Don’t tell me I talk about my illness too much. Every movement. Every breath. Is a reminder that I’m not ok. That I may never succeed.That I can’t do things that normal people do. That everyday is a struggle. Never ever tell me I talk about it too much.

All day, every day!
The reality of having chronic illness. Fatigue goes hand-in-hand because our bodies our constantly battling themselves, trying to repair the internal damage


All too often with an invisible illness we are dismissed immediately. “Oh, but you don’t look sick,” they’ll say while judging us, simply a book by its cover, not taking the time to think about the wounds and scars we carry internally or in some cases simply a layer of clothing away. 💉💊

I mean, what does sick even look like? Let me know exactly what you think and I’ll conform next time. You know? Excuse me for attempting to be strong, positive and to reflect that on the outside, man. 😶😬😕

Moral of this story, if you’re ever dismissed by your insurance company for this “but you don’t look sick” reason following a prescribed and necessary test or treatment, simply follow the above protocol! Should they still refuse, take it to the U.S. Office of Civil Rights as a HIPAA violation. Fight for your rights! 💪✨

Hope it helps! Big love, Dan xx

So yeah im still convinced my 142.90 (😫) meds arnt helping at all. They seem to be doing the opposite (increased pain, insomnia, oh and causing jumbled speech). But now alongside those i have been given clonidine patches to stick on my leg. They are actually a blood pressure medication that work on the nerves. Therefor applying it to the effected has been proven in some to decrease pain/sensitvity associated with crps/neuropathy. Fingers crossed they work! Im on my last options here!!

Pss im actually allergic to many adhesives so cross your toes too!

What to say to someone with chronic pain or chronic illness...

I can never understand what you are going through, but if you need to talk I am here to listen.

What can I do to make your life easier?

Let me hold you.

I am here for you no matter what.

You deal with this however you need to, I’m not here to judge.

I know you’re not mad at me, just mad.

I’m here for you.

Explain to me what you go through each day so I can better understand.

It’s not your fault.