chronic pain treatment

Out of tramadol and it won’t get here until tomorrow. The pharmacy and my new insurance have a new stipulation where they won’t release more than five days of vicodin at a time even if the script is written for more… Meaning I need a new script every week that I have to pick up in person…. Five hours away where my doctor is. I haven’t switched since moving across the state since she’s the only one who will give me pain meds..

Like are you fucking kidding me. The increasingly ridiculous hoops we are required to jump through because of an opioid crisis that has absolutely nothing to do with the vast majority chronic pain patients is fucking ridiculous

When everyone around you is having babies, buying cars, buying houses, getting new jobs….and you’re still just…counting hundreds of pills and getting a new medical bill you can’t pay each day. And you realize you could be doing this for the next year…or 2 or 3…or more. My daily essentials. 

effects of the killing curse

Harry having severe fibromyalgia growing up as an effect of surviving Avada kedavra. He learnt to self-soothe because no one understands what he is going through and his “family” dismiss him. As he grows up he develops worse CPTSD and it makes it harder to deal with his fibromyalgia and he never really brings any of it up because he learned to internalise his pain both physical and mental.

After the second time, his muscles and nerves are even more effected giving him terrible gi issues and muscle weakness. He has to use braces and sometimes even crutches to make up for muscle and nerve dysfunction. His braces are super light and he can’t even feel them. His crutches are lightweight and change colours depending on Harry’s mood. He gets a broom with a back and places to put his feet so he doesn’t get too sore or loose his balance. Ginny and Ron still play quidditch with him even if he can’t be quite as quick anymore.
His GI issues mean He has to eat a liquid diet and has severe food reactions. Even having to be tube fed for periods of time. But as he gets more sick he learns to open up to his family and friends and get help. The doctors don’t quite know how to treat these issues because they are resistant to normal treatments because they come from the killing curse.

But of course, his friends and family won’t put up with him being in pain. Hermione combined potion and medical knowledge to create chronic pain treatments. Neville knows so much about plants he comes up with some treatments to help with nausea and vomiting. George comes up with candies that help his mouth have some good tastes in it when he can’t eat much that doesn’t cause him to be ill.

And all of them now dealing with PTSD/Depression help each other out and his time dealing with pain allows him to be an emotionally supportive, partner, and friend.

Overall Harry will always be chronically ill but with the help of family and good healers he is able to manage life, even when he’s been dead twice.

(the person writing this is chronically ill both physically and mentally)

anonymous asked:

Hi I was wondering what you do for pain :)

Hello! As always, what I do will differ from what helps anyone else, because pain and treatment are so individual and personal. It depends dramatically on the type of your pain, location, and severity, which are all usually in a state of flux. But I hope there’s a strategy here that’s worth trying.

I always start with positioning. When we’re in pain all the time we get used to being uncomfortable and sometimes don’t realize that the position we’re in is hurting us more. This is especially important for joint and back pain. So consider posture, lie down as much as you need, support the joints, and use ALL THE PILLOWS.

Soaking in warm water can be good for a lot of types, especially muscle pain. Use Epsom salt if you have it! Water also relieves tension caused by pain and improves circulation. Doing some physical therapy in a pool can really improve things, plus it’s a lot easier.

Having low overall activity helps me, but of course that’s not an option for everyone. (Don’t push too hard though!) Respect your body’s limits, no matter how inconvenient.

Using good support - canes, proper seating, good shoes. 

Lots and lots of sleep. That’s hard as a student or employee but it’s extremely worth it. When I get 8 or more hours, I’m not guaranteed to wake up in pain, I have more time in my day before it gets bad. Also if I come home from an errand or appointment in a lot of pain, I go straight to bed, let myself take a nap or even just rest. Two hours later, things are much better. One of the reasons this works for me is because my pain is highly acute.

If stretching feels good to you, and docs don’t advise against it, do that! 

Other relaxation/distraction techniques can help with dealing with the pain. For relaxation - diaphragmatic breathing, ASMR, closing your eyes, music, anti-anxiety meds or supplements, tea. For distraction - netflix, time with pets, tumblr, arts and crafts, hobbies, whatever sounds fun/easy.

And of course medications. I don’t have many tips for those other than, if you have something that can be taken as needed, don’t start your day with it if you know you’ll be in pain. Take this once pain starts to increase and you’ll have more available for the day if it gets severe. 

Also if there are pills/patches/devices that don’t usually work that well, use them anyway for high pain days (as long as they’re safe to mix). Even if it doesn’t make a huge difference, it helps to feel like we’re doing something about it instead of just suffering.

Lastly, ask people to help you to avoid increasing pain past your limit. You don’t have to be at your absolute worst before you need some assistance. If you need someone to make you food because you’re at a 7 and by the time you’re finished you’ll be at a 9 and unable to eat it, ask! If you need someone to bring you a medication, call the doctor’s office for you, give you a massage or anything that might help, ask! The people around you should want to minimize your suffering if they can. And you’re doing fantastic by continuing to live with it.

I wish I had some better tips, you’ve probably heard all of these. Unfortunately, pain and treating pain is one of the least studied fields of medicine so we’re kind of on our own. 

I’ve tried acupuncture and essential oils and crap. Acupuncture worked for a little while and then just got painful. Essential oil is a gimmick (although they do smell nice). Special diets aren’t really doable for me with eating being pretty difficult right now, but I’m skeptical. We aren’t in pain because we eat greasy pizza - we’re in pain because we have diseases. 

I hope your pain lowers! I hope you get to enjoy something even while in pain. Lots of luck and love! 

One of the most frustrating things in the world is knowing of treatments for your condition that could greatly benefit you, but not being able to find doctors who will listen or be willing to try said treatments, even when all “standard” treatments have failed miserably.

Making it harder to get opiod pain medications is not going to fix addiction

okay I need to rant about this because I am LIVID alright

first: I am tired of being assumed to be an addict or at risk of addiction simply by virtue of being on opiod pain medications and having mental illness.  I have no history of addictive behavior.  BUT ANYWAY.

addiction will not be cured by removing addictive substances.  people will always find something to abuse to forget their troubles.  to fix addiction you need to address the root of the problem and that is not fucking opiods.  making it harder for pain patients to access the medication THEY NEED TO FUNCTION will not make addicts not happen.

you know what will help addiction?


addiction is a symptom of misery

you know what making it harder to access pain medication will do to chronic pain patients?  it will cause suicide rates in pain patients to go up (where are all the concerned thinkpieces on that from people without chronic pain btw), it will cause SELF MEDICATING which guess what, causes addiction.

you are not fixing things

you are making them worse

to steal words from my friend @bittersnurr:   the biggest addiction risk is shitty life situations and they keep exasperating them and calling it prevention

Thought about BPD

I’m not trying to be negative or anything. I am speaking from a clinical point of view, as a psych student, and as someone who has it [borderline personality disorder]. I think this is important to understand and realize.

Now, it is completely ignorant if one doesn’t acknowledge that Borderline Personality Disorder can be managed through specific treatment, and it has a high success rate (at least 80% improve!!!). I am not attempting to diminish hope in any way whatsoever.

With this said, I do really hate it when certain functional impairments that are shown to persist, are ignored or downplayed. While symptoms very much improve, social and work impairments and some affective (emotional) impairments do persist. Impulsivity is the symptom that improves the most.
Research shows some clear genetic and biological components, and even Dr. Gunderson (one of the main guys who made BPD recognized as a diagnosis) explains the genetics of the disorder are often under appreciated.

Some people appear to assume we go through treatment, and bam, it’s like we are a new person. But it is a life-long process. The skills and treatments we go through must continue. We don’t just go through treatment and stop. We need to continue to keep it in check, and some days are harder than others. I’m not saying that we need to continue extensive psychotherapy and treatment for the rest of our lives, but that we need to keep up the skills and check ins and whatever is needed. It’s a process, not just something we do and get done with. What has happened isn’t “erased,” either. We don’t just go, “Yeah it’s like it never happened!!:)”
In addition to this, the process itself is also often downplayed. It is beyond difficult to seek out treatment, get started, and then continue it.

Now with THIS said, I have often thought about how the statistics and findings of BPD add up. Take this into consideration:

-10% (1 out of 10) complete suicide
-Around 8 out of 10 attempt it, an average of 3 times
-Around 8 out of 10 self harm
-At least 85% have an additional mental disorder
-BPD is associated with extreme impulsivity, including: Substance abuse, unsafe and impulsive sex, reckless driving etc. This clearly can take a toll on safety.
-38% abuse or have abused either drugs or alcohol. I don’t believe this is including those who have used it as means of coping, but do not qualify for a diagnosis of a substance abuse disorder.
-There is not an exact percentage for this, but there has been research on BPD and STDs
-High rates of people with BPD have: diabetes, fibromyalgia, hypertension, and other chronic pains.
-10 years after treatment, only 1/3 of those with BPD were able to maintain a full-time job. This is about 3 out of 10.
-BPD is associated with lower rates of functioning, as well as disability, even after socioeconomic status, medical conditions, and psychiatric disorders, were controlled
-The overall prevalence of BPD in the US prison population is estimated to be 17%. This is typically because of substance abuse.

And then try to diminish the lasting effects BPD can really have…

These findings have left me to consider and think about the impact it really has. We don’t just one day go, “Yeah, it’s like it never happened!”
Diminishing the impact also diminishes the strength and courage it takes. It is invalidating, and quite frankly, disrespectful and harmful, to ignore or downplay the process and impairments that persist. It also rejects the resources we really need in the system for the disorder, as well as the need for improved future research and treatment.
I frequently get annoyed by claims such as “BPD is cured!” or “It went away!” or “It’s not as bad as people think!” etccc, just because people or doctors are attempting to show hope. These claims are not only, as mentioned, invalidating, disrespectful, and harmful, but it is also clinically inaccurate.
BPD is already frequently romanticized, downplayed or stigmatized by media, society, and all the people on tumblr or wherever, who claim they suddenly have it after reading some things– we don’t need anything else.

There needs to be a balance of hope and reality.

My new magical laser dentist man is lovely.

On the day I was flying home I was in a lot of pain from a potentially dying nerve so he opened up his office to try and fix it.

When I landed in the UK 10 hours later he’d sent me an email asking how I was and wanting to make sure the air pressure of the flight hadn’t increased my pain (which would have indicated possible hidden cracks in my fillings) and also offering me a list of holistic dentists friends he knew in the UK who he had contacted to let know a patient of his might need assistsnce with an emergency/chronic pain treatment.

He just sent me another email (one week on) to see how I’m doing and wanting to make sure my pain levels are okay and if I need any prescriptions faxed over.

What a gem.

The worst thing when you’re anxious is for people to tell you that there’s nothing to be anxious over. You’re already anxious, and then you’re extra anxious about being anxious! Anxiousception.

I know it can be difficult for people who don’t need to deal with mental disorder to understand what it feels like, especially because unlike a lot of illnesses, it doesn’t have any visual feedback - a person looks fine, so they must be fine, even if they’re not really. People have also been made to believe that you’re capable of having full control of your brain, in spite of it being an organ just as much as a lung, or a heart, or a liver.

People have an easier time understanding that a liver could malfunction than they do understanding that a brain can malfunction. They think a brain malfunction is a matter of willpower, that somehow you can will the brain into going back to perfect working order. Which is weird - can you will your liver into working?

You shouldn’t ask a person with anxiety to not be anxious over something, because it’s no big deal and they just need to get used to it. That’s like asking someone with a broken leg to not be in pain, because walking’s easy and they just need to get used to it.

Like chronic pain, maybe, with treatment, it’ll improve, or even go away altogether. Maybe it won’t, and maybe over time they’ll get used to it. Note: get used to it. That doesn’t mean it’s magically better. That doesn’t mean they’re magically no longer in pain. That just means they manage to deal with the pain so that it doesn’t hold them back as much as it did before.

But they’re still in pain. It’ll never, ever be the same for them as it is for someone who doesn’t have to deal with the pain.

You wouldn’t ask someone with chronic arm pain to do heavy lifting easily. In fact, you probably wouldn’t ask them to do any kind of heavy lifting. And if they insisted on doing it, you’d probably feel compelled to help in any way you could (unless they refused help, in which case you might wonder ‘hey why does this person insist on doing this when it causes them pain’).

Look at mental illness the same way. Don’t ask someone who is anxious about say, going outside, to go outside when they don’t want to. If they want to go outside, support them. Don’t judge them when they decide they like it better inside after all. Don’t tell them how easy it is to be outside. You’re just like someone telling the guy with chronic arm pain that it’s easy to lift a box. They know it’s easy for you. Accept that it’s hard for them.

When you actually make progress with your doctor