chrons-disease

I can’t stop thinking about food. Idk if it’s the prednisone or what but every twenty minutes Im like ‘can I eat now? Is it acceptable to eat now? Can o eat? What should I make to eat? Am I hungry? Or is it the prednisone? I want ice cream. But am I hungry? Or is it heart burn? Temple soup would be good. Can I eat now? Pasta! Peanut butter and crackers. Is it acceptable to eat now?’ Im loosing my mind.

anonymous asked:

Hi there! Is there a high chance of autism being comorbid with auto-immune disorders/diseases? My dad has a bunch of auto-immune stuff (and I've inherited most of it) and I have endometriosis. Is there a correlation between a parent with auto-immune issues and a child with autism? I'm rambling, but hope that made sense...

Right, so! This is absolutely a great question, because, short answer to what you are asking is yes, there is an increased comorbidity of autoimmune disorders in autistics, in addition to the better known increased comorbidity of connective tissue disorders.

Long answer!

To be clear, what we are actually answering is whether or not there is an increased comorbidity of autoimmune disorders with autism. Comorbid means, more or less, “occurring with” - so anything that isn’t a part of autism is comorbid with it. A cold, for example, is a comorbidity because it is diagnosed based on its own criteria, in addition to and not because of the autism.

At least, that is what it means medically. In psych “comorbid” can mean occuring with or because of. At least, that’s how it is used. I tend to stick with the medical definition because when we talk about ASD with autoimmune, we’re talking about medical stuff.

Anyhow, there is a known correlation between increased rates of autoimmune disorders and autism spectrum disorder. I know specifically that Rheumatoid Arthritis has been studied in parents of autistics, and that there is a correlation there, too, which isn’t really surprising to me because parents are often times “sub clinical” - that, is they have autistic traits, often including the common comorbidites, but don’t meet the clinical definition of ASD.

I’ve actually wondered if the whole thing with autistics and having bowel issues is because we’re seeing a spike in things like Chron’s Disease, which is an autoimmune disorder.

Endo, of course, is a big one. More and more science is leaning towards it being an autoimmune disorder, and anecdotally at least it seems common - at least in the circles I run in, I don’t know many autistic people with a uterus that don’t have Endo or endo-like symptoms. Of course, I have rheumatoid arthritis, which is also autoimmune. Chron’s is common, as is Lupus, though not quite as much as the others.

TBH, I’m of the opinion that every autistic that has physical symptoms outside the ASD box that can be explained reasonably with an autoimmune disorder, they should consider seeing a rheumatologist - those would be the specialists that deal with autoimmune stuff.

Thanks for asking! If you have questions about a specific autoimmune disorder, feel free to send another ask. I have access to my school’s library database from home, and I am happy to use it for quick searches to get and idea of the basics.

Cheers!

I'm so sick

Literally and I’m so sick and tried of this disease. Why can’t I be normal? Why did I have to get this disease? I feel so weak and exhausted all the time. I’m disgustingly skinny. I want to be normal again. I hate this gosh darn disease. It is honestly taking over my life little by little..

I wanted Cymbal Rush to capture the feeling of being suffocated by the arduous nature of everyday life. You know when the pressure gets too much and you’re surrounded by uncaring people in a cold world? The song came to me naturally when I needed to take a shit while waiting in line at the supermarket.
—  Thom Yorke
I’m  quitting my job.

I cannot, as of today, tell you where I work or what I do. But I can tell you I work in retail and I am quitting.

I am not quitting as a person. I’m not quitting because I need more money. I am quitting because of my ileostomy.

My ileostomy which has never before been a problem until just yesterday when I was written up for not fulfilling my duties.

Why?

Because I made a coworker uncomfortable. By just existing.

As many of us do, we let our managers on duty know that we have medical needs that need to be met. I personally will just say “Hey, I got a medical issue, I just use the bathroom more than others, that ok?” to which the normal response is “Sure” and sometimes a question.

Now, if they ask that question, I’m going to tell them it’s an ileostomy bag. If they ask what it is I will tell them.

THEY. ASKED.

It’s not my fault she was uncomfortable. It’s not like I went into detail.

I got a write up for it and felt that I was forced to sign because the rest of it I could not dispute against. I went home and filed a report with Ethics and I’m going to file a report to the American Disabilities Act offices (once I find where they are or who to send to).

NEVER LET OTHER PEOPLE, ESPECIALLY YOUR COWORKERS AND BOSSES, PULL THIS SHIT.

Kathleen Baker: Olympic Silver Medalist with Crohn's Disease

I haven’t really seen this on Tumblr, so I decided to share it. I’m not going to link an article because most are filled with inspiration porn.

Kathleen Baker is a 19 year old swimmer for Team USA. She just won a silver medal for the Women’s 100 meter backstroke in Rio 2016. She had a very impressive time of 58.75 seconds, just 3 tenths of a second behind the gold medalist. (For perspective, the world record for this event is 58.12 seconds, set in 2009.)

And Kathleen Baker has Crohn’s disease. She barely made it to the Olympic trials, and luckily for her both the trials and her Olympic event have fallen on low pain days. She has lived with this disease for several years, and it has greatly impacted her ability to swim, train, and all aspects of her life.

I’m just really happy to see a fellow spoonie dominating in the olympics.