To know my journey as a Black disabled woman, you have to know my past.  

I was born with OI (Osteogenesis Imperfecta), better known as brittle bones disease.  My beloved Grandmother raised me in a loving home, & showed me what unconditional love was about.  I have part of her name, & have always been proud of that name - Vilissa.  Unbeknownst to me until I reached adulthood, Vilissa is French, & means, “to love & cherish life.”  How fitting of a name for a young disabled Black girl who was smart, caring, loving, fun, kind-hearted, sassy, loved to learn, & knew how special she was by the praise she received at home, at school, and from those she met.  

The young Vilissa would experience many successes as she went through school, which empowered her because she knew she was just as good, if not better, as anyone else.  Her excelling in every subject motivated her to do well in the subjects she loved - reading & writing.  She had no idea how powerful words would be to her as an adult, but at this time, she loved reading her Baby-Sitters Club books, & writing in countless journals, sometimes creating worlds & characters that didn’t exist, but her imagination & ability to tell a story grew profoundly.  

As I grew into my teen & adult years, I changed in ways that I didn’t imagine, but the loving, supportive foundation I had in my younger years caused me to be steadfast as I grew & navigated an able-bodied society.

This is Part 1, showing my years from 1st birthday to 12 years old.  


Adventure Time - by Wojtek Fus

“Something completely different for a change! This piece was done for a charity auction, it will be printed on a quality paper, framed and auctioned! The money will help kids with disabilities get access to quality equipment in their education process.  I was really honored to contribute to this beautiful event hosted by the amazing people at Polska Grafika Cyfrowa (http://polskagrafikacyfrowa.pl/)!

Big thanks to my bro in arts Mathias Zamecki helping my stubborn mind understand stylized imagery a little better.”

can we talk about disabled garde kids getting legacies that match their disability, as if the “nature” of legacies “make up” for their disability?

  • blind garde getting a light manipulation legacy / night vision
  • deaf garde getting a voice manipulation legacy
  • a garde on a wheel chair getting flight legacy
  • blind color garde getting a color manipulation legacy
  • another garde on a wheel chair getting super speed legacy
  • a garde with amnesia getting a legacy of perfect memory
  • a garde with insomnia getting a precognition legacy

(feel free to add more because I can’t think of something else)

anonymous asked:

A child porn studio just got busted in Russia. It was in an orphanage for mentally disabled kids. You know, every time I stumble upon a "daddy dom" blog and see this "daddy content" set in a vaguely Eastern European interior, I know for sure it's CP, and I want everyone else to understand that too. No, it's not a very pedomorphic adult woman roleplaying a kid. It IS a kid.

I agree with this. Many Eastern European women and children live in poverty thanks to what the EU and capitalism are doing, so this is a “great” place for porn studios. They love poor women and children, because they’re easier to exploit. :(

the power of a story

sometimes I am not sure about telling stories about growing up as a disabled kid, but then, I do and people respond by sharing their own suffering in a way that is like they’ve been holding their breath, holding on to the weight of the story this whole time, waiting for a chance to tell it. I guess that’s a natural impulse.


(via https://www.youtube.com/watch?v=3byhRLfNSmc) #KingstonProject https://youtu.be/3byhRLfNSmc Please repost! by Alyssa Papaleo Photography To Donate: www.gofundme.com/Kingstonproject

So I was at the park…

And remember, between being an autistic activist and being an educator, I am automatically suspicious of parents anyway.

I’m even more suspicious of parents who let their autistic son who is clearly late elementary/early middle school roam the park by himself. Like what the hell is wrong with some parents? I don’t care if your kid is disabled or not, if they are not in their mid to late teens, they need to at least be within eyesight of an adult they know. Not saying they need to be right next to you 100% of the time because a lot of autism parents are helicopter parents and need to calm the hell down but there is a line between helicopter parent and letting your kid just roam free where you can’t see them.

I will never understand the logic behind saying a mother should’ve pulled her son out of the store and sat him down then gone back to shopping after he had a three second drop seizure. He’s 16, he has cerebral palsy and epilepsy, and he’s completely fine after the seizure happens. It’s a regular enough occurrence, and he’s disabled, not useless.

A mother is trying to teach her 16y.o son independence, so she gives him his own trolley and $20 when they go to Coles supermarket so he can buy what he wants. The mother said there’s no sense leaving him on a couch for the rest of his life.

The kid had a three second seizure where he falls to the ground then gets back up. He was happy to go back to shopping after another customer helped him up, but no. A Coles staff member — after the mother went to the front desk — then proceeded to blow the whole thing out of the water by yelling at the mother for ‘leaving her son alone.’

He apparently even apologised to his own mother for having the seizure — something he can’t control.

Can I punch the staff member?

anonymous asked:

My pro life friend always says that aborting babies that have fatal diseases or disabilities that prevent them from having a quality of life is ableist because it assumes that disabled people can't have good lives. Is there any good way I could respond?

Hi friend!

Basically, there are a few different arguments you can make that are all valid and important:

A) Why someone has an abortion is no one’s business-if someone does not want to be pregnant, they should not have to be pregnant, and they do not owe anyone an explanation for why. 

B) The cause of ableism is not pregnant people having abortions because they don’t want disabled kids, but rather a symptom. If ableism is really your friends concern, they should be fighting for accessibility (think of the number of places that are not accessible to someone who is blind, deaf, in a wheelchair, uses walking aids, etc.) in locations, homes, and jobs-not telling pregnant people whether or not they should remain pregnant. Outlawing abortion won’t end ableism-it needs to be ended from the roots, like all oppression, treating the symptom without addressing the cause won’t do shit. 

C) Disabled people, and their struggles are not a fucking fall back, “gotcha” argument, to be used on a whim to further antichoice people’s fight to control other people’s bodies. 

D) This is more of an elaboration of C, but still: You can always ask, “what have you done for the disabled community?” “Do you support socialized healthcare, which is fundamental for disabled people, since many are low income and unable to afford the health care they need, and/or are in debt from having to buy things related to their health?” “Do you support motions that would make spaces more accessible?” Etc. Normally by this point, they’ll have dropped the subject. 

Hope this helps, friend! 


How To Be Inclusive

I heard about something pretty amazing today.

My mom’s friend runs a preschool, one that used to be owned by the church she attends, which she purchased when the church was planning to close it.

She is an amazingly compassionate woman, and she does her best to run the school the very best that she can. She’s always been good with kids, so she does an AMAZING job, and she and her staff provide these kids with awesome care.

However, this year, they have the highest occurrence of disability in their student body that the school has ever had. Since there was at least one or two disabled kids in every class, she knew that the school was going to have to make some adjustments to accommodate those kids.

At the beginning of the year, she took the teachers aside to let them know the game plan. She said, “What are you going to do to open your classroom to them? The point is not how you’re going to make them behave, but how you’re going to accommodate and include them, and address their individual needs.”

My mom went to the school to go take class pictures for them. During one of the candid sessions, an autistic boy in one of the classes went into sensory overload and had a meltdown. One of the things this kid was good at was handwriting, and memorizing the names of his classmates. So to help calm him down, the teacher took him aside with his chalk, and had him write down the names of his classmates until he calmed. He was doing great, spelling each name perfectly in handwriting that was pretty impeccable for a preschooler, until he accidentally added an extra letter to one of the names. That sent him into sensory overload again, and he started to break down, but the teacher helped him to start over and continue writing the names. Eventually, he calmed down, and was able to carry on his day. They also allowed this boy to wear his weighted vest to school, since they knew that it would help manage some of the overload.

That was pretty amazing to me. I know that autistic kids tend to pick some skills up super early, like I learned how to read on my own before I was 3, but reading was a much more inconspicuous stim than writing out a list of names, so I wasn’t discouraged from it. Writing down names seems like the sort of odd stim that any average, uneducated teacher would try to prohibit the child from doing in an attempt to force them to feign neurodivergence. But instead of his stim being taken from him, this little boy was instead encouraged to use his skills, his stim, to bring him out of a meltdown. Instead of restricting the stim, the teacher had learned to use it to the advantage of both the student and the teacher, helping to calm the boy without causing too much of a scene.

I could hardly believe what I was hearing when my mom told me what had happened during her visit. I spent so many years having my stims discouraged… Braiding and unbraiding my hair was distracting, sucking on my skin was improper, biting my nails was unladylike, chomping down on my hand was frightening to others, bouncing my foot was annoying, so on and so forth. I imagined a scenario in which my stims had been adapted to work in a healthy manner rather than them being stolen from me, and it was beautiful. If someone had only redirected me in a healthy way, allowed me to stim and self-soothe, then I would be a lot better off than I currently am. It was almost unimaginable.

Basically, what this woman has implemented in her school is enabling the students. The kids are being taught to use aspects of their disabilities to their advantage, rather than being taught to loathe themselves and suppress their unique qualities. The way that this is allowing the kids to grow is absolutely astonishing, and I can hardly believe that these kids are finally able to get a better start, a better first push when it comes to education.

The simple act of being willing to understand a disabled person can make all the difference for someone, and make their future a lot brighter. This boy’s being taught to embrace his disability and use it to his advantage. He’s being taught to solve these problems and curb these meltdowns without using violent methods, and he’s not being forced to pretend that he’s neurotypical. He’s being allowed to grow up as he should, and it’s absolutely amazing.

A little understanding goes a long way in inclusion, as evidenced by this scenario. By allowing this boy to be himself, they were able to work with him, and use things that would normally be seen as undesirable to help him soothe himself and return to play, and also learn from the experience. If more teachers were willing to doing this, then, well, we’d be doing quite well where inclusion’s concerned.

“Ask yourself, ‘what can I do to help them?’, not how you can make them conform.” Pretty solid life advice right there, especially for teachers dealing with disabled kids!!!!

anonymous asked:

For some reason wherever I go I always seem to attract other developmentally disabled kids? Not just Autistics. They're nice and easier to socialize with but it's an odd phenomenon. Do we all just have a raydar for each other? Is this an experience anyone else shares?

i used to do that in elementary school, before they segregated us in high school. from my experience, dd folks do tend to gravitate together

i hated when sammy classic sonic fan was a meme because it just shows how quickly, easily and guiltlessly adults will make fun of children who display autistic symptoms. i mean, even though he said he wasnt really autistic, everyone thought he was and thats why people laughed at him.

its really discouraging for the autistic community seeing harrassment and mockery of autistic youth being made into a normalized thing, a meme even.

even today, i see people posting videos of kids having meltdowns for others to ogle at and autistic children being displayed as grotesque caricatures in media (which usually only point out the “”“bad parts”“” of autism and uncreatively go on about how theyre ‘weird’).

worryingly, most of the offensive media is adults entertainment, further proving how a lot of adults enjoy laughing at disabled children.

this isnt a good thing to normalise! disabled kids shouldnt be a punchline! EVER! the only people who can even consider making jokes about disabled kids ARE disabled kids in reference to themselves, if it helps them cope with it (self depreciating humor has helped me get through a lot of rough patches somehow)

please, if you see a post or whatever making fun of an autistic traits in children (such as obsessing over things[such as the classic ‘horse girl’ posts], getting extremely emotional easily [post about 'bratty children’ people have seen], or speaking in a strange way to name a few) dont reblog it unless youre pointing out that its bad or you’re an autistic child yourself.