These are pictures of my daughter, Desiree. She is the love of my life. As many of you might already know she came into this world with a serious battle ahead of her.
At 2 months old she had her first brain surgery for hydrocephalus (fluid on the brain) with unknown causes. When we were discharged from the hospital she had very high blood pressure, was unable to turn her head, and urinated blood.
At 3 months old, the doctors found the cause- brain and kidney cancer. Prognosis 4-6 weeks to live. My 3 month old infant suffered thru high dose chemotherapy, kidney removal, 10 hour brain surgery, numerous transfusions, eye surgery, 30 days of radiation, months of bone marrow transplants, spinal chemo, etc. She suffered many cognitive deficits as a side effect. But eventually she went into remission.
For a year Desiree was okay. Then her respiratory health declined. Numerous bouts of pneumonia, RSV, bronchiolitis, etc. We were told she had interstitial lung disease because of the chemotherapy treatments.
For the sake of time I’ll wrap this up. My daughter just passed from respiratory failure. I’ll save the details because it was heartbreaking.
We want to honor my daughter and other children like her. I’ve donated all of Desiree’s medical equipment to children whom could use it. Her clothing has gone to women’s shelters. I want to honor my daughter. The Kindness Crew (on Facebook-my friends from high school and college) want to fund and donate a wheelchair accessible swing to the appropriate park here in buffalo.
If you are interested at all please donate to this cause. I love that they want to remember Desiree and help children like her.
You can donate at