Allistic person: “This is what it’s like to be an autistic pers-”
Me and pretty much every other autistic ever: “Stay in your lane. (◕‿◕✿)”
Allistic person: “But I studied autism and even met like two people with au-”
“In your lane. Stay.”
You will never know what it’s like to be autistic unless you’re autistic yourself.
Just as with the birds which fly in the air and the trees which grow toward the sun, you can study them and the reasons for their being, but you can never know what it’s like to be them, because everything you learn about them is from your own point of view and not theirs.
But the difference between an autistic person and a tree is that, unlike trees, autistic people are fully capable of offering their own point of view, though sadly so many allistics do not know how or just downright refuse to listen.
They won’t admit it, but I do get this feeling that some allistics actually enjoy the idea of autistics being this huge “puzzle” or “mystery” and they’re scared that once it’s been “solved” (i.e. people actually start listening to autistics instead of so-called allistic “experts” on autism), they will have to start treating autistic people with the humanity and respect we deserve.
Max Headroom: Andrew Wakefield denies autism study fraud
The autism/vaccine guy speaks out: In recent weeks, Andrew Wakefield’s name, already synonymous with a questionable autism study from over a decade ago, has been dragged through the mud further amid reports that the report is an elaborate fraud. He still stands behind his study, claims the reporting of Brian Deer was completely, utterly wrong, and emphasizes that he did not personally profit off the study as reported. Credit to Alisyn Camerota, who hits him pretty hard with questions the whole way through. It’s weird that this interview isn’t getting much attention at the moment. (Note: He said he was going to upload some proof to his blog, but we see absolutely nothing new there.)
Measles outbreaks in Southern California have health officials worried. Why are parents still falling for the debunked vaccination/autism link? Image: dxline.com
It’s been almost a decade since Andrew Wakefield revealed his bogus study concluding vaccines cause autism. That study — which was the result of falsified data — has since been discredited. But not before it got the “anti-vax” movement…
Study shows surprising link between autism and parental age
by Michelle Stein posted in Mom Stories A new study sheds a little more light on possible risk factors for children developing autism; the ages of parents at the time of conception might play a part, according to research published June 9 in Molecular Psychiatry. While past studies have reported high autism risk in children… Read more »
Want to get the full story? Click on the headline above. And thanks for reading the BabyCenter Blog. http://bit.ly/1B6ILD3
A new study, Gender Differences in Diagnosis and Social Characteristics of Children With Autism (ASD) from a US Registry, has found that girls with Asperger’s syndrome are diagnosed six months later than boys.
Nearly 10,000 children with autism were involved in the research study, that sourced data from the Interactive Autism Network registry. On average, boys were diagnosed with Asperger’s…
A new study from The University of Texas Health Science Center at San
Antonio found that mothers with chemical intolerances are two to three
times more likely than other women to have a child with autism spectrum
disorder (ASD) or attention deficit hyperactivity disorder (ADHD).
The medical study was published in the July-August 2015 issue of the Journal of the American Board of Family Medicine.
People who are chemically intolerant often have serious reactions
to common chemicals and some become too sick to carry out routine
functions. Chemical intolerance affects about 10 percent to 30 percent
of the U.S. population. Developmental disorders such as autism and
attention-deficit disorder affect one in six children in the United
Study Claims Chelation Doesn’t Reduce Autism Symptoms
Chelation therapy eliminates metals from the body but lacks evidence as a successful autism treatment.
by Genevra Pittman -
An interesting story by Reuters medical reporter Genevra Pittman came out on Dec 21, 2012. The message was clear from the title: Chelation doesn’t help kids with autism: study.
Chelation is a big topic in the autism community. The process involves the removal of heavy metals from the body, typically lead and mercury, and while mainstream medicine and health official still know nothing about autism—except that their ever-expanding vaccine schedule doesn’t cause it—they look upon most biomedical treatments like chelation with suspicion and even alarm.
Pittman: “Removing heavy metals from the body through a process traditionally used to treat mercury and lead poisoning doesn’t help relieve autism symptoms, a new analysis suggests.
“During chelation therapy, patients are given injections of a chemical that binds to heavy metals, lowering their concentration in the blood and ultimately allowing the metals to be excreted through urine.
“Chelation gained traction as an alternative treatment for autism due to a theory that mercury poisoning might play a role in the developmental disorder. However, evidence hasn’t supported that idea and it’s been essentially discarded in the scientific community, researchers said.
This study looked at a small number of children and lead researcher, Tonya Davis, from Baylor University in Waco, Texas concluded that chelation doesn’t help autistic kids. We were told that some kids did improve but that might just have been due to “kids getting older” or some other treatment.
Pittman quoted Dr. Joyce Mauk, head of the Child Study Center in Fort Worth, Texas, saying ‘There’s really no evidence that mercury causes autism or has a place in causing autism, and also we know that chelation can be dangerous as well. Even the underlying theories don’t make sense.’
What’s missing, of course, is any mention of the huge and unending debate over mercury-containing vaccines and autism. Nothing was said about where the mercury was supposed to have come from in the first place. For some reason Pittman didn’t bother to go into the use of mercury as a preservative in vaccines or the fact that it was never tested or approved by the FDA or that the 12.5/25 mcg in a single vaccine far exceeds EPA standards for mercury exposure.
For years, doctors and health officials referred to the mercury-containing preservative, thimerosal, as “safe mercury.” It was supposed to be far less dangerous than methyl mercury found in fish that we’re always being warned about. Despite having no original safety studies to back them up, and the fact that beginning in the early 2000s, they started to remove thimerosal from vaccines, health officials have continued to deny any serious side effects from the use of a deadly neurotoxin. To make up for the fact that they’ve allowed its use for 70 years based solely on a single study done by the manufacturer, Eli Lilly, back in 1930, U.S. officials have managed to produce a number of easily flawed and manipulated population studies (all tied to the vaccine industry) as proof that thimerosal is safe.
Baltimore, Md. — Researchers from the Johns Hopkins University School of Medicine’s Institute of Genetic Medicine said that they have discovered a single genetic mutation that is likely responsible for severe autism in young girls.
Using an approach that concentrates on rare and extreme cases of autism, the researchers studied 13 young girls with severe cases of autism, and found that mutations…
I’ve been doing a research placement for the last few months as part of a team attempting to identify genetic CNVs (basically genetic abnormalities) which are linked with Autism. Currently doing some work for them that’s a bit tedious but I came across this study which I personally found pretty interesting… You don’t really get to see many studies on non-Western populations and when you do find them they tend to be in lesser-known journals such as this one, which also means it’s nearly impossible to access the full article as it’s pretty unlikely your university has bought a subscription to that journal. Same applies here, tragically, but the abstract is pretty intriguing on its own.
SHANK3 is a gene that’s been pretty substantially supported as having a connection to autism, and they found that having this common genetic variant in the SHANK3 gene, “rs9616915″, decreases your risk of Autism. The fact that this was a paper done in China with a Chinese population supports that SHANK3 really is connected with Autism across all cultures and isn’t just a unique feature of Western-based populations or something. Obviously it’s a bit annoying that we can’t check the methodology since there could be issues with the quality of how they conducted the study, but still.
Is that cool or what?
(Okay, yes, YPIW is a nerd, but in my defense, I grew up in China and that’s why I get so excited about this kind of thing.)
I don't know if you will know about this but I think you lived in Japan (?) or maybe can understand other jp sources on it Basically I'm autistic but I'd really like to study in Japan as I love learning Japanese. I was wondering what the view of autism is in Japan was and also if it would hinder me in spending time there long term? Thank you!
I have lived in Japan for a couple of years although I don’t know if that will be of any help here as I don’t have any first-hand experience of autism in Japan. I’ve had a look online about autism (自閉症 - じへいしょう) but the majority of what I’ve found is studies about autism, advice for parents on child-rearing and education. This article gives an overview of one boy’s progression through the school system which may be of interest to you.
I think the only advice I can give you is, if you are thinking of doing an exchange then you should be able to find out through the school you’re at in your home country about any support available at your potential school/university in Japan. If you do an exchange then you will be best person to judge whether spending time there long-term will be good for you or not. I’m sorry I couldn’t be of more help.
This is a great development!!!! We’re going to dehydrate children to make them more normal and fix their Troubled Brains and their absolutely debilitating “repetitive behaviors,” and make them be people again!!!!!! This seems 100% unproblematic!
Stratford, N.J. — A study conducted by researchers from the Rowan University School of Medicine in Stratford (RowanSOM) and Rutgers New Jersey Medical School in Newark found that Bisphenol-A (BPA)— a chemical component commonly found in soda cans, water bottles, and some paper products— is processed differently in children on the autism spectrum.
….Question: (yes you should read that to the tune of independent woman by destiny’s child) - What do I do with my blog when I go back home? End it or keep going with my university escapades? What do people normally do with au pair/travel blogs once they’re done? I’m torn. Obviously I’ll blog for a bit longer with what happens when I get back…but then what?
disclaimer: i love my mom she just. she has no social skills whatsoever.
like recently she read some studies on autism and started questioning whether my brother was autistic and so she started leaving articles on it lying around the house so he could see them…
tho my favorite anecdote is still when she got piss drunk and started saying how she loved us but she was just worried how we wouldn’t amount to anything in life and then when we mentioned it once she was sober she just went “oh. well. it’s true!!”
what im saying is my ability to read and properly react to social situations was not at all inherited. not even a little bit.
The way autism is diagnosed in the United States has led to an apparent tripling in cases in recent years that does not reflect reality, researchers said Wednesday.
Rather, more youths with intellectual or developmental disabilities are being reclassified as autistic, said the study in the American Journal of Medical Genetics.
The prevalence of autism in the United States was just one in 5,000 in 1975.
It leapt to one in 150 in 2002, and reached one in 68 in 2012, according to the US Centers for Disease Control and Prevention.
“This new research provides the first direct evidence that much of the increase may be attributable merely to a reclassification of individuals with related neurological disorders rather than to an actual increase in the rate of new cases of autism,” said the study in the American Journal of Medical Genetics.
Scientists at Penn State University analyzed 11 years of special-education enrollment data on an average of 6.2 million children per year.
They found “no overall increase in the number of students enrolled in special education,” said the study.
“They also found that the increase in students diagnosed with autism was offset by a nearly equal decrease in students diagnosed with other intellectual disabilities that often co-occur with autism.”
Therefore, what may appear to be an epidemic of autism is more likely the result of shifting patterns of diagnosis over time.
In addition, autism is a complicated condition with many degrees of severity, and can overlap with other related disorders.
“The high rate of co-occurrence of other intellectual disabilities with autism, which leads to diagnostic reclassification, is likely due to shared genetic factors in many neurodevelopmental disorders,” said lead researcher Santhosh Girirajan, assistant professor of biochemistry and molecular biology and of anthropology at Penn State.
“Every patient is different and must be treated as such. Standardized diagnostic measures incorporating detailed genetic analysis and periodic follow up should be taken into account in future studies of autism prevalence.”
Some common themes are beginning to emerge from research on structural and functional brain connectivity in autism spectrum disorders (ASD). However, much more work will be needed to learn how changes in brain connectivity contribute to the development of ASD, and how they’re related to autism-related symptoms and behaviours. Now, a neuroimaging study from researchers at University of…