anonymous asked:

How did you go about getting diagnosed with fibromyalgia?

Hey, it was a 2 year road of hit and misses. Initially I was put on the contraceptive pill then went in for a small operation, thinking it was endometriosis, by then the pain had spread all over my body and it was through tumblr I saw people mentioning the word fibro and as I looked into it, it fit my life.

After the op showed I was clear for any growths besides one cyst on my ovary, I bought up the idea with my Dr, if it could be fibro. He thought a lot of my symptoms fit but he wasn’t comfortable with diagnosing so referred me to a rhuematologist (they are the arthritis type doctors, their specialty). 2 months & many miles & dollars spent, I met with him who spent 10 minutes with me, poked my back and shoulders, stretched my leg out and asked me a few questions about my sleeping, and gave me the diagnosis.

YOU HAVE TO SCREAM IT OUT. I was fortunate enough to be referred without much fuss, I had a very kind man as my doctor who cared about me being in pain (the years previously he had been trying to stabilise my depression, hospitals, meds, and then recently given me meds to try and help). If yours isn’t listening, demand the care you deserve. get a second or third opinion, request a referral, track down a rhumatologist and don’t stop fighting to be heard and acknowledged for treatment. Also, be brutally honest, mention constipation and diziness and stiffness and fatigue and headaches and absolutely EVERY symptom you have on a regular basis xxxxxxxx

My story isn’t that great so maybe scrolling through older asks on the subject be helpful – press here.

Don’t tell me I talk about my illness too much. Every movement. Every breath. Is a reminder that I’m not ok. That I may never succeed.That I can’t do things that normal people do. That everyday is a struggle. Never ever tell me I talk about it too much.

5

So today is autism awareness day!

To say it short, I have always felt different from the other kids. I had a different mind, different interests and a different way of doing things, which left me to be the victim of bullying and teasing from kindergarden, and way into 6th grade. When I was little, I resorted to physical violence as a way of getting out my anger, which I proudly haven’t done in many years now. When I was 10 or 11 years old, I was diagnosed with aspergers syndrome. When I was 12, I started in a class specifically for people with a diagnosis, which gave me many great friends, but unfortunately also left me severely lacking proper education, so after much thought, I left the class when I was 14, and started in a “normal class” with my mind set to finishing elementary school with good grades.

People have always been using my diagnosis as something negative, but recently I have grown to admire it. After all, without it, I don’t think I would have the same interests as I do, and without the interests, I would probably not have the same amazing friends that I have, who support me and encourages me in every possible way. Along with that, I’d like to think that many of the greatest minds of this world, and many of them whom I admire, have had this diagnosis; Nikola Tesla and Albert Einstein are both very much assumed to have had aspergers, and I look up to them both a great deal.

I have included some selfies, as it is also “autism selfie day”, and a silly picture of me and my almost 7-year-old baby brother who have had his ADHD diagnosis for about one year now. Happy autism awareness day!

ok so a lot of douchebags on my posts supporting self diagnosis are saying that there is just no point to self diagnosing, that if you can’t get medication/therapy/help they think disabled people should be getting whats the point?

like do you all know what it’s like to find community when you are so alienated by the world? do you know what its like to finally understand yourself and know why you do things differently? do you know what its like to be able to have a base point from which you can work out what you can do to survive?

surviving as a disabled person isn;t just about the medical side, the social and personal aspects are so vital and thats why self diagnosis is not pointless have a nice day

This is like coming out for the second time……..

So Kevin did a thing here : http://kevinreader.tumblr.com/post/110031219287/myfirstyearbeinghivpositive

Let’s see if I can string a sentence together in a somewhat eloquent fashion to try and share my side of this story too. My experiences have been similar yet different to Kevin’s. I sit outside and observe some parts of his story, there are some chapters I am intimately involved in and others that are mine alone. Most importantly, there are parts of the story that we continue to write together.

I remember filling out the survey at the Midsumma Carnival last year and thinking “there’s no need for me to tick the YES box to get a call back with my results”. A few minutes after filling out the survey I’d forgotten all about it and it never passed my mind again…..
                                                               …..until three weeks later.

I was sitting at my desk at work, and saw Kevin’s number come up on my caller ID. It’s not uncommon for us to call each other during the day, but when I answered the phone and got silence on the other end, I knew something was wrong. I asked him if he was ok, and he barely got out the word NO. He managed to tell me that he’d had a phone call and been told he has to get tested. I remember him clearly saying “I think I’m HIV positive” in such a stunned and frightened voice that my whole body nearly collapsed from under me. I logged out of my computer and was in a taxi rushing home in a few minutes. 

Keep reading

ADHD Self Diagnosis

ADHD diagnosis has five components: symptoms, age of onset, generalization, impact, and differentiation. Here’s how I’d suggest assessing all five components.

1. Symptoms

Do you have enough symptoms of ADHD often enough? Doctors use a questionnaire like this, but it can be complicated to score. An online quiz will ask similar questions but score it for you.

2. Age of Onset

Since ADHD is a neurodevelopmental disorder, it has to have been present as your brain developed—before age 12. (The only exception is if you have secondary ADHD from a traumatic brain injury—you definitely should not be self-diagnosing a traumatic brain injury. Go to the hospital! Now!)

Ask family member, friends, and old teachers what you were like before age 12. Did you get in trouble for talking out of turn or getting out of your seat in the middle of class? Was your room always a mess? Did you often injure yourself attempting daredevil stunts? Did you daydream when you should have been thinking about other things? Did you have a hard time memorizing times tables and spelling even though you didn’t generally have trouble with math and writing? All those things point to ADHD symptoms in childhood.

3. Generalization

Are most of the symptoms that you discovered in part 1 present in at least two parts of your life? For example, if you have trouble paying attention in classes but not paying attention to films, conversations, or cooking, you might just have boring classes. If you’re only hyper and impulsive with your friends but not in other situations, you might just have a high-energy friend group. In other words, if you think you have ADHD, do you always feel you have ADHD, or do you only feel like you have ADHD in one situation?

4. Impact

Is there “clear evidence that the symptoms interfere with, or reduce the quality of, social, school, or work functioning”? Are your grades worse than they should be? Have you lost friends because you’ve insulted them without thinking? Have you been reprimanded for inattention or forgetfulness at work? Have you caused multiple car accidents or gotten several traffic citations? Basically, are these ADHD symptoms causing you actual problems?

5. Differentiation

This is the part that everyone skips over, and it is the most important. ADHD symptoms are not unique. Many physical and mental health problems can cause the exact same symptoms. You need to check out these too. For example, if you are getting less than eight hours of sleep a night, you’re basically giving yourself ADHD. Put your phone on blocking mode, place the phone far away from your bed, and go the f—— to sleep!

If you can, go to your doctor and get some blood tests: a Comprehensive Metabolic Panel, a Complete Blood Count, and a Thyroid Panel. Those tests should identify quite a few of the physical disorders that can cause ADHD symptoms. Have your vision (near, far, and astigmatism), hearing, and auditory processing checked. Sleep disorders are another thing you should look into if putting your f——ing phone down isn’t solving your sleep problems.

For mental health problems, I’d recommend taking a few screening quizzes; here are links to one for depression, one for anxiety, one for OCD, one for bipolar disorder, and one for sensory processing disorder. It is entirely possible to mistake one of these conditions for ADHD, and it is entirely possible to have one of these conditions and ADHD. If your score suggests a high probability that you have one of these conditions, check out mentalillnessmouse for information on what to do next.

Autism and learning disabilities can also be mistaken for ADHD, and they are both really complicated. Here are some steps for figuring out whether your symptoms are better explained by autism. There are so many learning disabilities that it is hard to link to a quiz—schools usually have the resources for learning disability diagnoses, and an educational psychologist is the person to see about learning disability diagnosis if you’re not in school.

Yes, this is a lot of work.

Diagnosis is complicated and takes time. Understanding yourself and your brain is worth it, though!

—Elise

Our current diagnostic system — the main achievement of the biomedical revolution in psychiatry — drew a sharp , clear line between those who were sick and those who were well, and that line was determined by science. The system started with the behavior of persons, and sorted them into types. That approach sank deep roots into our culture, possibly because sorting ourselves into different kinds of people comes naturally to us.

The institute is rejecting this system because it does not lead to useful research. It is starting afresh, with a focus on how the brain and its trillions of synaptic connections work. The British Psychological Society rejects the centrality of diagnosis for seemingly quite different reasons — among them, because defining people by a devastating label may not help them.

Both approaches recognize that mental illnesses are complex individual responses — less like hypothyroidism, in which you fall ill because your body does not secrete enough thyroid hormone, and more like metabolic syndrome, in which a collection of unrelated risk factors (high blood pressure, body fat around the waist) increases your chance of heart disease.

The implications are that social experience plays a significant role in who becomes mentally ill, when they fall ill and how their illness unfolds. We should view illness as caused not only by brain deficits but also by abuse, deprivation and inequality, which alter the way brains behave. Illness thus requires social interventions, not just pharmacological ones.