crohns day

My name is Teresa and I am 23 yrs old. I have been battling (relatively unsuccessfully) Crohns for the past 5 yrs. There are a lot of other smaller issues, but they’re not so interesting.

Last fall I had surgery #3 and a temporary colostomy and a diversion were placed. My doctors are in the middle of debating further surgery to remove my gallbladder and the rest of my colon.

Every day is a new new challenge. I am so grateful that I am not in the hospital right now and I’m trying to keep my life as relatively normal as possible.

I am not ashamed of my disease or my ostomy, but I still hide it as much as possible. #NoShameDay is such a beautiful idea! We all have things we hide from the world, but our broken bodies shouldn’t be one of them. We are warriors and our scars should be worn with honor, not dismay.

Remember: Wear purple for World IBD Day, tag me in the post of photos, and you will be included in my blog post for IBD Day! 💜

#PurpleforIBD Today is World IBD Day.

As most of you know I was diagnosed with Crohns when I was 9 years old and I would not be the person I am without my illness. That being said, this same illness wrecks the lives of hundreds of thousands of people between harsh medication, surgeries, medical bills, feelings of isolation, and of course the actual symptoms of the illness. But it can also bring people closer together, make friendships, and start a change. I am Grace, I’m 18 (almost 19, I have an ileostomy, and I have Crohn’s disease. The disease may be invisible but I am not and I’m here to raise awareness. You can too by wearing purple for World IBD Day!

Having a chronic illness is life-altering, but not life-ending.

We may not die from it, we may continue to live long lives, but they will be vastly changed from anything we ever imagined for ourselves.

We can still have lives though. A diagnosis doesn’t mean your life is over, it simply means your new normal is just beginning. :) Don’t ever give up.

When I have a bad day (mentally, not physically), wine or chocolate or any other classic “go-to” comforts won’t do. For me, it’s cheezies.

In this case, it was a cheezie buffet. My lovely husband shopped 3 different stores to prepare for me the ultimate dish in eating away your troubles: Cheezies Done 3 Ways. Shown here are Cheetos puffs, Cheese Pleasers and Hawkins Cheezies (the latter two of which I’m certain you can only get in Canada. Condolences to those in other countries. You don’t know what you’re missing).

Was it good for my high blood pressure? No.

Was good for my Crohn’s? No.

Was it good? Yeah it was.

10

April 17th is No Shame Day. A day where people like me can talk openly about their disabilities. My name is Brenna and I have Crohns Disease. It’s been 5 years and a crazy journey that started during my freshman year of high school. Crohns is an irritable bowel disease that can affect the entire digestive system. It’s an autoimmune disease where your immune system mistakes your cells for foreign invaders thus causing massive amounts of inflammation and pain. My disease is primarily in my ileum in my small intestine. I now have a build up of inflamed scar tissue, called a stricture, in my intestine so thick that a colonoscopy camera can’t push past it to get a better visual on the rest of my system. I was on remicade for 4 years, until I grew immune and now I’m unmedicated and scared. I worry daily about hospitalization and medical bills. Living this way, I forget almost what it was like pre-disease. I get infections at an alarmingly easy rate because of the immunosuppressive drugs. It makes things like getting my nails done difficult. My weight is all over the place as steroids make me gain and sickness makes me shed all my healthy weight. My skin is definitely changed. I break out and react to things more often, I can also no longer tan as remicade has made me increasingly photosensitive. This disease at times embarrasses me. Makes me feel ugly, unworthy, and like I’m complaining about stuff that doesn’t matter. Some days I feel like I should just “get over it” and push through it like a healthy person. Then the next, I’m in the hospital for a serious obstruction. Many people will look at me and say I’m healthy, but invisible diseases matter. My pain is real and my struggle is real. I used to feel like if I didn’t give off the appearance of a healthy person, no one could love me. Today, I have a fiancé who loves me more than I think I’m worthy of, crohns and all. I’m in college online because it works with my schedule and between my symptoms. One day, I know I’ll find remission and the daily pain will stop. Until then, I’m beautiful and I can take on the world one step at a time.