This is kinda a wonky question, but I don't really understand all the controversy about Autism Speaks? Could you help me out if you know? If not that's totally cool thanks for acknowledging me. You're so cool omg
Pfft thank you xD
Too sum it up quickly here’s a video they made, with the narrator supposedly being autism itself (If you get upset easily don’t watch it (I can’t watch the full thing)
Former Autism Speaks board member Harry Slatkin, whose wife, Laura, continues to serve on the Board of Directors, stated in an interview with Town and Country while still a board member that sometimes he hoped their autistic son David would drown in the backyard pond rather than “suffer like this all his life.” Evidencing a pattern of similarly violent rhetoric, Autism Speaks is also responsible for the 2006 PSA “Autism Every Day“ in which their then Vice President states on camera that she considered putting her autistic daughter in the car and driving off a bridge, and that the only reason she refrained from doing so was because her other, non-autistic daughter would have been waiting for her at home—her autistic daughter was in the room as she made these statements. Furthermore, the producer of this PSA explicitly admitted that the film was intentionally staged to portray negative images of autistic people and their families.
Only four days following the release of “Autism Every Day,” pathologist Karen McCarron smothered her autistic daughter with a garbage bag. McCarron stated that she murdered Katie because her “autism had not been improving,” had thought about killing Katie, that made an earlier brief attempt at suffocation, wanted to cure Katie, thought killing Katie would make her “complete” in heaven, and wanted to live without autism and thus had to kill Katie. Investigators found that McCarron was obsessed with different treatments for Katie. (See People v. FRANK-McCARRON, 934 NE 2d 76 - Ill: Appellate Court, 3rd Dist. 2010.) Though it is not presently possible to draw a direct connection between Autism Speaks’ PSA and Katie’s murder, this crime and dozens like it only underscore how the kind of rhetoric that Autism Speaks favors only serves to recklessly endanger the lives of autistic people.
Autism Speaks also publicly supports the Judge Rotenberg Center, a group home for autistic and neurodivergent students that uses “treatments” like food and sleep deprivation and electric shock to try and train the residents into acting neurotypical. The center has changed states three times in an attempt to bypass regulation against abusive treatment, and their practices have resulted in the deaths of more than one student.
- Autism Speaks does not have a single autistic member on their board.
- Autism Speaks only spends 4% of their budget on “family services”.
- Much of Autism Speaks’ money goes toward research, and much of that research centers on finding a way to eliminate autism, and thus, autistics (which will likely be done through a prenatal test, in the same way that the Down’s Syndrome test is conducted).
- Autism Speaks produces advertisments, small films, etc. about what a burden autistic people are to society.
- Autism Speaks was responsible for “Autism Every Day”, which featured a member of their board talking about contemplating murder-suicide of her daughter in front of her daughter. This has now be removed from Autism Speaks’ Youtube channel.
- Autism Speaks is responsible for the atrocity known as “I am Autism”, a short film produced by the same person who directed the 3rd Harry Potter movie (yes, really) and features an ominous voice saying things like “I am autism…I know where you live…I work faster than pediatric AIDS, cancer, and diabetes combined…I will make sure your marriage fails.”
For further reading, here are a few resources about Autism Speaks:
- Say No to Autism Speaks
- I’m Autistic, But Autism Speaks Doesn’t Speak for Me.
- An Autistic Speaks about Autism Speaks.
- A Chart Regarding Autism Speaks’ Allocation of Funds
- ASAN’s flyer regarding Autism Speaks (this is easily printable and is good for distributing information quickly).
Here are a few other terrible things that Autism Speaks has done recently.
- This woman’s job offer was rescinded after she asked Autism Speaks for accommodations in caring for her autistic son. They refused, and she made necessary accommodations for childcare, but they withdrew her offer anyways.
- Autism Speaks shared the news of Google removing hate speech regarding autistics from Google’s autofill feature, completely erasing any mention of autistic people’s flashblogs having anything to do with the change. It was only after a member of the autism community (and not a parent, but an autistic person themselves) spoke with a reporter about the flashblog and a statement was released to the media that Google decided to make this change.
- Autism Speaks highlighted AAC use, while erasing those those who actually use AAC devices to communicate. The focus was on the caretakers, not on the autistic people themselves. (The attached link has a link to a rebuttal by a nonspeaking autistic person, Amy Sequenzia).
In short: Its a hate group disguised as a charity and my god I want it to end