150706 Jung Yonghwa Weibo Update Sweet message from Yonghwa on caring for autistic children. He tagged JJ Lin & 2 other artists from China Hunan TV Station: [Eng Trans] @jyheffect89: #2015ONENIGHT# Caring for “children with autism” starts with a smile :) More understanding, more patience, and more sense of responsibility towards these children who need our care! Spread smiles through smiles. Received a smile from @Dapengm. Inviting @JJLin, @WuXin and @WuLeiLeo to continue forwarding
[Spanish] Dulce mensaje de Yonghwa para el cuidado de los niños autistas. El etiquetó a JJ Lin y a otros 2 artistas Chinos del canal Hunan TV @jyheffect89:#2015ONENIGHT# Preocuparse por “Los niños con autismo” comienza con brindarles una sonrisa :) Con más comprensión, más paciencia y más sentido de la responsabilidad hacia los niños que necesitan de nuestro cuidado! Haz que sonrian sonriendo. Recibí una sonrisa de @dapengm . Invito a @JJLin, @WuXin y @WuLeiLeo para que lo sigan publicando
What would you say are the good things about being autistic?
Ooh a personal question!
I think… I like the neurological benefits of autism, such as my unique way of understanding the world through my senses. My synesthesia, my perfect pitch, and being a tetrachromat. All of those things are somewhat unusual and I think they help make me unique.
I also like some aspects of autism, such as thinking about things in out of the box ways, coming up with creative solutions. And I love my affinity for patterns! And I love how much I can just love something, whether it’s my favorite stuffed animal or a crumpled piece of paper.
Let us take a moment to peek into an autistic mind.
He wishes to remain anonymous but he has allowed me to post this on tumblr. This is an autistic teenager’s thought journal and he asked me to read it in order to further understand him. I was personally quite moved by it so I asked if I could share it. I believe that more people should be aware about autism and what it actually means and feels like. I’ve seen too many of autistic kids being mistreated or deemed “dumb.” One was wrongfully convicted of a crime two months ago, which led them into a manic depression. Had their name not been cleared, things could have turned out for worse. A 16 year old boy was wrongfully placed in jail for three years and committed suicide from the traumatic experience of being put next to the delinquents of our society.
Please note that one account does not apply to all autistic people.
a lifehack blog for autistic people? like autistic people can submit ways that they ease their sensory issues (substituting __ with __ in a recipe to make it less spicy for example, or using a certain brand of toothpaste)
is there already a blog for that? i havent seen one, but please tell me if there is !
reblog this if you think that it would be a good idea :>
A little while ago I ordered some toothpicks and a chew toy in an effort to stop biting the insides of my mouth.
I chose Nopro toothpicks because of their positive reviews and I’m very happy with them. I’ve been using these things for 3 days and I’m hooked. They’re strong enough to withstand a some nervous chewing and they only have one sharp end. The non-sharp end has 3 grooves on it which are nice because the pick won’t slip around in my mouth. I keep them in a tin in my pocket and I can get away with chewing them in public and at work.
Contrast this with the “ARK Krypto-Bite.” This thing is large, conspicuous, and the rubber squeaks against my teeth. Due to this, I really don’t think I’ll use this thing on a regular basis. Probably more of a panic-attack kind of situation rather than just for casual stimming. That being said, this seems like a quality product so far. I got it in “extra tough” which, according to them, is for “moderate chewers.” I personally would have gone with a softer one because my jaws are terrible, but this one seems fine. I’ve been chewing on it for about 15 minutes and it has kept its shape. As you can see from image #2 (which shows the toy after I bit it fairly hard several times), it retains its shape very well and I don’t think I could chew through it if I tried. Another wonderful thing about the “Krypto-Bite” is the dimensions – at .25″ wide and a smidge over 3″ long, this thing can reach my back molars without being too big to carry around. Image #4 shows it stowed away in a tin with my toothpicks. Perhaps more importantly, it’s about the width of a fingertip. This allows me to easily close my mouth around it, keeping this from becoming a gross, drooley situation. Plus, it came with a caresheet which is always nice.
To recap, I love Nopro toothpicks and I use them regularly for casual stimming. The “ARK Krypto-Bite” is also a great product, but probably not one that I’d use regularly due to it being conspicuous and unwieldy.
I was aware of autism five years before I even started to consider that I could be autistic. It was six years of that awareness before I was diagnosed by a doctor who knew autism is a lot more complicated and varied than what fits neatly into “autism awareness” campaigns. I was never like the poster children for autism, who are white, cisgender boys (never adults) from (upper)middle-class families. I didn’t think I could be autistic until I found what actual autistic people had to say about autism.
Autism awareness, at least as it currently exists, fails a large segment of the autistic population. Most people aren’t white, cisgender boys. We need awareness that includes atypical autism traits. If I or my family had read that list of traits when I was fifteen, I might have realised I’m autistic a lot sooner and found the resources and support I need much sooner, too.
My autistic traits are atypical, and they’re full of contradiction. I’m intelligent and even good at language, even metaphorical and idiomatic language, but sometimes I can’t remember how to form sentences or forget words for everyday things like chairs or my own native language just starts to sound like complete gibberish. I struggle to answer “how are you?” but I’m often complimented on my self-awareness and understanding of both my own and other’s emotions. The tiniest sounds can distract me or give me a headache, but sometimes I can’t even hear someone shouting my name. Autism is inconsistent. It’s complicated.
If you want to know what autism looks like, if you want to spread real awareness, then you need to listen to the people who know autism best: autistic people. Maybe this “Autism Awareness Month,” instead of wearing blue, walking to raise money for a dangerous organisation, sharing stories meant to incite fear or pity, or putting blue ribbons on everything out of the irrational belief that ribbons solve everything (seriously, stop it; ribbons don’t cure cancer either)–instead of spreading unhelpful awareness created by non-autistic people, you can help spread and deepen awareness of what autism actually is by reading and sharing the accounts of actual autistic people.
-You try to book a flight, but the website redirects you to one for a train station. You hail a taxi, but the driver only points you toward the train station. You try to board a boat, but there is only a train station. The world is a train station.
-There’s a lowing of cattle in the distance as they speak her name. Temple Grandin. You look in the mirror and a cow’s face stares back at you. Your skin still feels like your own, but the cow is all that anyone will ever seen.
-They stare at you with eyes that never look away, even when turning corners or facing a different direction. Their smiles grow tight as you discuss your interests, translucent as onion paper, and you can see the annoyance simmering beneath. Their ears are jammed with puzzle pieces. The puzzle pieces are blue.
-Each of you wears a brand. The brands read either High or Low. When the time comes to discuss your people, the Highs are cast out the nearest window. The Lows sit under the table as They talk about them.
-A sea of faceless children of indeterminate age follows you wherever you go. They are between the ages of three to seven, mostly boys. They act nothing like you, so how can you be autistic? What are you really, hiding beneath a human skin?
-”My child is missing!” a mother screams, though the child stands right there. Other voices join the chorus, a deafening wail that you cannot comprehend.
-The walls mutter when you move, drown you out when you speak. “Quiet hands,” they whisper. “Person-first language!” they shout.
How to provide pelvic exams for people on the autism spectrum
ASD, or autism spectrum disorder “is a neurological variation that occurs in about one percent of the population and is classified as a developmental disability.” (source) While all autistic people have variations in personality and character traits just like all humans, this is an abbreviated list of some common characteristics typical of autism (click here for the full article):
Heightened sensitivity to sensory input (light, touch, noise, etc)
Non-standard ways of learning and approaching problem solving.
Deeply focused thinking and passionate interests in specific subjects
Atypical, sometimes repetitive, movement
Need for consistency, routine, and order.
Difficulties in understanding and expressing language as used in typical communication, both verbal and non-verbal.
Difficulties in understanding and expressing typical social interaction.
Attention to the temperature of both the waiting room & exam room
Lower ringer volume of office telephones
Weighted blankets available in waiting room & exam room
Pillows for the exam table
Offer tours of the clinic ahead of time
Close windows & cover them with blinds as the patient requests.
Offer a face/eye mask to pts having difficulty with visual stimulation
Taking a history:
Don’t assume that autistic folks don’t have sex or are asexual. Many autistic people, all throughout the spectrum, have sex in varying ways and need and want your guidance to do it safely and comfortably.
Ask questions neutrally and specifically. For some people questions like, “Are you sexually active?” are simply too vague and the patient will not be able to answer you. Explain what you mean without being condescending and treating the patient like a child. For example try, “Do you have sex?” If that’s too vague, specify, “Do you have sex where someone puts their fingers or penis or sex toys inside of your vagina? Do you use vibrators or stimulation on your clitoris by yourself or with a partner?” Etc.
Don’t judge. If the patient is having a hard time or not able to respond, ask what you can do to make it easier for them. Be prepared to move slowly and explain things more than once.
Discuss with the patient ahead of time how they want to undertake the exam. If they’d rather listen to music/focus on something else during the exam, let them do so and work quietly. Agree on a code word or physical sensation ahead of time (such as tapping the knee) to let them know that you need their attention because you have a question or request.
Making the exam more comfortable:
If possible, schedule a longer time slot.
Establish a code word or non-verbal indicator for the pt to use at any point if they want to stop or take a break
Talk about sensory preferences before you start the exam. For example, some people find the sensation of lubricant intolerable, while others find the sensation of not using it uncomfortable. Discuss temperature and materials. If you have access to more than one type of speculum, ask the pt if they’d prefer metal or plastic.
Explain everything before you do it: “I will now be inserting an instrument called a speculum to open up the vagina. This instrument is made of metal (or plastic), and you may feel the muscles in that area stretching. This is being done so it will be easier for me to be able to see that your cervix, ovaries uterus & vagina are normal. Now you will feel a slight twinge. This should not hurt. I am using a plastic brush to collect cells to test in the lab to make sure your cervix is healthy.”
Provide clear, written out instructions on how your pt can obtain their test results. Explain ahead of time possible side effects of the test (“you might have some spotting or cramping after the exam, this is normal and healthy. However, if the bleeding…..”).
Side note: if it seems like too much to completely re-do your clinic for the few autistic patients you see, consider that all patients will be soothed and appreciate an ASD-friendly atmosphere, whether or not they realize that’s what it is.
Physicians were asked about their ability to recognize autism, their knowledge of the disorder, their comfort level in treating those with the condition and their need for training and resources.
While nearly all of the providers surveyed said they would explore the possibility of autism in patients with limited eye contact, most under-reported the number of people on the spectrum who were under their care.
What’s more, only 13 percent of doctors said they had adequate tools or referral resources to appropriately accommodate those with autism.
…Okay, so, the Autism Spectrum is legitimately a thing and there are a lot of people out there who just don’t seem to get it.
Some equate the word “spectrum” with the concept of a scale, which is not what that word means. I guess they’re thinking of a line that runs the gamut of shades from red through to violet. Thing is, hearing the word spectrum should instead be conjuring an image of a colour wheel…
ID: Image shows six icons; the apple pinwheel, the adobe colour wheel, red-green-blue and magenta-yellow-cyan Venn diagrams, the ASAN logo and a colour spectrum.
The whole point of using “spectrum” is that it’s an alternative to the out-dated practice of ranking autistics on a line from high to low functioning, verbal to non-verbal, or any other irrelevant criteria.
The very idea of the “Autistic Spectrum” is that our neurotype can’t be defined by a one-dimensional range from black to white with grey in the middle - there are a vast multitude of hues where any given autistic person can be situated on any given day. Much like the wavelengths of light and colour which we all see differently, each autistic person is a variation of the same theme, always in flux, constantly changing and evolving, every individual experience bringing new depth to the chromatic masterpiece that is Autism.
ID: Image shows a rainbow cloud composed of handfuls gulal, or multi-coloured powder dyes that have been thrown into the air by a large group of people who are celebrating Holi (glimpses of these people are visible within the flying colours). Photo credit to ‘White Massif,’ an event management company in Bangalore. http://whitemassif.com/7-awesome-holi-party-ideas/
Some fail to grasp the importance of a spectrum that unites us all because they are blinded by a sense of belonging (and simple stubbornness); there are many who don’t want to let go of an identity they finally fit into perfectly. I get that, and anyone is totally free to identify however they want – on their own time…It’s really not cool to dismiss those of us who find functioning labels hurtful.
Anyone who is aware of the harm caused by the negative connotations associated with such language shouldn’t propagate the use of terminology that segregates their own people and promotes ableist ideals.
The following links are good perspectives on why functioning labels are bad:
So, basically, it would be really helpful towards achieving equality, acceptance and equal rights if the entire Autistic Community could agree to ditch the old labels and settle on a new term that’s prismatically, kaleidoscopically inclusive.
That’s the spectrum.
ID: Image shows two circular spectrums. The first is split into eight sections of different colours with the saturation on a gradient towards white in the centre. The second shows the word 'spectrum’ fit into the aforementioned sections of the same circle. Instead of a gradient, the second image has the letters each in one of eight colours and the space behind them in the opposite colour.
If we separate ourselves into different classifications of autistic, whether that’s using functioning labels or adamantly sticking with “Asperger’s,” it is guaranteed to encourage the kind of ableist behaviour that will allow others to use our differences to maintain a caste system based on their own arbitrary values.
Like I said, people should call themselves whatever they want on their own time, be whoever they want to be… but please, everyone – stop condoning practices which help to put the rest of us into boxes we’ve had no hand in creating and have no desire to be trapped by.
Yes, everyone is entitled to their own identity, but no; being autistic does not give any one person a free pass to trivialize the discrimination that others have experienced. And, F.Y.I., that’s exactly what many are doing when they insist on using functioning labels or person-first language.
ID: This diagram shows the same circular spectrum as in the first of the pair of colour wheels in the previous image. Added to it around the outside of the spectrum in blocky lettering are eight section titles and within each slice of the circle is text that indicates a sliding scale from one state to another (two words or terms with an arrow between them).
The eight sections are as follows:
Emotional Sensitivities = empathetic > stoic
Physical Sensitivities = sensitive > stalwart
Physical Conditions = tough > tender
Motor Skills = dynamic > static
Disability = prolific > expendable
Neurological Conditions = impulsive > compulsive
Communication = articulate > expressive
Filtering & Processing = perceptive > perplexed
Note: The above image is a visual representation of how different hues can be related to different types of autistic qualities. It displays only eight categories with a straightforward scale attached to each which by no means covers every autistic experience. The idea is that any person can simultaneously be in many places within the spectrum and that each point of reference is constantly fluctuating. This is just an example of how the spectrum can be seen.
Autism is neurological. It’s irreversible and immutable.
We are autistic; we are autism.
It’s not possible to separate a person from the essential aspects of their being and personality. Yes, autism can be hard and disabling, but it also has a myriad of multi-faceted benefits. Those two sides of it cannot be separated either.
No one is with their autism anymore than they are with homosexuality or heterosexuality. No one is with their autism anymore than they are with their gender or nationality or religion or political beliefs.
I am an agnostic living with astigmatism. Note the difference.
ID: The last image shows a line of circles that each contain a small section of one of six abstract paintings. Each one is different but all of them show a spectrum of colour.
Everyone is entitled to their own opinion. I can’t disagree with that, but this is about more than how we all take our eggs in the morning; it’s not a debate between scrambled and sunny-side-up (or nothing at all because eggs are sensory minefields) – it’s about a whole diverse group of people who have been oppressed and pigeonholed for centuries.
This is about human rights. This is about respect.
Don’t let prejudice lead to violence. Read and share the #DDoM2015list of names. Understand why we, as a community, must concur on a palette which encompasses all of our needs.
Together we can shift the winds of change towards acceptance and understanding, and away from analyzing and evaluating the functionality and worth of other human beings like we’re specimens in a lab.
Instead of examining and ranking each person by the potential for remuneration, let’s opt to value each other for the uniquely colourful creatures we are. Humanity is a spectrum, our planet is a spectrum, the whole universe is a spectrum; autism is a spectrum.