illness disease

Things I've learned since becoming ill...

• It’s nobody’s fault. It is genetic. It just happened.

• Do not be too proud or stubborn to ask for help. You need it.

• Brush your teeth and wash your face (even just with a baby wipe) everyday if you’re able to do so. It makes you feel more human.

• Shower or bathe whenever you are able to. Good personal hygiene is good for your mental health.

• Some people will leave. You don’t need those people. Others will stay and they are wonderful human beings.

• You are not a burden. You are not useless. Do not be guilty. Please. Guilt will eat your insides.

• You have not lost who you are. You just now have to make adjustments to accommodate this new thing.

• Accept the fact that you have an illness. Being in denial will only make your mental and physical health worse.

• Clean pyjamas are a divine gift. As are clean bedding and blankets.

• Self care is entirely subjective. If you want to do yoga then do it, if you wanna sit and eat takeout in front of the TV in a squirtle onesie then that’s fine too. Whatever makes you feel good, or at least better.

• If you are tired then rest. Do not burn yourself out. It doesn’t matter what time of day it is, if you need a nap then you have one.

• Talk. Write. Sing. Paint. Draw. Dance. Do something to express your feelings. Don’t keep them inside. You’ll explode.

• Don’t worry if you can’t adjust right away. It takes time. A lot of time.

• Do not feel ashamed or embarrassed. Unfortunately illness often has embarrassing symptoms or such. It isn’t your fault. People who allow you to feel embarrassed about such things are terrible people.

• Keep your sense of humour. Some days it’s the only thing that gets you through.

• There will be good days. Grab them with both hands and enjoy them. Savour them. Spend them doing things you love, things that you can’t do on bad days.

• Prepare yourself to the best of your ability. Like…always have a hospital weekend bag packed for emergencies, keep a bed day drawer or bag near to where you sleep, have food or snacks close by, always have a water bottle…

• Take your meds. Please. If you have a serious illness for the love of god don’t listen to the “big pharma” conspiracy theorists. You need your meds. They keep you alive. They enable you to function.

• Research your illness. Keep yourself informed. But don’t dwell on what might happen. Please don’t scare yourself.

• It’s okay not to feel positive all the time. It’s okay to feel down. It’s perfectly natural. But try to be as positive as you can. For your own sake.

• Your own health comes first. It’s not selfishness it’s survival.

• Be kind to yourself.

• The bad days can be horrific but the good ones are beautiful, and so worth holding on for.

• Don’t give up on love. Just don’t.

• You are a badass warrior.

Reasons Why Bill Nye Saves the World is Super Cool

*there is an entire episode dedicated to debunking alternative medicine and all the bullshit miracle treatments that we as chronically ill people are so frequently lectured about!
*he discusses ways that technology can help those with disabilities (specifically a new camera app that can help blind folk by providing an audio description of their surroundings)
*he debunks the menacing stigma of GMO crops, which many ignorant people blame as the cause of cancer and other illnesses
*he debunks the claim that vaccination is linked to autism, as well as demonstrates how unvaccinated people can severely impact those who are immunocompromised.

  • Random person: well this medication you're taking is just treating the SYMPTOMS of your disease, it's not actually helping you
  • Me, internally screaming: I have a CHRONIC illness. THERE IS NO CURE. I will take what I can get.
The lack of diversity no one talks about:

Characters with:

- Epilepsy

- Diabetes 

- Psoriasis

- Rheumatoid Arthritis

- Inflammatory bowel disease (crohn’s disease or ulcerative colitis)

- Cystic Fibrosis

- Celiac Disease

- Hypothyroidism/Goiter

- Hyperthyroidism 

- Asthma 

- Paramyloidosis

- Sarcoidosis

- Multiple Sclerosis

- Amyotrophic lateral sclerosis

- Spina bifida

- Lupus 

And many more.

One of the worst things about chronic illnesses is that they’re always there and always draining and then when you get some kind of lame ass pedestrian cold or sinus infection on top of it and it’s like MEGA DEATH and your body is just totally defeated over what seems like nothing

it’s so strange to be chronically ill and have really Not Good things happen to your body all the time and you’re just like “here we go again”

“mom, my pupils are different sizes again” “mom, my kidney hurts again” “mom, one of my toes turned white again” “mom, I’m having heart palpitations again” “mom, I’m having my fourth fever of the day” “mom, I feel dizzy and unmoored from reality again” 

like the first time it was a bit alarming, now it’s just a wheel spin of what fucky shit will it be today

@ people with disabilities that dont affect them greatly or every day

you are still disabled

your struggles are still valid

just because you arent sick all the time, it doesnt mean you arent sick.

just because you dont have many limitations, it doesnt mean you cant vent about the limitations you do have, because if your illness takes away even one experience/ability/feeling from you, its already taken too much.

dont let people invalidate you because you arent as “disabled as you could be”, because you are disabled, come @ them if they try to tell you youre not.

dont feel like you shouldnt be upset that you have this illness, just because it doesnt always affect you, or doesnt constantly affect you, it doesnt mean it doesnt affect you.

please dont feel like you have to constantly prove youre disabled, and if you do, remember that you are disabled, and you do have hardships and that you deserved to be believed.

I am so sorry you have to go through this, you shouldnt have to.

and above all

youre important and your issues, whether they be small or large, are important.

you matter.

Ooh my first mermaid picture is back from the photography creative night last night. This one is by Walker Photography and I love how to makeup looks! I’m trying really hard to feel positive about the weight I’ve gained from being on steroids for my adrenal problems so I’m hoping the world can accept a disabled, plus size mermaid!

More of these to come when I recieve them.

okay but disabled boys are so beautiful and strong.

disabled boys are so amazing and are just as important as able-bodied men, they are perfect, please give disabled boys love, they need so much more than they get.