SOOOOO, saw my nutrition GI and GI surgeon today. Had to get my J tube pulled. 1. Feeds were failing badly and 2. she took the dressing off and since you know, lupus and mass steroids=shitty healing, the incision had opened up a lot. So she was like…"this thing is gone.bye.“ Pulled it right there. Wasn’t painful at all, just laughably gross. Getting a GJ placed, as I have the G tube anyways. So, that’s actually getting done tomorrow. I’m hoping I can get a button tube instead of the long one again. We’re only going to use the J for meds right now, and the G for venting. No feeds for awhile since i’ve failed like 5 formulas. She recommended home IV fluids for my POTS and home IV meds, and definitely TPN despite the far she hates TPN with a passion. The pyloroplasty healed nicely, though.
THEN, I saw my nutrition GI. He specifically manages my nutrition stuff for my gastroparesis. He’s hilarious as my rheum is, and also as tiny and energetic. He agreed TPN needs to be started ASAP. Agreed to handle the IV fluids unless Dr.K(my rheum) wants to, AND I could shit for joy over this, get me IV meds for home to use since I have a Hickman for everything else. IV Benadryl for my nausea, and hopefully zofran and whatever else they’ll approve that would be helpful for me to get IV. Tomorrow, I see my rheum and get my new GJ put in in IR at 2pm. May or may not get admitted to start TPN afterwards. We might do that whole process at home if my home health nurses are willing to do all the leg work to get all that bloodwork and stuff you need the first few days of TPN to figure out the fine details. So, yes. Good day overall. No spoons left, though.