Chronic Illness PSA
Just because you see a chronically ill person doing A Fun Thing, it DOES NOT MEAN they’re no longer ill.
I went to a local show last weekend, an old friend’s band I hadn’t seen in years was playing.
I saved up my spoons for days, AND I’m still paying for it. It’s been almost a week, and I am still recovering.
But as soon as I got there, one of the guys I hadn’t seen in probably 7 years (who is a Facebook friend, and aware of my illness) asked if I was “Better” since I was out. Not just better. He asked if I wasn’t sick anymore. Simply because I showed up.
Granted, I pushed way harder than I should have, that night. I stayed out with them until 5:30 in the morning.
But that is not an accurate representation of what I am consistently capable of.
One fun night of pushing beyond the limits of chronic illness does not equate to Magically Cured.
It doesn’t mean I’ll be able to do it next time.
It doesn’t mean I stop being sick while I’m out.
It doesn’t mean I can go out and get a full time job.
It doesn’t mean I’m actually just blowing people off when I can’t do other things because of my health.
It doesn’t mean anything other than SOMETIMES SOME CHRONICALLY ILL PEOPLE DO FUN THINGS.
It is always, ALWAYS calculated, just as much, if not more, than every single thing we do every day.
Is it going to be worth it? How much pain am I likely to end up in? What complications am I going to run into while I’m out? (spoiler: there’s no way to know).
But if you think a chronically ill person should purposely reduce their life to isolation and illness, even on the beautiful rare days they can do something FUN, come at me Bro. I have a slew of words for you.
Being sick is difficult enough.
Let us enjoy the good days when we get them.
Don’t be an ignorant asshole.
Related note: don’t bitch at us for knowingly sending ourselves into a flare for doing something fun.
Like I said - it’s all calculated.
Some things are worth the flare, when we often flare for no fucking reason anyway.