chrons-disease

I think its pretty ridiculous chrons doesn’t get more recognition.. Of course its great for all the research of other illnesses but where’s the awareness for chrons and UC? It really sucks having to see someone I love suffering from it and knowing there’s nothing I can do to help and the people who could potentially make a difference don’t

I can’t stop thinking about food. Idk if it’s the prednisone or what but every twenty minutes Im like ‘can I eat now? Is it acceptable to eat now? Can o eat? What should I make to eat? Am I hungry? Or is it the prednisone? I want ice cream. But am I hungry? Or is it heart burn? Temple soup would be good. Can I eat now? Pasta! Peanut butter and crackers. Is it acceptable to eat now?’ Im loosing my mind.

anonymous asked:

Hi there! Is there a high chance of autism being comorbid with auto-immune disorders/diseases? My dad has a bunch of auto-immune stuff (and I've inherited most of it) and I have endometriosis. Is there a correlation between a parent with auto-immune issues and a child with autism? I'm rambling, but hope that made sense...

Right, so! This is absolutely a great question, because, short answer to what you are asking is yes, there is an increased comorbidity of autoimmune disorders in autistics, in addition to the better known increased comorbidity of connective tissue disorders.

Long answer!

To be clear, what we are actually answering is whether or not there is an increased comorbidity of autoimmune disorders with autism. Comorbid means, more or less, “occurring with” - so anything that isn’t a part of autism is comorbid with it. A cold, for example, is a comorbidity because it is diagnosed based on its own criteria, in addition to and not because of the autism.

At least, that is what it means medically. In psych “comorbid” can mean occuring with or because of. At least, that’s how it is used. I tend to stick with the medical definition because when we talk about ASD with autoimmune, we’re talking about medical stuff.

Anyhow, there is a known correlation between increased rates of autoimmune disorders and autism spectrum disorder. I know specifically that Rheumatoid Arthritis has been studied in parents of autistics, and that there is a correlation there, too, which isn’t really surprising to me because parents are often times “sub clinical” - that, is they have autistic traits, often including the common comorbidites, but don’t meet the clinical definition of ASD.

I’ve actually wondered if the whole thing with autistics and having bowel issues is because we’re seeing a spike in things like Chron’s Disease, which is an autoimmune disorder.

Endo, of course, is a big one. More and more science is leaning towards it being an autoimmune disorder, and anecdotally at least it seems common - at least in the circles I run in, I don’t know many autistic people with a uterus that don’t have Endo or endo-like symptoms. Of course, I have rheumatoid arthritis, which is also autoimmune. Chron’s is common, as is Lupus, though not quite as much as the others.

TBH, I’m of the opinion that every autistic that has physical symptoms outside the ASD box that can be explained reasonably with an autoimmune disorder, they should consider seeing a rheumatologist - those would be the specialists that deal with autoimmune stuff.

Thanks for asking! If you have questions about a specific autoimmune disorder, feel free to send another ask. I have access to my school’s library database from home, and I am happy to use it for quick searches to get and idea of the basics.

Cheers!

For people who think PTSD is something you can “get over” or just “suck it up” can eat my entire ass.

PTSD is actually not just a mental disorder.

It’s a physiological INJURY to the brain. Parts of your brain can literally shrink.

The brain stem, which we share with animals, is our instinct of “fight or flight”.

And for people with PTSD, that part of the brain is constantly under stress. Victims of something traumatizing are on watch, scared and physically upset. Which by itself can be dangerous, but it has long term affects like heart disease, and cancer.

It’s also a chronic condition, just like chrons disease, diabetes, asthma, etc.

SO PLEASE STOP. IT IS NOT SOMETHING THAT WE CAN CONTROL, OR JUST PAUSE, IT IS LITERALLY A LIFE THREATENING ILLNESS.

anonymous asked:

I found some information on doing a "water fast" that could cure/really help Chron's disease. there is research for it and maybe you could talk to your doctor and look into it yourself? I dunno I just care about you ❤

Casual reminder:
There is no cure yet for Crohn’s disease.

Repeat after me:
There is no cure yet for Crohn’s disease.

( I would really like to see those “proof” because a ….water fast sounds like BS. No offense. I heard everything from Chakra realignement to Canabis oil labelled as “cures”
…)

Kathleen Baker: Olympic Silver Medalist with Crohn's Disease

I haven’t really seen this on Tumblr, so I decided to share it. I’m not going to link an article because most are filled with inspiration porn.

Kathleen Baker is a 19 year old swimmer for Team USA. She just won a silver medal for the Women’s 100 meter backstroke in Rio 2016. She had a very impressive time of 58.75 seconds, just 3 tenths of a second behind the gold medalist. (For perspective, the world record for this event is 58.12 seconds, set in 2009.)

And Kathleen Baker has Crohn’s disease. She barely made it to the Olympic trials, and luckily for her both the trials and her Olympic event have fallen on low pain days. She has lived with this disease for several years, and it has greatly impacted her ability to swim, train, and all aspects of her life.

I’m just really happy to see a fellow spoonie dominating in the olympics.

To give you an idea of why i love my princess so much.

I have Chrons disease.
I have 4 docs appointments in the next month to see if i have cancer (biopsies, MRI, CT)
We haven’t seen each other in a week.
We have plans for Sunday.
I told her “I’m actually not feeling very good”
She went from “Woooooo sexy times, Little times, fun times!!!”
To “ It’s okay daddy I love you, you’re the best daddy. We can just cuddle. You make me so happy”
In .2 seconds.
Swear to god I’m gonna cry.

I’m  quitting my job.

I cannot, as of today, tell you where I work or what I do. But I can tell you I work in retail and I am quitting.

I am not quitting as a person. I’m not quitting because I need more money. I am quitting because of my ileostomy.

My ileostomy which has never before been a problem until just yesterday when I was written up for not fulfilling my duties.

Why?

Because I made a coworker uncomfortable. By just existing.

As many of us do, we let our managers on duty know that we have medical needs that need to be met. I personally will just say “Hey, I got a medical issue, I just use the bathroom more than others, that ok?” to which the normal response is “Sure” and sometimes a question.

Now, if they ask that question, I’m going to tell them it’s an ileostomy bag. If they ask what it is I will tell them.

THEY. ASKED.

It’s not my fault she was uncomfortable. It’s not like I went into detail.

I got a write up for it and felt that I was forced to sign because the rest of it I could not dispute against. I went home and filed a report with Ethics and I’m going to file a report to the American Disabilities Act offices (once I find where they are or who to send to).

NEVER LET OTHER PEOPLE, ESPECIALLY YOUR COWORKERS AND BOSSES, PULL THIS SHIT.