crippled

I see a lot of people talking about how we need disabled actors playing disabled roles. I agree but but we also need disabled directors, disabled writers or maybe just disabled people helping to teach the actor how to play the role correctly. for example if an abled person has been playing a character for two years on a tv show and that character becomes disabled, they can’t recast the character so the part is played by a disabled person but what they can do is hire a disabled person to coach the actor to make sure they are playing the roles correctly and to show them the realities of living with a disability. They can even hire a disabled writer or writing assistant to help the writers to get the story right and avoid negative tropes. Us disabled people need more than just being portrayed in the media. We need to be portrayed right and we need more disabled people involved to make that happen.

There’s this myth amongst healthy people that being chronically ill exists in a vacuum. That yes, you lose your health, but everything else in life stays the same. And that’s just not even close to the truth. Being sick affects everything. Not a single aspect of life is left unchanged. 

Chronic illness changes everything- the friends you have, the food you eat, the movies you can watch, the hobbies you do, your job, your education, your family, your relationships, etc, etc, etc. 

There is no such thing as “just health,” or “just physical ability.”  Chronic illness is a malignancy, and it slithers its way into each and every aspect of a person’s life.

CripplePunk self-portrait 

[image description: a digital artwork depicting user ogrefairy - a fat  light-skinned wheelchair-user with a “The Future Is Accessible” crop top, surgery scars on her knees, reddish-purple lips, thin framed glasses, a dark brown bob cut, and a floral tattoo on her wrist. She is giving a peace sign and a gentle smile while sitting in a manual chair that has been decorated with purple and black zebra patterned tape. Matching forearm crutches sit behind her backrest. The background is Art Nouveau inspired abstract pale purple with a floral wreath of princess lilies and has flowers that match those on her tattoo. The whole image gives off a gentle, soft tone with layers of maybe assertive resilience built in.]

An Open Letter to Hollywood on the ‘Sick Kid’ Narrative:

Be chronically ill as a teenager or young adult is not The Fault In Our Stars or Everything, Everything or any other cinematic variation of that narrative.  Being sick as a teenager is not romantic. It’s not poetic. It’s doesn’t lead to pretentious relationships and lavish vacations. It doesn’t lead to quirky friends and fun outings. It isn’t a beautifully tragic plot device.

It’s watching people you used to be friends with move on without you. Learning to drive without you. Graduating high school without you. Going to college without you. Dating without you. It’s growing up and, the moment you have some independence, losing it. 

It’s having months and months of overdue school work. It’s having to pick between a passing grade and a flare up, or failing the class but maybe having some stability. 

It’s watching missed milestones pass you by. Watching your life pass you by.

It’s a constant fear of the future. “Will I get sicker? Will I ever be able to work?”

It’s never going to homecoming or prom. It’s not walking at graduation - either because you didn’t graduate or you can’t walk. Or both. 

It’s not chewing unlit cigarettes for the ~metaphor~, it’s going through Morphine withdrawal at 15 and taking the SATs with a drug-clouded brain. Hell, it’s watching people you know smoke pot on rooftops while you lay in bed high on Triptans and Tramadol. 

It’s not a John Green novel. There isn’t any glory in being a sick kid. There’s no scamming Make-A-Wish and sexy lovers. There’s no empathy from teachers or even from parents.

There is something innately alienating about only seeing your experiences portrayed in an unrealistic, romanticized light, especially at that age.   

if you don’t know what your illness is yet…

  • that doesn’t mean you’re not sick
  • you will find answers
  • i believe that you’re sick
  • you will get through this tough time
  • you don’t owe anyone an explanation
  • you will get the necessary accommodations
  • those who truly care about you will help you
  • i love you
  • I believe in you
  • im here for you
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via the official outsider my ass twitter account:

“It disturbs me how many abled liberals try to call out ableism while still enforcing the stereotypes that it brands disabled people with. The most important example of this is the repeated ‘defense’ of Serge F. Kovaleski against trump… Granted, trump’s mockery of kovaleski is an important example of American ableism, but note how liberals talk about it. For months now I have seen people, tears in their eyes, refer to SFK not by name but as ‘a disabled person/reporter’. They dismiss the event, not as slander but simply as ‘rude’. ‘Low class’, ‘unprofessional’, ‘cruel’. What I have consistently failed to see liberals mention is the true motive behind his statements: making SFK look incompetent, subhuman… What unnerves me, what makes me question how many people really understand PwD, is that in these events no one calls it ‘untrue’. Kovaleski is a lifelong photojournalist whos employed by a major newspaper. frankly a hero for a community who faces unemployment constantly. What trump did in that moment, by and large, is defamation. Yet his opponents never call it what it is. It’s simply ‘sad’. What this communicates is that liberals ‘find it unclean’ [because] it’s TOO representative of their idea of PwD… To these liberals, the true crime of ableism is not character assassination but that you repeated their own assumptions in a mean voice. To witness abled people failing to call out slander and lies against PwD is to see a criminal antagonist get arrested by a crooked cop. disability is not a limit to someone’s understanding of their life. We aren’t the ‘poor dears in the hospital’ we’re trying to talk to you.

People with visible disabilities lose all sense of privacy

Since I moved into college 2 weeks ago, I’ve heard:

- *pointing to my cane* “is that functional?”

- “I hope you get better from whatever you need a cane for”

- “what’s wrong with you?”

- “are you okay? What’s that for?”

And it made me realize something. When you have a visible disability/use a mobility aid, you lose all sense of privacy. People just feel entitled to ask what’s wrong with me. And I’ve gotten so many negative responses when I refuse to disclose my illness that now I just give in and tell them and brace myself for the “yoga?!??!” and “you’re an inspiration” and “you’ll be better one day!”

So let me just say this…

Disabled ppl can be bitches too.

Now let me explain. We are just like everyone else because we are HUMAN!!! WOW WHAT A SHOCKER! OMG!

I had a guest shocked because the deaf lady that checked in before him was a complete bitch. He said and I quote “I thought those ppl were suppose to be nice.” Like what the fuck dude. She’s deaf she’s not a fucking fairy tale angle for fucks sake.

Disabled people are people get that threw your thick ass skulls.

Hell I’m the first to tell you I’m an evil bitch and I was like this way before I became disabled.

Disabled ppl can be rude.
Disabled ppl can be sexy.
Disabled ppl can be smart.
Disabled ppl can be anything because we are still just a fucking human being.

5 Things Not To Do When You See A Disabled Person Under 21

I’m a disabled high schooler so I experience this shit a lot and I just wanna tell y’all what not to do, not to be mean but to just educate y’all

  • Assume we don’t know things. This happens to me a lot. I’m a straight A student, I’m in honors classes, and yet people still think I’m in need of educational help. I know it’s the cane cause people will talk to me normally, but then speak like I’m a 5 year old when they see my cane. It’s rude and honestly disrespectful so pls don’t.
  • “You’re too young to be disabled.” Holy shit no. Some of us are born with a disabilty and even if we aren’t, you don’t get to say shit about that. My legs didn’t stop working because I’m young, it’s because I have an actual illness.
  • “You’d be better if you went out more.” I have dealt with this so often. When I’m in extreme pain, instead of getting me pain meds or help, I normally get told I need to go out more. Walk around a bit. Fuck you.
  • “You shouldn’t rely on that ___” Hell no. If you take away my cane, I can walk but I’ll be in so much pain I’ll start crying. Also? Have you thought that maybe I actually need this cane? I’m not doing it for attention.
  • Which brings me to… DONT CALL US ATTENTION SEEKING. I promise you that if I could walk without my cane, I would. I don’t want this shit, and you saying it’s not real makes it worse.

This is just the tip of the iceberg but here’s some basic no-nos.

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Three cheers for sweet revenge

[he/him]

[image desc: 3 photos of me, a nonbinary indian wheelchair user in a black button down and shorts with thigh highs red pumps and a red neck scarf]

Insta: pansystbattie