chronic nervous system disorders

Things I’ve become especially good at since getting diagnosed with postural orthostatic tachycardia syndrome (POTS):

1. Drinking 12-16 oz of water in one sip.
2. Salting already very salty food.
3. Doing a kind of wobbly, but stable version of standing that I’m proud of, considering how difficult it is in this body.
4. Living life as fully as I can, anyway, because life is beautiful and I’m going to cherish it.

To those who are suffering...

For the past year I have been suffering with debilitating “syndromes.” It includes Irritable Bowel Syndrome, Chronic Fatigue Syndrome, and Fibromyalgia. I felt completely hopeless and lifeless. I spent most of last year in my bed researching what was wrong with me. I had tons of tests done and they all came back negative except this last one. I was tested for the MTHFR genetic defect. I am HAPPILY positive. I finally found an answer to all my suffering. Having this genetic mutation inhibits you from converting vital nutrients into their active form, specifically folate and B12. With this defect, you are more susceptible to developing depression, anxiety(had all my life), chronic fatigue, IBS, nervous system disorders, cardiovascular diseases, ADHD, cancer and MANY more. I don’t normally make posts about my personal life but I chose to post this in case any of my followers are suffering with any of the conditions and want ANSWERS. Especially people who are suffering with depression and/or contemplating suicide and have tried many medications without success. DO NOT GIVE UP, THERE ARE ANSWERS! Not all problems are “in your head,” you could be suffering with a genetic disorder that can easily be treated by taking certain vitamins. Physical and emotional health is so important and makes you feel good. I didn’t know what “normal” felt like for A WHOLE YEAR! I have started supplementing myself for my genetic defect and have felt better already. DO NOT BEGIN TREATING YOURSELF WITHOUT A DIAGNOSIS OR DOCTORS APPROVAL! RESEARCH, RESEARCH, RESEARCH!

Chronic Illness Problems

I wish people could understand what life is like for me, but then again, I wouldn’t wish this on anyone. I had a conversation awhile back, with a chronically ill friend. At the beginning of each of us getting sick, we had an unbelievable support system, and we couldn’t even spit without hitting someone who was there for us. But now, it’s almost 5 years later for me and a couple years for her, and things have changed drastically. Being sick for a long amount of time doesn’t make going through it any easier. In fact, it’s the total and complete opposite. It’s harder than we could have ever imagined. You never get “use” to being sick. You learn to live differently and adapt, but you never get “use” to this difficult, daily trial. The truth is, the longer you suffer, the more you need help from outsiders to get you through it.