ewing's-sarcoma

I’m so glad to have eyebrows, eyelashes & hair again!!

I know I am always doing face progress but it’s not just for the weight loss.

It amazes me to look back on the face that I wore for 2 years - it almost feels like without the pictures it wouldn’t be real

The pic on the left was taken the weekend we celebrated me finishing chemotherapy 6th of July 2013 and the second pic was taken last week so just over a year between them

That pic of the left was truly all the chemotherapy I could have taken, my body just could not take anymore.

My leg is not totally fixed even after 4 surgeries, but I spent 3 hours dancing at Lady Gaga’s artRAVE tonight so I am definitely making progress even if it is sore.

You are constantly faced with obstacles but you need to just take them one at a time and know that even when it doesn’t feel like it things will get better

Sopravvissuta al sarcoma di Ewing, conquista un ripido pendio usando le stampelle

Nikki Bradley è una ragazza forte. Anzi, fortissima. Perché lo diciamo con così tanta sicurezza? Bèh prima di tutto perché Nikki ha una storia molto difficile dietro a sè.

A 16 anni le fu diagnosticato il temibile Sarcoma di Ewing, rara forma di neoplasia che rientra nella categoria dei sarcomi ossei. La chemioterapia è la risposta medica, ma spesso la malattia lascia tracce perenni sul corpo, e nel caso di Nikki parliamo dell’obbligo di utilizzare delle stampelle in caso di attività fisica sostenuta. A 26 anni Nikki aveva già sostituito la sua anca per la seconda volta nella vita, diventando un caso rarissimo: i medici le dissero che solo una decina di persone come lei erano sopravvissute a questa serie di eventi.

Nikki Bradley (foto Instagram)

Nikki, che è anche una testimonial e un’oratrice per numerose iniziative attinenti alla lotta al sarcoma e altre malattie similari, non ha voluto rinunciare allo sport. Così, armata delle sue personali stampelle, è andata a cercarsi un impervio sentiero nel nord dell’Irlanda, nella zona detta Sturrall Headland. La camminata, su un tracciato molto stretto e ripido, è affacciata su uno strapiombo di 180 metri. Sotto, il freddo oceano atlantico.


Un video di Caters ha immortalato l’impresa di Nikki, che ha portato il suo fisico al limite su un sentiero che è per altro scivoloso e friabile. La ragazza, che è nata in Irlanda e che quindi si trovava comunque a casa, ha però percorso la strada davanti a lei senza alcun tipo di esitazione, diventando quindi istantaneamente un esempio da seguire per chiunque; non solo i malati di Sarcoma di Ewing ma pure tutti quelli che per un motivo o per l’altro credono di non essere sufficientemente attrezzati fisicamente per compiere tale sforzo.

Nikki Bradley (foto di @emmaconnell)
2

   Some players crave the spotlight. Others quietly go about their business, seeking the satisfaction that comes with a job well done. 
   Then there are those who attempt to deflect attention, not needing or wanting recognition for their compassion or concern. But sometimes that is impossible, particularly when a good deed or special event becomes known. That was the case of the special bond between Steve Yzerman and a young girl afflicted with Ewings Sarcoma, a form of bone cancer.

Keep reading

Pediatric Rotation

Oh man. That was a crazy 6 weeks. 

I started on inpatient wards. Let me tell you, waking up at 5am is no easy feat. I’m not looking forward to the early mornings on surgery.

Originally posted by pokemoncap

Anyway- here’s the stuff I saw a lot on inpatient peds!

RSV- respiratory track infections
Cystic Fibrosis exacerbations
MRSA
Hyperbilirubinemia
Asthma exacerbations
Bronchiolitis
Meningitis (I only saw viral, but we do full sepsis workup on these patients anyway)
Weird rashes
Snake bites!??!!?

Here’s the thing about doing peds in the summer- kids aren’t super sick because they aren’t in school and therefore aren’t giving each other a bunch of germs. Census was super low, so I didn’t see as much as I would have if I’d done it in, say, october-february. 

Here’s what I had in my White Coat- snacks, chapstick, Maxwell’s pocket guide (incredible resource if you have no clue what you’re doing), tongue depressors, stethoscope, alcohol pads (to clean your steth between patients and to get rid of stickiness on kids), gloves, pens, notepad

Next week was Heme/Onc. I thought this week was going to be really sad, but it wasn’t! We can actually do a LOT for these kids! Know the differences between ALL, AML, CLL, CML, Hodgkin and non-hodgkin lymphoma. Sickle Cell disease is super high yield in real life as well as on boards. Who knew? Also- bone cancer. Not crazy high yield, but I definitely saw Ewing Sarcoma in a kiddo or two. 

Mother/Baby Unit- NEWBORNS! Oh man. Things to know- developmental milestones, how to do a newborn exam, newborn reflexes, how to take a pregnancy/labor/delivery history, how to manage hyperbilirubinemia and premies and SGA babies and infants of diabetic mothers. Wear gloves when you touch the babies. We even got to go down and see some high risk deliveries/c-sections and do a little resuscitation. “Warm and dry! Warm and dry!” Babies breathe fast, so don’t get overwhelmed if you can’t distinguish breath sounds from heart murmurs. 

Originally posted by doctorfowler24601

Outpatient…. I didn’t enjoy outpatient as much. It’s a lot of patient management, which isn’t my favorite. I did Adolescent medicine (think ages 10-25). A lot of eating disorders. A lot of patients lying to you. A lot of talking about depression, anxiety, and sex. Not a lot of procedures. Not a lot of action. A LOT of talking. A WHOLE LOT OF TALKING. Things to know- HEADS history questions

Endocrine outpatient was a lot better! This is where I saw some cool cases. A lot of diabetes and hypothyroidism, but some other stuff like short stature, panhypopituitarism, precocious puberty, graves disease, etc… I also lucked out, because the docs on endocrine here really liked to teach.

As far as the shelf exam went… it was SUPER random. But here are some general things to know that will help you in peds

Calculate maintenance fluid
Memorize developmental milestones
Know the vaccine schedule
Calculate how much a baby should weigh
Calculate Ins and Outs
Newborn exam
SWU (sepsis workup)
How to manage dehydration
Most common causes of meningitis and pneumonia in different age ranges

Did You Know? Jax 2

For Jaximus’ Movement Quote “Here’s to you, kid”, he’s referring to a 17-year old named Joe, who suffered from Ewing’s Sarcoma. He got a chance to visit Riot thanks to the Make a Wish Foundation and passed away on June 5th, 2012. The Jaximus skin was also his favorite, as it went on sale from May 4th to May 18th and all revenue went to the Make a Wish Foundation.

For Kyle♥

 

I’m not sure if you remember me posting about him before, but he’s got his own page on my blog so, yeah. But this is Kyle. In Winter of 2009 he was diagnosed with Ewing’s Sarcoma, cancer. Before that, he was the happiest person anyone could ever meet. He had amazing grades, he was a great singer. Everyone loved him. He was just an amazing kid. And one of my best friends. When he was diagnosed, his mom needed to tell the school. And the school made an announcement… I was so devastated. The school made bracelets about him, everyone sent him cards and he was an instant celebrity. He was so brave and strong. He recovered and came back for the 2010-2011 school year. Everyone was so happy. I was SOO happy to see him join chorus again. My partner in crime (: We had the best year last school year accept for the whole thing with his girlfriend. We had science together and he was just as I remembered him. We left that school-year to move onto the high school. He was so excited. Now, at the end of my summer. I hear that he is back in the hospital. The cancer came back. I’m not able to sleep tonight because I’m so worried about him. So, so worried. I’m bawling my eyes out as I’m typing this. I just can’t imagine high school without my partner in crime there with me. He knows he has his own page on my blog. This would be amazing if this got notes. So I could be proud and show him that he isn’t as alone as he feels. He’s talking about suicide guys. Please, I just want this to get notes. Purely for Kyle. Because this kid is my best friend. And he needs to find strength.♥

I love you Kyle. 

-Megan.

anonymous asked:

I've been battling Ewing's Sarcoma for nearly a year and a half, and it hasn't been going great. This page has really become a release for me. Whenever I'm feeling sorry for myself I realize that every day above the ground is an opportunity to turn someones day around. Thank you for helping me realize that.

Dear anon, let me just say - wow.. You’re such a strong person. Such an inspiration. I really hope wherever you are that you’re going strong, and I hope that you will win this fight! Lots of love and strength from me to you, Xx Aster

Fuck 😔

So I saw my orthopedic surgeon today, they did an xray on my leg and looks as if there are some issues. On the xray the top end of my tibial rod near my knee has shifted and like hollowed out a section of bone around it and also looks as if there is a fracture near my knee joint. So the most likely scenario is that the non-Union point in my leg caused the instability and movement which is causing so much pain, they also want to look into if there is any infection which could be bad. Lastly there is always a small chance that there could be a recurrent tumor in my leg, they said it is highly unlikely but they obvs can never rule it out. So now I am having a CT scan on Monday where they will wrap me in lead to protect bub from radiation and will find out next Wednesday what has happened and what the plan of action is. Regardless I am on two crutches again. So yeah pretty shit & scary afternoon 😔

Please don’t be another cancer

youtube

Humansareawesome submitted to faithinhumanityr.

Thank you so much for submitting this, this is amazing!

Chemo round 1: Ding Ding Ding!

So I’m currently laying in bed, about two hours into my first round of chemo, annnnd its an interesting experience. To start they told me I would be out be able to go home tonight and come back tomorrow to get my chemo injection taken out (they give it to me over 24 hours to make it easier on my heart) then they told me I have to stay in the hospital until Saturday morning, fine whatever. Now I have to stay until Sunday morning, suck, but again, whatever. Back to chemo though, its an odd, sort of paradoxical experience. Take right this instance for example, I’m laying in a fairly comfortable bed, in my own clothes, watching episodes of The Daily Show and videos of Watsky performing spoken word poetry. They have a huge list of movies I can watch, theres a cafeteria with food I can order anytime I want, I can get up and sit in a chair, walk around the floor, go to the bathroom, anything I want, and I feel fine. Yet at the same time, as a constant reminder that you are in fact, well dying, is this big pole with bags of poison that are being pumped directly into the largest artery in your body. By the way, I am fascinated by this port in my aorta, there’s this piece of machinery inside of me that allows instant access to my aorta, which would probably be great if I was a heroine addict. It also means I only have to be stuck once per visit, no IV’s to draw blood or inject drugs, they access the port once and im done! It didn’t even hurt to access, it’s amazing. Anyway, thats all I wanted to say, chemo is odd, carry on everyone.

Some people

So there is a family member of mine that has had a lot of personal issues lately and I have been dragged into the mix as her comparison for pain.

Anyways she has summed up my last 2 years as “early stage low grade bone cancer that hadn’t even spread yet”

It never ceases to amaze me what some people allow to come out of their mouths…..

2

Greensboro Girl Who Battled Cancer, Got To Meet Taylor Swift Dies:

Olivia Dunn dies after year and half battle with bone cancer.

Almost 10 months after getting her wish to meet Taylor Swift, 11-year-old Olivia Dunn has died. Olivia’s family posted the sad news Sunday on a prayer Facebook page for Olivia.

Tara Dunn, Olivia’s mom, confirmed she died just after 6pm Sunday night. Dunn tells WFMY News 2

“Sadly our baby girl got her wings last night”

WFMY News 2 first brought you Olivia’s story in October 2015. The Greensboro girl was battling bone cancer. One of her last wishes was to meet Swift during her Greensboro tour stop in October 2015. The wish was granted and 10-year-old Olivia’s night was made, her mom told WFMY News 2 after the concert.

Olivia told WFMY News 2 just like her favorite Swift song “Wildest Dream” her wish came true. She was able to meet Swift before the concert.

Olivia was diagnosed with Ewing Sarcoma Stage 4 bone cancer in Spring 2015.

The family documented Olivia’s last days and her fight until the end on a Facebook page, Prayers for Olivia Dunn.

Tara Dunn said Olivia’s favorite Bible scripture was:

“I can do all things through Christ who strengthens me.”–Philippians 4:13

I'm No Superman

There has recently been a major development in my life, one which I have announced on every social media except Tumblr. Don’t worry, that’s only because I haven’t been an active user for a while, nothing personal Tumblr followers whom I do not know and have never met. But about this life altering event, I am simultaneously torn between wanting to blog my way through my experience with Tumblr, and not wanting to acknowledge it in at least one small aspect of my life that I can control. One part wanting to work through it and one part wanting to deny it for the small amounts of time that I can. The nature of my problem does not lend itself to such endeavors however and I can’t ignore this new development. I guess what I’m trying to say is that for my own well being I need to try to work my way through this and stay positive about it. I’m not an open person, I like that about myself, and I like that I don’t have many people I actually know following me on Tumblr, in fact I’ve thought about blocking anyone I know to make this easier for me (jury’s still out on that one real friends, but you may never know that). I feel like, I’ve been told that, I will need a place to relieve the stress though, and this is as good a place as any for that. But more than for my current self I want to document this time in my life for my future self, I want to be able to look back on this time in my life and see how far I’ve come, I will have earned that…

So what am I being so melodramatic about? Good question me, allow me to fill you in. About two weeks ago I was diagnosed with Ewing’s Sarcoma Cancer. Thought I had a bulging disk, had an MRI, got a phone call that I needed to see a specialist, boom. Cancer. It still doesn’t feel like its actually happening to me, because even though cancer is so prevalent anymore, it just doesn’t happen to real people ya know? It sure as hell doesn’t happen to 18 year old males who are trying to finish up their fist semester of college. Whatever, we caught it early, it hasn’t spread to any other parts of my body, I start chemo next Thursday, and i’m going to kick cancer’s ass. I hope you don’t mind me bitching to you about it, and I apologize about the preachyness that permeates this post and any that follow (including the title, that song came on while I was typing this and the irony made me laugh) but hey, fuck you, I’ve earned it, I do have cancer after all.

Today’s going to be a tough day and I just have to accept that

As I make my way through chemo treatment, I’ve come to realize that you never really get use to it. You can predict how you’re going to feel, you can even accept it, but you can’t make it go away. It’s been six months since I’ve started the good fight and I still despise my body and my mind when the chemo makes it difficult to do simple, every day tasks. Simply being awake, trying to think makes me feel sick. 

And of course there’s so much I want to do after being away from home for five days. There’s chores that need to get done, and cleaning. But when I try, my body just gives. Doing the dishes is like running a marathon. Chemo, although it does destroy the cancer, is technically poisoning my body and the only thing I can do for that is rest. It’s day like these that I really can’t wait to be finished. I’m just so tired of being tired.