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Sunday rundays are my favorite, especially when it’s nearly 70 degrees in November. Getting to run in shorts and tank top? No complaints here! My legs were super sore so it was a more relaxed run but I was just thankful for the perfect weather and opportunity to run

anonymous asked:

Hey! Just want to send you all the hugs and anony support possible. What's going on seriously sucks but I hope that things turn out as well as they possibly could. Here is to hoping for minimal anxiety, speedy operation scheduling, and an easy operation! :D

Thank you so much anon!

I was actually meant to hear from the (potential) surgeon today, but their office didn’t call. I see my GP (doctor) tomorrow morning, and I imagine she’ll chase that up then and hopefully we get an appointment to see him soon.

There’s a lot to come still. I can’t even get the blood tests done, because I need this rare blood test called a Chromogranin-A, where one of my medications that stops me from living with permanent gastritis, always gives a false positive. So I have to go off that medication for 10 days (and get gastritis, which is inflammation of the stomach lining, and hurts) so we can get an actual reading and not the false positive. (They also make you lie down quietly for thirty minutes before that test, it’s called a ‘resting blood test’ - they’ll take about 14 vials for other things as well).

So yeah I can’t get the blood tests done for at least another 10 days from going off that medication. Then the gastritis will need to heal.

I also need an MRI with MRA (angiography, basically an injection of a bunch of contrast material - means the test ends up lasting about 60-90 minutes), to potentially see my endocrinologist, and of course to see the surgeon himself.

So there’s lots of stuff. Because this is such a big surgery, they generally want a neurologist or neurosurgeon on board, because the risks of brain damage are phenomenal. (I was in ICU last time for almost a week, and most of that was monitoring for brain damage, more than anything else, it’s basically like a stroke recovery protocol), and lining up everyone’s schedules gets trickyyyy.

That being said, I get the sense things are moving faster this time than last time. I’m really hoping the surgery is done in the next few months, because I forgot how bad the anxiety is just kind of walking around thinking about the tumours in my neck all the time damn time.

Anyway, like you, I am very much hoping for minimal anxiety, speedy operation scheduling, and an easy operation!!! I would love to hear the surgeon say: ‘the risks of brain damage are way lower now that we have all of these wonderful techniques’ or some shit, I’m hanging out for a positive first meeting with him. He’s like the head of vascular surgery and runs the Perth Vascular Clinic so he’s one of the best. I just hope he takes my case. Some vascular surgeons refuse because of the risks. And most have never heard about this condition before.

~inbox interlude~

 a demandé à 



Hello. Does being autistic and ambiguous savant-ism count as well? I mean, don’t get me wrong, I don’t think I’m superior or anything but.. um.. I have a rather hard time getting along with people and utilizing social tact without using ‘oh’ and ‘um’. Erm, I guess I’m rather meticulous as well. Just curious.

I’d like to send an unambiguous message of “Welcome! I want you here! Of course you count! You all count and you’re all wonderful! Please stick around!” So let’s all pretend I’ve done that well, shall we.

Anonyme a demandé à gifted-problems :

I sort of need to ask, and I mean you guys are all like me right? So did you all start talking really really early and skip baby talk completely? Because I wouldn’t even say words until I could actually properly pronounce and use them, and was constructing complex sentences from an early age. I also wanted to ask if you all took a long time to start walking, because I did that, too.

I am indebted to my mother for the following information.

I started talking at six months, which is apparently really really early. By a year I was talking all the time, “more than you do now” (thank you mother). The story is that she took me for a checkup at twelve months and was asked how many words I spoke. She was completely floored: “it was like being asked how many words I spoke.”

One of my brothers started talking even earlier than that, saying “Coh” for “Coal” (the name of our rabbit) at like three or four months, which is really ridiculously early, so early that it didn’t even register that he was actually saying a word until after he had been saying it for weeks. (I was old enough that I can attest to this.)

My other brother, though, said “ball,” once, at nine months, and then didn’t talk again until he was two. And from then up to when he was about five, only my mother and I could really understand what he was saying; I remember translating for other people, even my father. My parents were pushed to put him in speech therapy, but they never did, and by the end of his kindergarten year it wasn’t noticeable or a problem at all, and hasn’t been since.

anonymous asked:

Right now I'm in the middle of waiting 6 months before getting a second ultrasound to see if I have a cyst or tumor in my breast and it's been hell for my anxiety. I can't even imagine what it must be like on your end especially having had to deal with it before. Just know we all love and will support you as much as we can <3

Good luck on the results! That’s a long time to wait, but I know sometimes there have to be those delays that are so infuriating. It really is hell on anxiety. I’ve been in a similar situation with that too (my mammograms/ultrasounds always throw up something, because I have a lot of scar tissue there). I’ll keep my fingers crossed for the best possible results for you. <3

And yeah the anxiety is infuriating. I’ve had a lot of surgeries in my life, and I’ve even had this stupid specific tumour before, but what I remember most at the moment is the surgeon - the best surgeon in the state - grasping my hands firmly after the surgery, looking me in the eyes, and saying gravely: You are so lucky to have to survived this surgery.

Because…I gotta say, that echoes now. It really does.



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