A video about functioning labels and why I hate them.

https://www.youtube.com/watch?v=RpmJRnTlPSg 

Sorry for not having closed captions. I don’t have the software or the knowhow to do them and I can’t do it manually because my ability to write to dictation is practically zero.

I talk about why functioning labels are offensive to autistic people because they’re labels created by non-autistic people. They’re so ingrained that autitsic people use them too and they end up throwing others like them under the proverbial bus when they say “I’m autistic…but I’m high functioning!” as if they’re ashamed. DON’T BE! Functioning labels create this ridiculous dichotomy in a society that already paints autism as a bad thing. THERE IS NO DICHOTOMY. Everyone who is autistic is autistic and they’re not high or low functioning. They’re not mild or severe. I’m autistic. Anyone who is autistic who is reading this is autistic. Just autistic. 

Functioning labels set the stage for how autistic people get treated, and regardless we still get seen as lower or defective. “Broken” but still able to function usefully (high functioning/mild) or “too broken” and not functioning in a useful manner at all (low functioning/severe.) People who get called high functioning or mildly autistic have their issues minimized or invalidated while people who get called low functioning or severely autistic are seen as lesser not-people even by those who say they’re high functioning. I know that’s not the intent of many who say they’re high functioning, but that’s honestly the message being sent when they say that. See what I mean?

It’s only the supports autistic people need that should be measured. High support for people who need help with most everyday things(dressing, showers, eating, etc), medium support for people who only need some help(transportation, prompts for cleaning a house, help with cooking, etc) and low support for people who only need slight help(ie balancing a checkbook or navigating a social environment).

I challenge you to google Amy Sequenzia after watching my video. If you STILL use functioning labels after that, shame on you. Functioning labels are ableist and they need to fall out of use.

anonymous asked:

I have scored high on both Autism and AD(H)D tests, what particular issues do people with this combination face? I only ask for comparison reasons

ADHD is often co-morbid with ASDs, although apparently not diagnosable along with Autistic Disorder under the DSM-IV because attention deficits are seen as part and parcel of autism. Sorry, I’m not sure that’s relevant but I only realised the other day on reading some criteria and found it interesting. Some people are still diagnosed with both autism and ADHD however.

I am only diagnosed with autism, and my attention difficulties are seen as part of that rather than requiring additional diagnoses. I’m not sure which things are more to do with attention and which things are to do with autistic stuff, but: I daydream a lot, I’m easily distracted by sensory stimulus, I struggle to leave and return to tasks, I find it hard to get back on topic if I stray from it, I find it hard to concentrate on listening to people (quite often even for short periods of time), I get bored and wander off when people are talking to me or if I’m supposed to be doing something I don’t want to do, usually without realising I’m doing it. Sometimes I can find it hard to get started on anything because my brain can’t concentrate on one thing (if I have two special interests I might end up spending no time on either of them because my brain constantly jumps back and forth). Having disorganised and rapid thoughts can make me quite anxious, and make tasks overwhelming. I’ve often been thought lazy and slow, but it’s because my brain is always working so quickly. It takes me a long time to perform tasks that other people do quickly (showering and getting dressed take a long time because of attention problems/distractions, as well as sensory issues etc.). At school I often didn’t know what I was supposed to be doing because I’d daydream while the teacher was talking, and I have the same problem at work now. That’s all I can remember at the moment.

What are other people’s experiences?

- Ben

what if i made like

a lifehack blog for autistic people? like autistic people can submit ways that they ease their sensory issues (substituting __ with __ in a recipe to make it less spicy for example, or using a certain brand of toothpaste)

is there already a blog for that? i havent seen one, but please tell me if there is !

reblog this if you think that it would be a good idea :>

Virtual stimming refrence!

!! These are all websites for online stimming! bolded are my personal faves. I will probably add more if i find some or get suggestions!

  • triangulation - interactive triangles!! warning for flashing and bright colors,
  • grow valley - a cute lil game where you click to make things happen!
  • flame painter - you get to paint with “flames” :0 fire warning?
  • line 3d - follow a 3d line with your mouse! warning for,, worm looking thing?
  • circles - warning for bright colors, flashing, and repetition!
  • sand -  click to pour sand, you can change the color and add gradient!
  • blobs - drag your mouse to create ink blobs!! click to change color
  • power - umm,, its nice
  • sinking - BRIGHT COLORS AND EYESTRAIN!! but nice.
  • ooze move - very nice… bright colors and worm looking thing tw
  • slick quick - exact opposite of ooze move, same tw! click to edit color
  • branching - click to send lightning bolt like things thru branches!
  • silk - similar to flame painter, but better,
4

A little while ago I ordered some toothpicks and a chew toy in an effort to stop biting the insides of my mouth.

I chose Nopro toothpicks because of their positive reviews and I’m very happy with them. I’ve been using these things for 3 days and I’m hooked. They’re strong enough to withstand a some nervous chewing and they only have one sharp end. The non-sharp end has 3 grooves on it which are nice because the pick won’t slip around in my mouth. I keep them in a tin in my pocket and I can get away with chewing them in public and at work.

Contrast this with the “ARK Krypto-Bite.” This thing is large, conspicuous, and  the rubber squeaks against my teeth. Due to this, I really don’t think I’ll use this thing on a regular basis. Probably more of a panic-attack kind of situation rather than just for casual stimming.
That being said, this seems like a quality product so far. I got it in “extra tough” which, according to them, is for “moderate chewers.” I personally would have gone with a softer one because my jaws are terrible, but this one seems fine. I’ve been chewing on it for about 15 minutes and it has kept its shape. As you can see from image #2 (which shows the toy after I bit it fairly hard several times), it retains its shape very well and I don’t think I could chew through it if I tried.
Another wonderful thing about the “Krypto-Bite” is the dimensions at .25″ wide and a smidge over 3″ long, this thing can reach my back molars without being too big to carry around. Image #4 shows it stowed away in a tin with my toothpicks. Perhaps more importantly, it’s about the width of a fingertip. This allows me to easily close my mouth around it, keeping this from becoming a gross, drooley situation. Plus, it came with a caresheet which is always nice.

To recap, I love Nopro toothpicks and I use them regularly for casual stimming.
The “ARK Krypto-Bite” is also a great product, but probably not one that I’d use regularly due to it being conspicuous and unwieldy.

– Rahel

Autism Masterpost

Stim Toys:

stimtastic

autism-products

autistictoys

autismshop

Shirts and Jewelry (without the puzzle piece!!)

Autistic Pride Memory Charm

Autistic Pride Classic Braided Bracelet

Rainbow Heart Pendant

Autistic Pride Long Sleeve T-shirt

Anti-Puzzle Piece Pendant

Autistic Pride T-shirt

Boycott Autism Speaks

Background Noise:

Relaxing Rain

Space Odyssey

Private Jet

Box Fan

Shower Sounds

Calming Seas

Forest And Nature Sounds

Soothing Summer Night Sounds

Electric Heater Fan

Resources:

musingsofanaspie autismhousingnetwork
A lot of people think

that it’s easy to get up, wash, get dressed, and get going. I just want to say that these things are an obstacle for many people, myself included.

I can recall two occasions where therapists have completely overlooked my difficulty with “daily living skills”. My clothes may look clean, but god knows I may have been wearing them for the past six days. I’m not gonna lie to you. It’s fucking hard to wash clothes, plan outfits, get up the energy to take a shower, etc. Sometimes I don’t have enough spoons. Sometimes there just aren’t enough fucking spoons.

What this means is that I invest more energy in looking clean, because it’s easier to conserve spoons that way.

What this also means is: if you’re disabled and struggle with “daily living skills” and “hygiene tasks,” you’re not alone.

How to provide pelvic exams for people on the autism spectrum

ASD, or autism spectrum disorder “is a neurological variation that occurs in about one percent of the population and is classified as a developmental disability.” (source)  While all autistic people have variations in personality and character traits just like all humans, this is an abbreviated list of some common characteristics typical of autism (click here for the full article):

  • Heightened sensitivity to sensory input (light, touch, noise, etc)
  • Non-standard ways of learning and approaching problem solving.
  • Deeply focused thinking and passionate interests in specific subjects
  • Atypical, sometimes repetitive, movement
  • Need for consistency, routine, and order.
  • Difficulties in understanding and expressing language as used in typical communication, both verbal and non-verbal.
  • Difficulties in understanding and expressing typical social interaction.

Read more about autism here & here.

Making accommodations for people with ASD:

  • Tropical fish tank in waiting room
  • Incandescent instead of florescent lighting
  • Low volume calming music
  • Attention to the temperature of both the waiting room & exam room
  • Lower ringer volume of office telephones
  • Weighted blankets available in waiting room & exam room
  • Pillows for the exam table
  • Offer tours of the clinic ahead of time
  • Close windows & cover them with blinds as the patient requests.
  • Offer a face/eye mask to pts having difficulty with visual stimulation

Taking a history:

  • Don’t assume that autistic folks don’t have sex or are asexual.  Many autistic people, all throughout the spectrum, have sex in varying ways and need and want your guidance to do it safely and comfortably.
  • Ask questions neutrally and specifically.  For some people questions like, “Are you sexually active?” are simply too vague and the patient will not be able to answer you.  Explain what you mean without being condescending and treating the patient like a child.  For example try, “Do you have sex?”  If that’s too vague, specify, “Do you have sex where someone puts their fingers or penis or sex toys inside of your vagina?  Do you use vibrators or stimulation on your clitoris by yourself or with a partner?”  Etc.
  • Don’t judge.  If the patient is having a hard time or not able to respond, ask what you can do to make it easier for them.  Be prepared to move slowly and explain things more than once.
  • Discuss with the patient ahead of time how they want to undertake the exam.  If they’d rather listen to music/focus on something else during the exam, let them do so and work quietly.  Agree on a code word or physical sensation ahead of time (such as tapping the knee) to let them know that you need their attention because you have a question or request.

Making the exam more comfortable:

  • If possible, schedule a longer time slot.
  • Establish a code word or non-verbal indicator for the pt to use at any point if they want to stop or take a break
  • Talk about sensory preferences before you start the exam.  For example, some people find the sensation of lubricant intolerable, while others find the sensation of not using it uncomfortable.  Discuss temperature and materials.   If you have access to more than one type of speculum, ask the pt if they’d prefer  metal or plastic.
  • Explain everything before you do it: “I will now be inserting an instrument called a speculum to open up the vagina.  This instrument is made of metal (or plastic), and you may feel the muscles in that area stretching.  This is being done so it will be easier for me to be able to see that your cervix, ovaries uterus & vagina are normal.  Now you will feel a slight twinge.  This should not hurt.  I am using a plastic brush to collect cells to test in the lab to make sure your cervix is healthy.”
  • Provide clear, written out instructions on how your pt can obtain their test results.  Explain ahead of time possible side effects of the test (“you might have some spotting or cramping after the exam, this is normal and healthy.  However, if the bleeding…..”).

Sources for the above material HERE and HERE.

Side note: if it seems like too much to completely re-do your clinic for the few autistic patients you see, consider that all patients will be soothed and appreciate an ASD-friendly atmosphere, whether or not they realize that’s what it is.

Physicians were asked about their ability to recognize autism, their knowledge of the disorder, their comfort level in treating those with the condition and their need for training and resources.

While nearly all of the providers surveyed said they would explore the possibility of autism in patients with limited eye contact, most under-reported the number of people on the spectrum who were under their care.

What’s more, only 13 percent of doctors said they had adequate tools or referral resources to appropriately accommodate those with autism.

— 

Doctors Largely Unprepared To Treat Adults On The Spectrum

This is why people self-diagnose.

This is why we need far more than inadequate, Autism Speaks-level “awareness”– even among healthcare professionals.

The word autism is considered something wrong.  But people sometimes have different conditions.  I am autistic and I communicate very differently.  I belong to this same world as everyone else does.  I belong to so called society as the other beings do.  I am an individual who is not less determined than other people to have some day an opportunity for being competent.
—  Autistic 12-year-old Hanna, who uses RPM. Hanna has a Facebook page titled “Being Nonverbal Does Not Mean Having Nothing to Say” as well.