/neurodivergent people discriminated against and dehumanized. The stims that have gotten autistics abused in therapies because it doesn’t look “normal” Please don’t forget that. Please don’t forget us.

Stimming because it’s calming, fun, expression, etc. regardless of your neurology- Good, awesome, great, and valid 👍🏻

Stimming because it’s trendy and fits an aesthetic- Not good, awesome, great, or valid 👎🏻

I wanna see stim boards that have hand flapping, rocking, chewing, etc. included.

I wanna see NT people stimming and not forgetting the ways autistic/neurodivergent people have been discriminated against and dehumanized for our stims, and encouraging and including us.

I love the idea of stimming becoming more acceptable, but it seems it’s becoming some trendy aesthetic rather than an inclusive movement.

Stimming isn’t some trend made by neurotypicals to look cool. It’s a common neurodivergent behavior that helps us communicate, cope, etc. Neurotypicals do it too, and I love the idea of stimming becoming just a common thing that’s accepted, that’s all I could dream of. But it’s not all pretty or aesthetic-y. It’s not a NT created thing, so can we stop seeing it that way?

Don’t let this be another thing NT people use to exclude or discriminate against us.

Instead, lets use it as a way to spread more awareness and acceptance for stimming, and make society more inclusive and accepting towards it! And that includes ALL stims.

~ Skyler, Not your neurotypical girl

Thank you, Frederick

It’s World Diabetes Day, the anniversary of Frederick Banting’s birth. Banting discovered insulin, and without his discovery, I’d have died at the age of twelve. In the wake of the election my diabetes and chronic illness advocacy has been neglected to the point where I am only addressing Diabetes Day now, at ten at night. A weird part of me – the part that has normalized an existence wherein I am always one tiny miscalculation, one computer error, one missed test, or forgotten alarm clock setting away from death – has felt like this wasn’t as important anymore. In the face of Trump’s election, I felt compelled to tackle every social injustice I could find. Suddenly it was as if all I’d done for education, science literacy, women’s rights, and diabetes awareness weren’t enough. Why had I not also been more involved in politics? In racial justice? In environmental protection? I felt ineffectual. Flaccid.

But I’m not a super woman, and I don’t know how to fight every injustice (at least not yet!), and I can’t give up fighting the battles I’ve been fighting so long. And after all, my diabetes advocacy does intersect: for with Trump and his team’s threats to the ACA and the heath care social safety net in general, people like me are at very real risk. 

Advocacy requires education, but don’t worry, if you don’t know the story of Banting’s discovery of insulin, it is anything but dull!

You must first imagine a time when diabetes wasn’t a punchline about fat, lazy Americans. Before it was a hashtag accompanying photos of greasy and sugar-filled treats. Before it was something anyone laughed about. It was 1920, and diabetes was a universally feared death sentence that almost always befell children. 

Type 1 diabetes, the type I have, is an autoimmune disease. There is no prevention and there is no cure. It is not caused by diet or “lifestyle”, and it does not discriminate; it can emerge in anyone, from infancy through adulthood, of any level of physical fitness. A full understanding of the disease has not yet been reached, but what is known is that it is at least in part genetic, and is likely triggered by environmental factors such as viral infection. A person develops type 1 when their immune system starts attacking their body’s own insulin-producing beta cells. Without insulin, energy from food consumed cannot enter cells. Before the discovery of insulin, this meant certain death.

In the early 20th century, large hospitals would have entire diabetes death wards, usually filled with children, all slowly succumbing to the disease while their grieving families sat by, waiting for them to die. I can imagine what it would have been like to be a child in such a ward. I can tell you exactly what it feels like to die from diabetes, because I almost did. Twice. 

The first time was when I was twelve. It started as malaise. I was a bit more tired than usual. I was somewhat nauseated a lot of the time. I started to become emotionally depressed. As the month preceding my diagnosis progressed, I became weaker. I did not know that my body was cannibalizing my fat and muscles for energy, that my blood was slowly turning acidic, and that my organs were beginning to fail. My weight dropped rapidly. I was winded walking up a flight of stairs. My vision got a bit blurry and my thinking muddled. And I was so, so, so thirsty. Like, unless you’ve spent three days in the Sahara with absolutely no water, you cannot imagine how thirsty.

Had I not been diagnosed I would have starved to death. The inability of my body to convert food into energy causing me to waste away, and eventually to die from heart attack, stroke, or systemic organ failure as a result of Diabetic Ketoacidocis (acidic blood), slipping mercifully into a coma first…maybe lingering for a few days. And so was the fate of every child before a young Canadian doctor, Frederick Banting, discovered insulin. 

Now picture this in your head: the year is 1922. In a diabetes death ward in a children’s hospital in Toronto, a couple hundred children lie in metal-framed hospital beds. Their bodies are emaciated, some are in comas, all suffered as I suffered. The air is sweet with the smell of their breath and urine, for a diabetic’s breath is like fruit and their urine like honey. Their Gibson Girl mothers weeping, their besuited fathers trying to uphold the emotionless masculinity of their age, their siblings in petticoats and newsboy caps kneeling at their sides. Then a dashing young doctor, Banting, and his partner, Best, enter the ward, insulin syringes in hand. One by one, they begin injecting the children, and by the time they get to the last child, the first have already begun reviving from their comas. 

Suddenly, diabetes is no longer a death sentence. It is a disease that could be managed. Children who were skeletal and comatose become plump and active once more. It is the epitome of the inspirational tale. But this is not a story of hope, because that is not where the story ends.

Managing type 1 is both difficult and expensive. Although insulin is nearly 100 years old, patent-loopholes allow drug companies to keep tight proprietary control over the most effective formulae. A lack of regulation of the pharmaceutical industry in the United States means that US patients often pay more than ten times the price for a bottle of insulin than our fellow diabetics in other countries. The insulin that keeps me alive, Apidra, costs between $280-$480 a vial depending on which US state you buy it in – and bear in mind, depending on the patient one month’s supply can be anywhere from 2 to 10 vials. In Canada, the country of insulin’s discovery, the same vial is about $30. Further, effective type1 management means testing one’s blood sugar 8-20 times daily (each of my test strips costs $2, so that’s up to $40 a day), delivering insulin via syringe or pump (a pump runs between three and seven thousand dollars), using a few other medical odds and ends like sterilization alcohol, medical adhesives, etc., and regular doctor visits. The total annual cost of my diabetes medication and supplies, without which I will die, is about $26,000 before insurance.

That cost is not prohibitive, it is impossible. And because of that, I almost died of diabetes a second time.

Before the ACA, I was uninsurable. My type 1 considered a pre-existing condition. After I was dropped from my dad’s insurance, I had to pay for everything out of pocket because of my uninsurable status. Even re-using single-use only insulin syringes to the point where each injection left a massive bruise on my abdomen, even reusing finger-prick lancets until they were literally too blunt to work anymore, even fasting every other day to take less insulin, I couldn’t afford the cost of my disease. In my mid-twenties I began insulin rationing. I would test my sugar only once a day and take the bare minimum of insulin to keep me alive, keep me working my three jobs.

Then one morning when I was 26, it caught up with me. I’d lost 20 pounds in a month – I woke up vomiting that morning: the Diabetic Ketoacidosis from not getting enough insulin was so extreme that I lost seven more pounds in one day. My roommate drove me to the emergency room where I had five IV lines put in, was put on oxygen, intravenous potassium, and spent three days in Intensive Care. 

President-elect Trump is already waffling on his stance on the ACA, but that doesn’t stave off the real fear of me, other diabetics, and others who have pre-existing conditions for our lives. Literally, we fear for our lives because we know that people like us were left to die before the ACA. We are hoarding our medications and supplies and taking every step we can to hedge against loss of insurance.

I said this was not a story of hope, but neither is it a story of despair. For, like I said, there is a part of me that has normalized fighting for my life. I have done it, in a very literal sense, every minute of every day since I was twelve and a half years old. And so too have other type 1s fought. And so too have type2s fought. And so too have all those with chronic illness and disability fought. We fight because our lives are worth fighting for. Because an enlightened society recognizes our intrinsic value as human beings, despite the flukes in our physiology. We fight because we know that, despite the misconceptions and stereotypes society has about us, we have something to offer humanity: something immense, something those who’ve never had to fight for there lives cannot understand.

Our bodies may be damaged and weak, but we are strong. And we will take our fight to the steps of the White House, to the feet of the men who want to strip us of our means of survival. Who want to strip us of our Right to Life. We will use our damaged, sick, and broken bodies as blockade. We will use our clever and quick thinking minds. For if anyone knows how to fight, it is us. 

Type 1 children, before and after insulin treatment: 

Dr. Frederick Banting, Nobel Laureate for the discovery of insulin: 

Banting and Best, with one of the diabetic dogs they successfully treated:

Thank you, Frederick. 

having an illness is so weird because even little things make you question how your body/mind works.

does everyone yawn like that?

does everyone get nervous over that?

is this normal? or just normal for me? is this normal for everyone or just everyone w my illness? or not normal at all and i should call a doctor?

wait no one does that? so it is me????

wait thats something healthy people do too??? so it isnt just me????

its like a constant state of paranoia and confusion and no answer is statisfying so you just sit there and ?????

Shit Abled People Say #398

When i mentioned that i had been having weird moments where i just couldnt move (later found out they were absent seizures i was concious for) 

“Okay next time it happens i need you to just tell god that you need help and alologize for everything youve done and he will fix you i need you to do that for me can you do that for me???”

ok, shout out to trans people who aren’t considered the norm by cis people

i mean trans people who don’t pass. trans people who don’t try or want to pass. trans people who can’t attempt to pass for safety reasons. 

trans people who don’t have dysphoria. trans people who aren’t binary, or have a “made-up” identity. trans people who use “weird” pronouns or neopronouns. trans people who are gender non-conforming. 

trans people that aren’t skinny. trans people who aren’t white. trans people who aren’t straight. disabled trans people and mentally ill trans people.

i love each and every one of you. all of you are so beautiful and you don’t have to live up to cis standards to be valid.


Please don’t tell me that America is on its way to electing a man that calls women pigs, who brags about sexual assault,who has a weird fetish with his daughter,who wants to punish women for having an abortion, who questions our first black president’s birth, who called Mexican rapist, who mocks disabled people, who mock gold star family, who mocks POWs, who has a VP who believes in gay conversion therapy, who believes that climate change is a hoax, and who hasn’t release his tax returns. Please tell me this is a bad dream. How I wish it was 2012 right now.

Having a mental disability is so weird because even though I hate ADHD and I hate how it’s hurting my grades and keeps me from being able to drive… I also can’t imagine a life without it???? and I almost feel like if I didn’t have ADHD I wouldn’t even be myself anymore, like I’d be a different person???? 

like for real having EDS is so fucking weird like my guy my brother’s shoulder dislocated the other day and my mom was freaking out and needed me to call an ambulance and i just ?????

like i was just like “why? its just a dislocation…”

and then i realized

oh wait… its not just a dislocation for abled people.

it fucking like got me in a twist man like he was shrieking in pain and i was like ready to tell him to chill the fuck out like what the fuck is wrong with me.

my reality has been so warped by EDS that medical emergencies and agonizing, painful circumstances are so normal that i was about to tell my brother to chill when his shoulder was out and that it was “just a dislocation”.

thats not fucking okay my guy my dude thats real fucked.

step inside my brain

i would love to be like you

i would love to have a normal conversation where i don’t wander off inside my own head

i would love to not go into a panic attack when noises are too loud or people are too angry

i would love to turn my work in on time

i would love to stop making excuses about why i can’t hang out…why i’m “acting weird”…why i don’t want to look you in the eyes

i would love to stop lying about why i haven’t turn in any assignments

i would love to remember dates…names…events…what i was thinking about three seconds ago

i would love to form intelligent sentences in real time

i would love to hang out in groups without feeling overwhelmed or anxious

i would love to go to parties with my friends

i would love to make friends on a deeper level than “she’s so funny”…”she’s a sweet girl”

i would love to tell you my opinions without you looking like i slapped you in the face with my blunt sarcasm

i would love to understand why people are looking at me like that…or not looking at me at all

i would love to stop talking…stop annoying you…stop being…weird

i would love to dress like you…do my hair…makeup…like you

i would love to not be the cause of the “awkward moment”

i would love to quiet the constant, dissonant symphony in my head

i would love to know why i’m angry or sad or annoyed

i would love to stop snapping at my husband over nothing and with no cause

i would love to pull myself out of my random but suffocating moments of depression and self-loathing

i would love to be the skinny girl who wears whatever she wants and looks adorable all the time

i would love to stop wanting to hurt myself…i never do…but i want to too often and it scares me

i would love to leave the shadows of doubt and be myself

i would love to feel confident talking about myself…the real me

i would let you in…trust you…

i would love to explain why i am the way i am without the fear of people looking at me like i’m insane

i would love to talk to adults with the joy i talk to my students…who never judge…never call me weird…love me unconditionally for who i am…appreciate my quirks

i would love to get the help i so desperately need…to even ask for it

i would love to trust my own mind…to remember…to be sure…to be real

i would love to be like you

more than that…

i would love to be me

in all my weirdness…my uniqueness and creativity that you’ll never see because i am so wrapped in my own fear of what others think…say…

i would love to love me and to be loved for who i am

There are so many mental disorders we think we understand, but have no concept of how huge and hard to deal with they can be for the person affected by it. Not only that, but every single disorder is different, which is one of the things that can make it so difficult to cop with. I was diagnosed with ADHD at a sadly late age of 20. I had wondered about it as a teenager, but was raised in a household that thought…and still thinks…that is it a myth, or at the very least something to be dealt with sans medication. While my parents have given in and helped me pay for my treatment, I receive no emotional support and my diagnosis has been kept a secret from my siblings and extended family. My husband is the only one who has stood by me and fought for me throughout this shit storm. The symptoms of ADHD vary greatly and cannot often be predicted. I don’t bounce off the walls. My “H” is very low. ADHD presented itself in my early years as mild Tourette’s Syndrome (yeah, that’s a thing that can happen), OCD, anxiety disorder, and depression, all of which went untreated. My family told me from kindergarten on not to talk about what was going on with me to my friends, my teachers, even my doctor. I was expected to be “normal” and not embarrass my family. 

It has taken me moving away, visiting doctors in secret, and finally getting married and moving out to get the help I need. I never want other children to go through what I did, to not understand their own mind, to feel “weird.” I trapped myself in so much fear and self-doubt that I started to develop paranoia, began hearing things, and my suicidal tendencies became increasingly more threatening. If we can get the word out about such a common disorder and remove the stigma of learning disabilities and mental disorders…and there are so many…we be able to save the lives of so many children.

If you have a disability/disorder, know someone who does, or just want to help get the word out and do away with the stigma….do it. I don’t have a hashtag. I’m not even sure anyone will read this. I don’t have a petition or campaign. It’s on you. Stand up for someone, post your own story, find your own unique way to say that there is no “normal” and there is no “weird”. We are all beautiful and wonderful and we all deserve to feel important and loved.

Whenever there’s menhera discourse, it’s usually teenagers harassing disabled adults and then being like “you’re a grown up why are you messaging me lmfao????”

It’s really sad and quite alarming, huge red flag that these people specifically target us. Especially considering a lot of us grew up as “weird” kids who were picked on because we were easy targets. It was easy to control us and to make us doubt reality. It was easy to take any of the interests we had and twist them into something we should be ashamed of.

There is no shame in relating to strange themes or aesthetics that have to do with our illnesses and I wish kids on this site would let go of this weird ego need to find easy targets in order to make themselves look cool or #woke about disability issues.

Surprisingly, harassing disabled people doesn’t… make our lives better.

Making us feel bad only makes it worse.

is anyone else afraid of talking about a having a good day with people because you dont want your issues to be invalidated simply because this day isnt as bad as it couldve been?

like, i hate telling people “sorry i was sleeping” because i dont want them to think my severe issues with sleep have gone away.

or i hate how obligated i feel to bring my cane everywhere because if i dont, people might assume that i never need one.

does anyone else feel like this or am i weird?

Made myself a thing. Cuz being disabled and home majority of the time, I lose a lot of motivation. And I feel useless. So this is to help me with basic self care and to feel productive!!

(Cuz not only do I have clinical depression but isolation, chemo, most of my other meds, loneliness, chronic pain, chronic illness, being cooped up, boredom, and lack of productivity all worsen it. I really need this)

I know some of the things on this list seem weird. Or pointless. Or simple. But I’m not able bodied. So my needs and abilities are indeed weird or simple and very important to me.

  • Growing up thinking you weren't supposed to exist at this point in life, only to recently find out you may actually live SUPER long is weird...
  • OG Doc: Okay so people with your diagnosis usually live to be about two years old.
  • Us: OH... WOW. Every day is a gift. We're going to take this one day at a time. WE Must ~* ChErIsh LiFe *~.
  • 25 years later
  • Current Doc: So based off your health right now, I wouldn't be surprised if you lived well into your 60s.
  • Us: Wait, what? ... What do you mean?? WE HAVE NOT PLANNED FOR THIS like ... at all. Where are we supposed to live?? How are we going to support ourselves for THAAT long?? DOES THIS MEAN WE HAVE TO GO THROUGH MENOPAUSE????!!!
  • Doc: ...
  • Us: Uhh ... we mean, yaaaaaaaaaaaaaaaaaayyyyy...

Well this photo came out kinda crappy and I think I cropped it to a weird size but I felt like shit and did not want to re-take it.  So here you are.

[Image description: one full-body photo of a young woman (me) with dark red hair that is braided into pigtails.  I am holding a metallic pink cane in my left hand.  I have on a bright (but not neon) green T-shirt that says, “My other disability is a bad attitude” on it in plain, black letters.  It is tucked into a plain black A-line skirt that ends a few inches above my knees.  I’m also wearing green socks that have vegetables like carrots, onions, mushrooms, etc. on them.  I have on my black, lace-up oxfords.  I’m wearing square blue earrings and black lipstick.  As always, I have on my round silver glasses.]

@yazzdonut hi I have an idea for how Mako and Jamie could meet in the highschool au !!

like Jamie is the new kid, just moved from Austrailia and he starts getting picked on for being foreign/disabled/gay/trans/just plain weird/etc. and suddenly Mako, the biggest scariest kid in the whole fucking school, steps in bc he personally knows what it’s like to be ostracized, he was ‘the fat grumpy athsmatic kid’ for a long time before he because ‘the kid you don’t fucking mess with.’ The kids picking on Jamie immediately back off and Mako turns to Jamie like “Y’alright?” and Jamie just never leaves his side after that.

ok, I just know this is gonna come off as weird, but… does anybody else get kind of stressed out by certain types of positivity posts? Particularly ones that speak to particular groups you’re a part of? 

As an example, if I were to see the kind of posts that says people with disabilities are  wonderful and amazing  and can achieve anything, not only is it so against my own self-image that I can’t relate, it actively freaks me out. 

I get to feeling like I have some standards I must not be living up to, I am a poor example for this group.

OR I must not actually be in said group- they’re talking about other people, my disability isn’t bad enough, and I shouldn’t think of myself that way when I’m clearly just a fraud. 

And it uh, applies to other stuff similarly. Can anyone relate?