Everybody I know is sending me/tagging me in all these posts about the brand new Artificial Pancreas approved here in the U.S. They are ecstatic and overjoyed because there is this new magical invention that will make my life easier and HEY, we are that much closer to a cure right? But I am not excited and overjoyed, in fact I am barely phased. And people get offended and bewildered because “This is hope!” “Look how close to a cure we are!” “You. Should. Be. Grateful.” I wont apologize for how I feel or be grateful. I wont fake excited to please my family or friends. I have been hearing about all these new things since I was diagnosed. There is always something better, something new. We will ALWAYS be one step closer to a cure. My hope was taken from me years ago. I am tired of putting on a smile and praising God for every new little advancement. Its not good enough. Ten years of my life has been taken away because of this disease, I will rejoice when I have been handed a 100% true cure and no longer have to be a type one diabetic.
I don’t know how many people have heard of www.stickmancommunications.co.uk but they make great key ring cards that explain various medical conditions, mental illnesses and symptoms like sensory overload in simple and often humorous language.
Great if you have too many conditions to fit onto a traditional medical alert bracelet. They even sell lanyards so you can wear them round your neck.
I got the EDS, M.E., Fibro, Tummy Troubles, Sensory Overload, Joint Problems, Allergy and Emergency Contact cards :)
They also have various cards for Autistic Spectrum Conditions including Communication Cards.
fun things you get to experience when you have diabetes
getting to stab yourself with needles all the time for fun! except not for fun, but to keep you alive
that one oral med you’re on? yeah sometimes it’s just gonna give you diarrhea lol have fun figuring out when
your whole body being hot and cold at the same time. like you’re cold, but you’re overheated and you want to take your shirt off but if you do you get massive chills and there’s no winning
walking up the stairs when your sugar is high? more like you’ve never done squats that burn this much
really bad circulation in your extremities. like your torso is hot but your toes are fucking freezing as hell.
being told that your kidney function is “thankfully still okay” or that “you don’t have retinopathy yet”
stumbling to the kitchen in the middle of the night and having to decide which food will work best to treat a low when your brain doesn’t work and your body doesn’t work and if you don’t pick fast enough you’ll pass out and maybe die
going to bed in range and waking up feeling like hell on earth
dealing with shit like this:
having to force yourself to drink water when you’re really really nauseated and want to throw up everything in your stomach. nausea so bad water makes you want to puke
ppl telling you it takes 15 minutes to recover from a low when it’s more like 2 hours before you feel like your previous self (and recovery from a really bad high takes like 3 days)
an achey body for no good reason
friends being like “we should work out together” but you’re like “how tf do I manage my blood sugar while I’m doing that”
having to push through and still go to work/school when you feel like shit
things that hurt. those pump sites and injections that feel like you’ve been stabbed. your body begging you to feed it. your eyes. your muscles. your head. your stomach. your lungs. everything hurts.
having to hear diabetes jokes “lol it was so sweet it gave me diabetes” “omg it’s like a big bowl of diabetes” SHUT THE FUCK UP THATS NOT HOW DIABETES WORKS YOU PIECE OF SHIT but having to hear it and stay calm
losing the ability to tell when you’re low so lol you’re in the 30’s and you only just realized
having to stop having fun or hanging out with people or having to go home because you’re out of insulin or strips or needles or your site fill out. and by extension, never really being able to do something spontaneous because you always have to think how will i manage the sugaz when I do
always worrying about food. where it’ll come from, how to count it, where you can get some of you suddenly drop. food is your biological imperative. if you can’t answer those questions you’re this much closer to dying.
you don’t even know who you are without this disease. you know it’s not everything about you but it consumes you. literally. it eats away at your body, eats away at how long you have left to live.
having to deal with the monetary cost. like, pay or die? what kind of life is that?
never getting to take a break from the ridiculously difficult task of keeping yourself alive.
“A friend has asked for one of these to be made and embroidered. What a great idea!! For adults and children! Not only for autism but for any condition or illness. Could be a lifesaver in an emergency. If paramedics saw this no matter what the condition they know straight away what to do and what to avoid. Allergies etc 💓💙 home made belt covers with embriodery £8 £1 to post smaller items xx”
I don’t normally post stuff like this on Spidey’s blog, but I feel it’s important to use this blog to do good - that’s what Spidey would want.
One of our followers has a cat that needs urgent help, and we have the power to made a difference here. It’s truly heartbreaking when something happens to our pets and the cost of medical care is so high :( Please donate, if you can, or at least share this post.
They’ve already begun testing it in a small number of diabetic patients. If it works as well in patients as it has in animals, it would amount to a cure, ending the need for frequent insulin injections and blood sugar testing.
ViaCyte and Johnson & Johnson’s Janssen BetaLogics group said Thursday they’ve agreed to combine their knowledge and hundreds of patents on their research under ViaCyte, a longtime J&J partner focused on regenerative medicine.
The therapy involves inducing embryonic stem cells in a lab dish to turn into insulin-producing cells, then putting them inside a small capsule that is implanted under the skin. The capsule protects the cells from the immune system, which otherwise would attack them as invaders — a roadblock that has stymied other research projects.
Researchers at universities and other drug companies also are working toward a diabetes cure, using various strategies. But according to ViaCyte and others, this treatment is the first tested in patients.
If the project succeeds, the product could be available in several years for Type 1 diabetes patients and down the road could also treat insulin-using Type 2 diabetics.
“This one is potentially the real deal,” said Dr. Tom Donner, director of the diabetes centre at Johns Hopkins University School of Medicine. “It’s like making a new pancreas that makes all the hormones” needed to control blood sugar.
Two years ago, Anja Busse, then 11, created a video andonline petition urging popular toymaker American Girl to add a little something to its lineup of toy offerings.
Three months earlier, Anja had been diagnosed with Type 1 diabetes, an autoimmune disease that causes the body to stop producing insulin, a hormone that regulates blood sugars. Without replacing insulin, either via multiple daily injections or an insulin pump, a Type 1 diabetic like Anja will die.
The new American Girl Diabetes Care Kit includes all the things a Type 1 diabetic needs: a blood sugar monitor, lancing device, insulin pump, insulin pen, medical bracelet, glucose tablets, log book, ID card, stickers, and carrying case.
This isn’t the first time American Girl has made an effort to create toys for kids facing differences or challenges.
They’ve made several accessories, like a hearing aid and arm crutches, and even a lunch kit for kids with food allergies.
- t1d trainers keeping a pokemon on their team to help them monitor/treat bg levels, like chansey or audino
- diabetic!!!! alert!!!!! pokemon!!!! like growlithe, poochyena, or even slurpuff (since it has the best sense of smell out of any pokemon)
- trainers with delibirds using their pokemon to store their insulin, since delibird is an ice type that would keep their meds chilled
- pokemon centers keeping snacks for trainers who may have gone hypoglycemic while outside
- new trainers being warned that this new and active lifestyle they’re about to undertake will lead to a decrease in the overall amount of insulin they need to take, so they might have to decrease their basal and bolus rates. as a result, lots of newbie trainers go hypo during their first few weeks before they get into the swing of things
- t1d trainers making poffins or pokepuffs for their pokemon and non-diabetic trainers being like “are you allowed to be near all that sugar?”
- being hypo and trying to eat a poffin or a pokepuff……
- speaking of being hypo, imagine pokemon like vanillite, teddiursa, or combee sharing their sweets with their hypo trainers
Stop making people feel like their self worth is in a college degree or the job they work. You’re killing people w those assumptions. not everyone is capable of that. Realize that just bc its easy for u, not everyone can manage physically / mentally. Don’t assume everyone works and goes to school? Stop.
What your doctor doesn’t tell you when you’re diagnosed with diabetes:
1. There’ll be nights when you stay up crying because you can’t get your blood sugar down.
2. There’ll be nights when you wake up so disoriented you don’t know where you are because your blood sugar dropped that low.
3. Trying to not let it interfere with your school and work life is impossible.
4. There’ll be times when you’re so frustrated you’ll just want to tear everything related to the disease off your body and throw it as far away as you can.
5. You’ll always be scared.