invisibly illness

play.google.com
Emergency Chat app
A clutter-free single-device chat for situations where speech is impossible.

Hey all! If you have trouble speaking or hearing at times and need an easy way to communicate with others—especially strangers—you’ll probably really appreciate this app.

Emergency Chat displays an introduction (where you can explain what’s going on), and then produces a chat interface so you can communicate via text with another person. It’s pretty basic, but that’s really all that’s needed!*

This link above is for an Android app, but you can get a similar app for iOS here.

Happy (or at least productive) communicating! 💜



*If you aren’t able to type full sentences during times you might use this app, one way to get around this would be to set up keyboard shortcuts/phrases (this is possible on both iOS and Android) where you can type something simple, even an emoji, and have it replaced with a full sentence.

able-bodied people don’t seem to realise the nuances of disability, they look at it as such a black and white issue when it’s really not. like, i don’t need a wheelchair in the sense that i can’t physically use my legs and i don’t need a walking stick in the sense that i would fall over without one. but i do need a wheelchair in the sense that it could make the difference between my being bed-bound for a day and being bed-bound for a week and i do need a walking stick in the sense that using one today might enable me to do more tomorrow. disability and chronic illness aren’t black and white; using things out of necessity can mean a lot of different things for a lot of different people.

If only it was that easy, Susan…

Bonus:

Just dreamt of a world where a celeb wheelchair user rolls on the red carpet, poses for photos in their chair but is also able to stand and pose for a few seconds, maybe stand/walk for a good minute, and then get back into their chair and nobody calls them a faker or asks invasive questions.

They are allowed to just enjoy their evening and not placed into a position where they have to defend themselves and have to consistently inform people about how some wheelchair users are able to walk.

#StopHarassingAmbulatoryWheelchairUsers

  • ableist jerk: why is it that i see you purchase anything other than necessities if you're on disability benefits?
  • me, a disabled person: The only reason someone could possibly care about where my material things come from is because they think, for whatever reason, I should not have them because I am disabled. Do not bother yourself with what disabled people have, and are allowed to get as gifts, keep from before they became disabled, or buy themselves.
  • ableist jerk: you shouldn't be allowed to buy clothes.
  • me: ...🙃🙃🙃

you know what fuckin’ sucks about being chronically ill as an adult (don’t even get me started on being chronically ill as a kid ‘cause that’s a whole other level of hell). but what fuckin’ sucks about being chronically ill AND an adult is that being chronically ill doesn’t automatically exempt you from all the normal, adult-y stuff every adult is expected or required to do. we’ve still gotta pay bills, we’ve still gotta wait in line at the bank or random government department, we’ve still gotta go to uni or try to work or make some sort of societal 'contribution’, we’ve still gotta clean our houses and look after our children and pets, we’ve still gotta cook food for ourselves, get ourselves to and from appointments, tackle public transport and argue with call centre workers on the phone. it’d be so nice to be allowed to *just* be sick but adulthood makes it so damn hard

Things to NOT say to disabled people

“You’re too young/pretty to be disabled!”

“Are you sure you need that? ://”

“Have you tried (yoga, eating healthier, excercise)?”

“Oh, I get like that too sometimes!”

“I know someone who (mentions the only other disabled person you know)”

“You really shouldn’t fake that”

“___ is over diagnosed these days anyways”

(Feel free to add more. If you’ve said these things that’s ok, just try to avoid them. It makes us uncomfortable at best)