To that one person posting about diabetes being troublesome for a SO: I used to think similarly about relationships. That me and my diabetes would be too much of a burden or that they’d worry excessively to the point that I couldn’t stand it. But I found someone special who loves me incredibly regardless. He worries (but not excessively), he helps me out with it when I need it, keeps an eye on me when I’m feeling off, comforts me, and even helps me research! He doesn’t care about my illness being troublesome, he loves me and just wants me to be ok and be able to help me. So I just wanted to let you know that relationships aren’t impossible with diabetes.

I really didn’t want to hijack somebody’s vent, when they’re obviously dealing with more than enough problems already. But, this is an unfortunately good example of where some popular rhetoric about cures and fighting what’s presented as some kind of malevolent force can lead.

This isn’t one of the posts I was looking for, but there’s some good discussion here about this. If “hope” keeps getting presented as the prospect of recovering from something that’s unlikely to ever happen with? It can get a little too easy for life not to seem worthwhile, when it becomes obvious that just isn’t a battle it’s possible to win–and nobody is offering other alternatives between “recovery” and having a terrible life.

(That applies to any kind of disability or chronic condition, BTW.)

Beyond the fact that it would have to get exhausting and discouraging to feel like you needed to fight constantly, or too often get blamed for “giving up” when that is just not sustainable. That’s bad enough when what you’re supposed to be fighting isn’t your own body/mind. Setting up an adversarial relationship there is unlikely to end well, at all. (Says someone trying to recover from an ED, while dealing with diabetes and all the toxic garbage around that.)

Another very relevant post, from realsocialskills: Don’t teach kids that their body is wrong. Hint: that is a particularly nasty form of abusive behavior, no matter how good people think their intentions are. It’s impossible to ever be good enough, in the face of that.

On the whole, I’m just as glad that I heard more pragmatic messages along the lines of “shit happens, and you deal with it the best you can”, closer to home–and saw plenty of examples of that approach in action.

It’s still not easy, and things can get way more difficult when you keep encountering those other dangerously ableist messages. Very much including from healthcare professionals. It’s hard not to internalize some of it, and get some ugly dissonance going around Not Trying Hard Enough To Overcome things you know that’s not even going to work with.

But, I am so sorry the OP has ended up with very little hope right now, and at what sounds like a young age. It’s worrying. And it makes me very angry again, that so many people apparently really do only get to hear that their lives cannot be worth living while disabled and/or dealing with chronic conditions.

I only wish I were surprised that there are some families treating T1 diabetes that way. :-| It’s a mess. And yes, it is abusive dealing with other adults who are not even related to you–much less your own child.

I’ve thought about this a lot recently and I think nobody would ever want to keep up with me (as in a relationship) and my diabetes because it’s such a huge responsibility as a partner to keep up with all that stuff you have to do and ‘take care of’. I think nobody would stick around that long especially if you struggle a lot with your diabetes. I feel like my diabetes is bothersome for myself, my parents/family, so why wouldn’t it be for your boyfriend/girlfriend too? Especially because they could leave you anytime unlike your family. I think my diabetes could cause a lot of arguments in a relationship. I don’t want my significant other to worry the fuck out of me all the time just like my mother would do. Of course, if you tell this to a non-diabetic they’d just deny the whole thing and tell you to get help…
thestar.com
Potential diabetes cure to begin human testing
Therapy involves inducing embryonic stem cells to turn into insulin-producing cells and implanting them under the skin.

Johnson & Johnson, continuing its long quest for a Type 1 diabetes cure, is joining forces with biotech company ViaCyte to speed development of the first stem-cell treatment that could fix the life-threatening hormonal disorder.

They’ve already begun testing it in a small number of diabetic patients. If it works as well in patients as it has in animals, it would amount to a cure, ending the need for frequent insulin injections and blood sugar testing.

ViaCyte and Johnson & Johnson’s Janssen BetaLogics group said Thursday they’ve agreed to combine their knowledge and hundreds of patents on their research under ViaCyte, a longtime J&J partner focused on regenerative medicine.

The therapy involves inducing embryonic stem cells in a lab dish to turn into insulin-producing cells, then putting them inside a small capsule that is implanted under the skin. The capsule protects the cells from the immune system, which otherwise would attack them as invaders — a roadblock that has stymied other research projects.

Researchers at universities and other drug companies also are working toward a diabetes cure, using various strategies. But according to ViaCyte and others, this treatment is the first tested in patients.

If the project succeeds, the product could be available in several years for Type 1 diabetes patients and down the road could also treat insulin-using Type 2 diabetics.

“This one is potentially the real deal,” said Dr. Tom Donner, director of the diabetes centre at Johns Hopkins University School of Medicine. “It’s like making a new pancreas that makes all the hormones” needed to control blood sugar.

Continue Reading.

naturalnews.com
I

Open Letter to Natural News:

Natural News,

As a type 1 diabetic, I am furious. This article is the epitome of irresponsible, falsely-targeted journalism. I was thrilled when American Girl created a line of Diabetes Kits for kids who suffer with the same disease I do. In fact, in my days of playing with dolls, I always thought it would be so cool if my doll, also named Addie, could have a tube and testing supplies like me.

Your article is about how American Girl is “normalizing” diabetes, a “preventable disease”. Natural News, if there was a way that I could have stopped my immune system from attacking my insulin-producing cells, spill your secret. Last I heard, the type of diabetes that this care kit was created for, type 1 diabetes, is autoimmune disorder, with no preventable cause. According to diabetes.org, “most people with type 2 diabetes do not take insulin”, and since the care kit comes with an insulin pump, American Girl is not promoting type 2, but targeting kids with type 1.

You’re right about type 2 diabetes. It is linked to lifestyle and is most certainly preventable. But not type 1. You chose to ignore the existence of type 1 diabetes in your article for reasons probably linked to the fact that you’re a life/health news source. According to diabetes.org, “in 2008—2009, the annual incidence of diagnosed diabetes in youth was estimated at 18,436 with type 1 diabetes, 5,089 with type 2 diabetes.” More diabetic kids have type 1 than type 2, proving that this Diabetes Kit is doing more good than “harm”. It’s impossible to write about taking charge of your life by steering clear of type 1 diabetes, so you don’t. You fail to mention it instead. So many more children suffer from the autoimmune version of diabetes than the lifestyle form, giving you no authority to criticize the kids who are making an effort to normalize it. You have okay intentions, just bad journalists.

I can’t comprehend why you would vilify such an achievement. The petition for American Girl to manufacture diabetes supplies was created by a thirteen year old type 1 diabetic. This article is such a poor representation of her efforts and life with this disease. Throughout the article, you talk about type 2 diabetes (even correctly referring to it as type 2), but didn’t do your research about which type of diabetes this product is actually targeted towards.

In regards to your comment that the commercial industry is normalizing and profiting off a disease rather than actually saving children from it—young diabetics ASKED for this product. You even said so in your article. The petition received over 4,000 signatures. American Girl saw this as an opportunity to be inclusive, and they took it. Also, American Girl has made an effort to raise money for research and a cure. I have numerous memories of American Girl donating dolls to fundraising events, and has supported JDRF for years. Also, of course American Girl is normalizing the disease! What’s the alternative? Portray it like an STD? Natural News, you already did a wonderful job at that.

I don’t understand why, after a month of this article being up, you wouldn’t take it down. You are blatantly spreading false and damaging ideas. It says something about your news source itself, and its lack of commitment to actually providing readers with substance.

Please stop spreading lies about type 1 diabetes. We didn’t do this to ourselves, and you’re not helping us by saying that we did.

Sincerely,
Addie Finch (Diagnosed at the age of six)

Maybe its just me but I feel like people act different around you when you tell them you’re a diabetic. Idk why people like to act like they know shit about the disease when you as a person who has it obviously know the best how to handle my illness and what it means,you don’t have to remind me about some crap you once learned in biology class in 8th grade or about some grandpa who ‘does the same’ and you don’t have to pretend to be some expert when you cant even tell me a different treatment therapy other than ‘injections’.
Type 1 Diabetics Let’s make a social network for us!

I am a Type 1 Diabetic, I have had it for about 12 years now. I have never actually had a fellow diabetic friend… 

I’m not sure about anyone else but I could really use a group to talk to, that isn’t a bunch of doctors that don’t actually understand anything I’m going through. I want to share my experiences and I want to know others experiences as well. 
Diabetics on Tumblr, message me. I need the company of others who understand. I would extremely enjoy it if I get a response… As I would like to start a motion on here, and eventually make it a bigger event.